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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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- VinnieVan replied to VinnieVan's topic in Introduce Yourself / Share Stuff2Question
Thank you for your response, Trents. I was only 10mo old at the time, so I don’t know anything about the doctor other than he was in Portland, Oregon. I assume, given it was 1954, that he was white, but I can’t be sure. We didn’t live in Oregon. Having this “issue” was never a big deal as I remember. As an older child, teen and young adult, I ate some brea... -
- trents replied to VinnieVan's topic in Introduce Yourself / Share Stuff2Question
Welcome to the forum, @VinnieVan! No, never heard it called that. What was the physician's racial/ethnic profile? IIRC, The connection between gluten and celiac disease was made during the WW2 era in Holland when the Germans blockaded a region along the Rhine River and the local populace did not have access to wheat flour. A local physician began to... -
- VinnieVan posted a topic in Introduce Yourself / Share Stuff2
Question
Hi, brand new here! When I was a baby, I was nursed exclusively until I was 10mo old. My mother introduced a few foods, some of which had gluten. I became very ill and she had no idea why. The doctor she took me to told her I had “Anglo Saxon disease and could not eat any gluten.” He also told her I would likely never walk and not develop normally. I’m 7... -
- cam6 commented on Scott Adams's article in Additional Concerns4Is Chipotle Gluten-Free? A Celiac's Guide to Safe Dining
@trents I’ve done this many times over many years, and that has never been a problem. I think they fill & bag the items on a ticket before they move on to the next one so it’s not likely to be a problem. My bag has my name on it from my account. It’s just my bowl inside the bag that says Gluten Allergy.- celiac disease
- chipotle
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- Katya773 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Previous Biopsy Results
Hello:). This a lengthy post. Just looking for some advice. I had the capsule study back in 2019 I tried the gluten challenge but got so horribly distended and could finish it, I had been gluten-free since 2016 except for occasional accidental ingestion. However In 2019 I saw a gastroenterologist due to nonstop diarrhea and bloating. No diagnosis of Crohns...
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Thank you for your response, Trents. I was only 10mo old at the time, so I don’t know anything about the doctor other than he was in Portland, Oregon. I assume, given it was 1954, that he was white, but I can’t be sure. We didn’t live in Oregon. Having this “issue” was never a big deal as I remember. As an older child, teen and young adult, I ate some breads - rye, sourdough, spelt. No pasta, baked goods, pizza or breaded meats. That said, I was extraordinarily thin. Since my 20’s I’ve been totally gluten free, so nearly 50 years. I am very cautious and eat really well. Are you a celiac? How has it been for you? Again, thank you for responding.
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Welcome to the forum, @VinnieVan! No, never heard it called that. What was the physician's racial/ethnic profile? IIRC, The connection between gluten and celiac disease was made during the WW2 era in Holland when the Germans blockaded a region along the Rhine River and the local populace did not have access to wheat flour. A local physician began to notice that some of his patients who had always been unexplainably sickly began to thrive. That's a pretty "white" area. Also, for many years, it was thought that celiac disease was largely confined to those of European descent but we know better now. That likely was a product of what people groups had access to healthcare rather than some ethnic/racial phenomenon. As healthcare has become available on a more worldwide basis we have seen that celiac disease is certainly not confined to those of European ancestry. It has become very common in India, for instance.
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Hi, brand new here! When I was a baby, I was nursed exclusively until I was 10mo old. My mother introduced a few foods, some of which had gluten. I became very ill and she had no idea why. The doctor she took me to told her I had “Anglo Saxon disease and could not eat any gluten.” He also told her I would likely never walk and not develop normally. I’m 71, very healthy and I walk!! Has anyone ever heard celiac called that? I never eat gluten. If some slips by me, I know within a few minutes. It’s horrible, as all of you know! Anyway, thank you for letting me be here! Let me know if anyone else has ever heard celiac disease called Anglo Saxon disease!
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Hello:). This a lengthy post. Just looking for some advice. I had the capsule study back in 2019 I tried the gluten challenge but got so horribly distended and could finish it, I had been gluten-free since 2016 except for occasional accidental ingestion. However In 2019 I saw a gastroenterologist due to nonstop diarrhea and bloating. No diagnosis of Crohns or ulcerative colitis. After my biopsy I went to see the doctor and he said I could eat gluten bc my risk wasn’t high. However his nurse practitioner called me later and said I had Celiac?! What the heck??? So I stayed gluten-free. How confusing! These are partial-biopsy results from 2019. *Signifi retained food stomach/SB. Mult ulcers jejunum/ileum-petechiae, damaged villi, lymphangiectasia. I am DQ2.5 homozygous, my mom has Celiac. Apparently being DQ2.5 homozygous puts Celiacs at risk for refractory Celiac and EATL… How scary and this is another reason why I want to be sure of my diagnosis. Fast forward to now ,last year I lost 18 lbs bc I felt so full after small amounts of food and had constant nausea. It comes and goes. Usually I can trace my symptoms to accidental gluten ingestion. Didn’t know Wheatgrass is a no no 😕 I have a new Gastro and he said try another challenge and pill endoscopy. So I did my best but yet again I didn’t complete it. I’m torn if I should go ahead and try the challenge again like my Gastro recommended. This whole thing has been so draining. I lost my dad to suicide a few months ago and my twos cats died within 6 months of each other, my stress levels have sky rocketed. Not feeling well off and on makes it harder to stay positive.
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Bone demineralization would not be detectable via bloodwork. It would require a DEXA scan. The body keeps calcium levels pretty constant in the blood and will rob it from the bones if necessary because it is such an important mineral for many metabolic processes.
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