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A Place where all gluten-free people can meet each other--support groups, adults, teenagers, men, women, people who live inside or outside the USA. Everyone is welcome!


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    1. - trents replied to Dawn Meyers's topic in Related Issues & Disorders
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    3. - captaincrab55 replied to Dawn Meyers's topic in Related Issues & Disorders
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  • Posts

    • Dawn Meyers
      Antibodies my number is in 500's. COVID hit and I was  layed off from my job so no insurance (was in Arizona) so couldn't complete all the other testing they wanted to do. Back home and contacted Minnesota Mayo and they take my new insurance so considering going back in spring. 
    • trents
      pdm1981 asks what I was also thinking. That is, refractory celiac disease.
    • pdm1981
      I've been to the Mayo Clinic. Outstanding place. Did they test to see if you might have refractory celiac disease? This may explain why the symptoms persist but what numbers are off the charts? Are they antibodies, liver enzymes?
    • captaincrab55
      Hi Dawn,   Back in the Fall of 2019 with Covid looming I considered getting a pneumonia vaccine.  I went as far as getting in line and reading the pamphlet and saw the warning about not getting it if you ever had a reaction to diphtheria.  I instantly recalled a tetanus booster shot in 1971 that caused a severe reaction.  Tetanus booster shots include diphtheria.  I haven't had a tetanus shot since, but recent lab results show that I have many timed the immunity required.  Good Luck.  
    • trents
      Since we don't know what you reacting to when you get vaccinated, we can't say whether or not the pneumonia vaccine will cause a reaction. Is there some common ingredient in these vaccines that is causing a reaction. I mean, with many vaccines the antigen is delivered via a solution containing albumin (chicken egg protein). Some people are allergic to chicken egg protein so they can't take those vaccines. That kind of thing. When you say your "numbers are off the chart", what numbers do you refer to? Are you referring to celiac disease antibodies?
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