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Coping with Celiac Disease

Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.


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    • trents
      It is certainly possible that had you not been eating essentially gluten-free at the time of the blood draw, you would have tested positive for the TTG-IGA. That one seems to not have a lot of staying power once you begin to withdraw gluten. That is the value of some of these other tests. They can still throw up "celiac" flags further out from withdrawing gluten. It is very common for people to experiment with the gluten free diet before getting formally tested. They don't know any better and it seems some doctors don't know enough to tell them not to.
    • Skg414228
      Honestly it was like a solid couple of months. I started sometime in early December and the blood draw was on the 18th of Feb. Again it was almost all the time except a few days here and there with a cheat meal or even a whole day. Overall those it was a paleo diet like 98% of that time. I didn't go gluten free on purpose I was avoiding all grains and felt some aches and pains go away so I kept doing it, but then kept telling myself I needed more fiber which is why I had those cheat meals every now and then lol. 
    • trents
      How long had you been practicing a reduced gluten diet by the time you had the blood draw?
    • Skg414228
      I forgot to mention that I wasn’t prepared to take a celiac test so when I took this test I was pretty gluten free except for some cheat meals here and there. But I was about 98% gluten free at that point except I had gluten a few times a few days before this test by coincidence. So I probably skewed the numbers a bit by accident. 
    • trents
      Keep us posted and let us know the results of the biopsy. Your case is atypical in a way in that you have this high DGP-IGA but normal TTG-IGA so knowing how it turns out will give us more data for similar situations that may be posted in the future. 
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