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Coping with Celiac Disease
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Recent Activity
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- Matt13 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Biopsy results after 1,5 gfd
Hi Guys, i did repeat biopsy after marsh3b (without erosion) and results are now: normal villi without atrtophy, 25/100 iel and moderate mononuclear inflamation in lamia propria, with occesional granulocytes. Doc says the he saw little erosion on duodenum. Is this good ? I mean is this progress? Please help! -
- Scott Adams replied to Bebee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Testing for celiac
In case you decide to go the route of a gluten challenge for a celiac disease blood test or biopsy: Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
- Wheatwacked replied to Ryangf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Do I really need to get a biopsy?
Kosher salt is not usually iodized. Shortly after starting GFD in 2014, I realized I wasn't getting enough iodine. Growing up in the 50's and 60's we ate bread that used iodine as a dough modifier so each slice had about 100 mcg of iodine. A sandwich and glass of milk supplied 300 mcg a day. In the 70's they stopped using iodine as a conditioner in... -
- trents replied to Skg414228's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms21Does High DGP IGA Typically Mean Celiac?
Current "gluten challenge" recommendations are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) daily leading up to the day of the biopsy. -
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Hi Guys, i did repeat biopsy after marsh3b (without erosion) and results are now: normal villi without atrtophy, 25/100 iel and moderate mononuclear inflamation in lamia propria, with occesional granulocytes. Doc says the he saw little erosion on duodenum. Is this good ? I mean is this progress? Please help!
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By Scott Adams · Posted
In case you decide to go the route of a gluten challenge for a celiac disease blood test or biopsy: Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
By Wheatwacked · Posted
Kosher salt is not usually iodized. Shortly after starting GFD in 2014, I realized I wasn't getting enough iodine. Growing up in the 50's and 60's we ate bread that used iodine as a dough modifier so each slice had about 100 mcg of iodine. A sandwich and glass of milk supplied 300 mcg a day. In the 70's they stopped using iodine as a conditioner in the US. Then everyone got scared of milk. The US intake of iodine dropped 50% since 1974. Prescriptions of Thyroxine for hypothyroid disease doubled in the same period. I tried using iodized salt and seaweed and took an expensive thyroid supplement but it wasn't enough. In 2014 I had a sebaceous cyst (third eye blind). The previous 6 cysts on my face had all drained and healed with no problem back in the 1990,s. One on my check had sugically removed. They are genetic from my mom and my brother and son also get them in the same places. This one I did not have surgery for because I wanted a bellweather to moniter healing. It did not start healing until I started until 10 years when I started taking 600 mcg of Liquid Iodine a year ago Nov 2023. Lot's of comment about how it was offputting and maybe cancer, it was deep, down to the bone, but I can be obstenant. Now it is scabbing over and healing normally. Vision is returning to my right eye (glucoma), musle tone in my chest was the first sign of improvement. For healing, iodine breaks down defective and aging cells to make room for new growth. I take Liquid Iodine drops from Pipingrock.com but there is also Strong Iodine and Lugols Solution. 50 mcg/drop a dropper full is 12 drops, 600 mcg., usually I put it in a can of Red Bull, My brother, son and his family also started taking it. https://www.pipingrock.com/iodine/liquid-iodine-2-fl-oz-59-ml-dropper-bottle-14690 390 drops for $8. They ship internationally if you can't find it locally. It the US the Safe Tolerable Upper Limit is 1000 mcg a day. In Japan it is 3000 mcg a day. The Japanese traditional diet has 50% less breast cancer, nicer hair, skin and nails, and in the 80's the US educational system dropped down comared to the rest of the world while Japanese kids moved up to the top. Low iodine affects brain fog. According to most education rankings, Japan generally has a higher education rating than the United States, with Japan often ranking within the top 10 globally while the US usually places slightly lower. In the 1960s, the United States was near the top of the world for education, especially for young people. About why iodine was removed from medicint: The Wolff-Chaikoff Effect: Crying Wolf? About why over 40% of us are vitamin D deficient: Mayo Proceedings, Vitamin D Is Not as Toxic as Was Once Thought: -
Current "gluten challenge" recommendations are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) daily leading up to the day of the biopsy.
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Thank you for your input! I would really like to know if I have celiac disease because you need make sure you are not getting any cross contamination due to cancer concerns. I guess I need to start with a knowledgeable Gastroenterologist. Thank you again!
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