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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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- JettaGirl replied to Jtestani's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6Help with results please. As I have a appt after the New Year.
Thank you! It was never explained to me why it didn’t show up in the labs. This makes so much more sense to me now. The endoscopy test was very easy though. I was worried about my first one and have had 2 since. I don’t think I was able to eat after midnight because of anesthesia, the procedure itself took 20 minutes. I did need a driver to get me home aft... -
- trents replied to Jtestani's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6Help with results please. As I have a appt after the New Year.
You are confusing two different things. You are confusing seronegative celiac disease, in which all celiac antibody tests will be negative despite a positive biopsy, with mixed positive and negative antibody tests. It is normal for someone with celiac disease to not have all antibody tests throw positives. That's why they have developed different antibody... -
- Celiac comments replied to Jtestani's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6Help with results please. As I have a appt after the New Year.
I had 2 blood tests at the same time. One negative, one positive. No insurance coverage for endoscopy but felt MUCH MUCH better after three days gluten-free and many hair, skin, and rash issues cleared or improved in a week. It seems there are lots of false negatives in Celiac blood tests.- 1
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- DALTE04 replied to StaciField's topic in Related Issues & Disorders13My bone structure is disintegrating and I’m having to have my teeth removed
Check out Sally K. Norton’s work on oxalates. She wrote a book called Toxic Superfoods. Your symptoms are similar to some of mine. Many of us with celiac disease have oxalate toxicity because of the damage to our guts. Oxalates chelates our minerals and calcium binds to oxalates. At least check out her website, it may help a lot. Good luck.
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0December 11, 2024 12:00 AM
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Posts
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Thank you! It was never explained to me why it didn’t show up in the labs. This makes so much more sense to me now. The endoscopy test was very easy though. I was worried about my first one and have had 2 since. I don’t think I was able to eat after midnight because of anesthesia, the procedure itself took 20 minutes. I did need a driver to get me home after just where I was put under anesthesia for the procedure.
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You are confusing two different things. You are confusing seronegative celiac disease, in which all celiac antibody tests will be negative despite a positive biopsy, with mixed positive and negative antibody tests. It is normal for someone with celiac disease to not have all antibody tests throw positives. That's why they have developed different antibody tests. What one misses, another may catch. It is the same way when diagnosing many other medical conditions. Usually, not all diagnostic tests for that condition will be positive. You have to look at the total body of evidence.
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By Celiac comments · Posted
I had 2 blood tests at the same time. One negative, one positive. No insurance coverage for endoscopy but felt MUCH MUCH better after three days gluten-free and many hair, skin, and rash issues cleared or improved in a week. It seems there are lots of false negatives in Celiac blood tests. -
Check out Sally K. Norton’s work on oxalates. She wrote a book called Toxic Superfoods. Your symptoms are similar to some of mine. Many of us with celiac disease have oxalate toxicity because of the damage to our guts. Oxalates chelates our minerals and calcium binds to oxalates. At least check out her website, it may help a lot. Good luck.
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The study you posted was done by the USDA. Not much more needs to be said about that. It only tested for one type of parasite. There are many types of parasites that are typically only found in meat. I have tried all different kinds of dairy - whole, nonfat, skim, etc. I cannot eat any dairy, no matter what kind. I have wondered about iodine. Some people claim it makes them break out more, especially with celiac. I have been toying with my diet for decades now. I am 46 years old, and have known about celiac since my early twenties. I will keep you guys posted about the Skinesa. Usually after about a week I start breaking out on probiotics. It's been 3 days so far and everything's good. I'm on Dapsone also. I appreciate all the feedback.
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