-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
16,205 topics in this forum
-
- 18 replies
- 22.9k views
-
- 3 replies
- 1k views
-
- 5 replies
- 2.5k views
-
- 46 replies
- 31.8k views
-
- 1 reply
- 1.8k views
-
- 2 replies
- 791 views
-
- 4 replies
- 1.5k views
-
- 16 replies
- 5.6k views
-
- 9 replies
- 17.2k views
-
Celiac.com Sponsor (A10):
Celiac.com Sponsor (A10):
-
- 27 replies
- 17.6k views
-
- 15 replies
- 20.3k views
-
- 5 replies
- 2.2k views
-
- 5 replies
- 979 views
-
- 30 replies
- 5.3k views
-
- 1 reply
- 7.9k views
-
- 12 replies
- 3.2k views
-
- 15 replies
- 2.8k views
-
- 15 replies
- 16.3k views
-
- 7 replies
- 2.1k views
-
- 3 replies
- 1.2k views
-
- 22 replies
- 33.9k views
-
- 4 replies
- 1.6k views
-
- 2 replies
- 695 views
-
- 8 replies
- 1.6k views
-
- 10 replies
- 2.5k views
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8-M):
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- trents replied to Jtestani's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Help with results please. As I have a appt after the New Year.
JettaGirl, there are a number of serum antibody tests that can be ordered when diagnosing celiac disease. Unfortunately, most physicians will only order one or two. So, a negative on those one or two may or may not add up to seronegative celiac disease since had a "full celiac antibody panel" been ordered you may have thrown some positives. False negatives... -
0 -
- JettaGirl replied to Jtestani's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Help with results please. As I have a appt after the New Year.
Thank you! It was never explained to me why it didn’t show up in the labs. This makes so much more sense to me now. The endoscopy test was very easy though. I was worried about my first one and have had 2 since. I don’t think I was able to eat after midnight because of anesthesia, the procedure itself took 20 minutes. I did need a driver to get me home aft... -
- trents replied to Jtestani's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7
Help with results please. As I have a appt after the New Year.
You are confusing two different things. You are confusing seronegative celiac disease, in which all celiac antibody tests will be negative despite a positive biopsy, with mixed positive and negative antibody tests. It is normal for someone with celiac disease to not have all antibody tests throw positives. That's why they have developed different antibody... -
- Celiac comments replied to Jtestani's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Help with results please. As I have a appt after the New Year.
I had 2 blood tests at the same time. One negative, one positive. No insurance coverage for endoscopy but felt MUCH MUCH better after three days gluten-free and many hair, skin, and rash issues cleared or improved in a week. It seems there are lots of false negatives in Celiac blood tests.- 1
-
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Forum Statistics
-
Total Topics120.9k
-
Total Posts69.3k
-
-
Celiac.com Sponsor (A22):
-
Celiac.com Sponsor (A21):
-
Upcoming Events
-
0December 11, 2024 12:00 AM
-
-
Posts
-
JettaGirl, there are a number of serum antibody tests that can be ordered when diagnosing celiac disease. Unfortunately, most physicians will only order one or two. So, a negative on those one or two may or may not add up to seronegative celiac disease since had a "full celiac antibody panel" been ordered you may have thrown some positives. False negatives in the IGA antibody tests can also be caused by low total IGA count. So, a "total IGA" test should always be ordered along with the single most popular test, the tTG-IGA. Unfortunately, many physicians only order the tTG-IGA. And then there are other tests that are IGG based. A full celiac panel will include both the IGA tests and the IGG tests. Here is a primer: And here's another article on seronegative celiac disease: https://pmc.ncbi.nlm.nih.gov/articles/PMC4586545/
-
Thank you! It was never explained to me why it didn’t show up in the labs. This makes so much more sense to me now. The endoscopy test was very easy though. I was worried about my first one and have had 2 since. I don’t think I was able to eat after midnight because of anesthesia, the procedure itself took 20 minutes. I did need a driver to get me home after just where I was put under anesthesia for the procedure.
-
You are confusing two different things. You are confusing seronegative celiac disease, in which all celiac antibody tests will be negative despite a positive biopsy, with mixed positive and negative antibody tests. It is normal for someone with celiac disease to not have all antibody tests throw positives. That's why they have developed different antibody tests. What one misses, another may catch. It is the same way when diagnosing many other medical conditions. Usually, not all diagnostic tests for that condition will be positive. You have to look at the total body of evidence.
-
By Celiac comments · Posted
I had 2 blood tests at the same time. One negative, one positive. No insurance coverage for endoscopy but felt MUCH MUCH better after three days gluten-free and many hair, skin, and rash issues cleared or improved in a week. It seems there are lots of false negatives in Celiac blood tests. -
Check out Sally K. Norton’s work on oxalates. She wrote a book called Toxic Superfoods. Your symptoms are similar to some of mine. Many of us with celiac disease have oxalate toxicity because of the damage to our guts. Oxalates chelates our minerals and calcium binds to oxalates. At least check out her website, it may help a lot. Good luck.
-
