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Coping with Celiac Disease
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- Skg414228 replied to Skg414228's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms17Does High DGP IGA Typically Mean Celiac?
Well I’m going on the gluten farewell tour so they are about to find out lol. I keep saying biopsy but yeah it’s a scope and stuff. I’m a dummy but luckily my doctor is not. -
- trents replied to Skg414228's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms17Does High DGP IGA Typically Mean Celiac?
The biopsy for celiac disease is done of the small bowel lining and in conjunction with an "upper GI" scoping called an endoscopy. A colonoscopy scopes the lower end of the intestines and can't reach up high enough to get to the small bowel. The endoscopy goes through the mouth, through the stomach and into the duodenum, which is at the upper end of the intestinal... -
- Skg414228 replied to Skg414228's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms17
Does High DGP IGA Typically Mean Celiac?
Yeah I had zero thoughts on celiac it was an ibs referral. She suspected celiac when she started questioning me and I already needed a colonoscopy which I guess is why she didn’t care that I had been fairly gluten free up to that point. Because they would have just done the biopsy when doing the colonoscopy. I don’t know we will see just figured I’d put t... -
- trents replied to Skg414228's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms17
Does High DGP IGA Typically Mean Celiac?
It is certainly possible that had you not been eating essentially gluten-free at the time of the blood draw, you would have tested positive for the TTG-IGA. That one seems to not have a lot of staying power once you begin to withdraw gluten. That is the value of some of these other tests. They can still throw up "celiac" flags further out from withdrawing... -
- Skg414228 replied to Skg414228's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms17
Does High DGP IGA Typically Mean Celiac?
Honestly it was like a solid couple of months. I started sometime in early December and the blood draw was on the 18th of Feb. Again it was almost all the time except a few days here and there with a cheat meal or even a whole day. Overall those it was a paleo diet like 98% of that time. I didn't go gluten free on purpose I was avoiding all grains and felt...
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Well I’m going on the gluten farewell tour so they are about to find out lol. I keep saying biopsy but yeah it’s a scope and stuff. I’m a dummy but luckily my doctor is not.
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The biopsy for celiac disease is done of the small bowel lining and in conjunction with an "upper GI" scoping called an endoscopy. A colonoscopy scopes the lower end of the intestines and can't reach up high enough to get to the small bowel. The endoscopy goes through the mouth, through the stomach and into the duodenum, which is at the upper end of the intestinal track. So, while they are scoping the duodenum, they take biopsies of the mucosal lining of that area to send off for microscopic analysis by a lab. If the damage to the mucosa is substantial, the doc doing the scoping can often see it during the scoping.
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Yeah I had zero thoughts on celiac it was an ibs referral. She suspected celiac when she started questioning me and I already needed a colonoscopy which I guess is why she didn’t care that I had been fairly gluten free up to that point. Because they would have just done the biopsy when doing the colonoscopy. I don’t know we will see just figured I’d put that info on the forum in case someone finds it interesting later. I’ll update in April when I find out.
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It is certainly possible that had you not been eating essentially gluten-free at the time of the blood draw, you would have tested positive for the TTG-IGA. That one seems to not have a lot of staying power once you begin to withdraw gluten. That is the value of some of these other tests. They can still throw up "celiac" flags further out from withdrawing gluten. It is very common for people to experiment with the gluten free diet before getting formally tested. They don't know any better and it seems some doctors don't know enough to tell them not to.
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Honestly it was like a solid couple of months. I started sometime in early December and the blood draw was on the 18th of Feb. Again it was almost all the time except a few days here and there with a cheat meal or even a whole day. Overall those it was a paleo diet like 98% of that time. I didn't go gluten free on purpose I was avoiding all grains and felt some aches and pains go away so I kept doing it, but then kept telling myself I needed more fiber which is why I had those cheat meals every now and then lol.
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