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A Place where all gluten-free people can meet each other--support groups, adults, teenagers, men, women, people who live inside or outside the USA. Everyone is welcome!


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    • Scott Adams
      Your situation is not straightforward, so it’s understandable why you’re seeking clarity. Your elevated thyroid peroxidase antibodies (TPOs) and thyroglobulin levels suggest autoimmune thyroid involvement, possibly Hashimoto’s thyroiditis, even though your thyroid function currently appears normal. The link between autoimmune thyroid disease and celiac disease is well-documented, but your celiac panel results are inconclusive, with only the deamidated gliadin IgA elevated. As you doctor correctly mentioned, this could indicate non-celiac gluten sensitivity (NCGS) rather than celiac disease, especially since you lack classic GI symptoms. However, the absence of improvement after four months gluten-free is notable. While some non-GI symptoms like fatigue and brain fog can take longer to resolve, the lack of progress raises questions about whether gluten is the primary driver of your symptoms. It might be worth revisiting the possibility of a biopsy (after a gluten challenge) to rule out celiac definitively, or exploring other potential contributors, such as nutrient deficiencies, other autoimmune conditions, or even dysautonomia, given your temperature regulation and energy issues. Have you had your thyroid levels retested since going gluten-free? If not, I would do that before resuming a regular gluten diet. It would be interesting to see if there has been any normalization in those levels while on a gluten-free diet.
    • Dawn Meyers
      Yes no gluten in my diet. I get so sick that I have to go to the ER for fluids and medicine. I was diagnosed in 2017 but was told I probably have had it my whole life. (Went to Mayo in 2019 to confirm diagnoses and address all other autommune issues ect.) Also intolerance to sugar alcohols and chicory root. Try to eat clean and stay away from processes foods. 
    • trents
      Dawn, are you diligent with the gluten free diet? When were you diagnosed with celiac disease?
    • Dawn Meyers
      I am on Otzela for my psoriasis an psoriasis arthritis.  They tried pretizon and I got sick on it. ( the doctor at urgent care). Need to see my doctor but he seems puzzled by me. My celiac disease is unresponsive and my numbers are off the chart.  ( 2nd testing went higher but Mayo said they might never go down because I have it so bad) Came back home considering going back to Mayo.
    • trents
      Welcome to the forum, @Dawn Meyers! Are you currently on immunosuppressant medications for your various autoimmune disorders?
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