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Coping with Celiac Disease

Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.


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  • Posts

    • Scott Adams
      Actually, gluten intolerance and celiac disease are not the same. Celiac disease is an autoimmune disorder triggered by gluten, while gluten intolerance is a broader term that can include Non-Celiac Gluten Sensitivity (NCGS). NCGS involves gluten-related symptoms without the autoimmune or allergic response seen in celiac disease. The terms are often used inconsistently, which can cause confusion.
    • Scott Adams
      Given the nefarious nature of celiac disease and how it strips nutrients from your body, I believe we've seen virtually every type of abdominal pain here described as a symptom. In my case it was mostly in my lower right quadrant. While gluten intolerance or celiac disease primarily affects the digestive system, it can sometimes cause referred pain in areas like the left upper quadrant or back due to inflammation or irritation in the gut. However, left-sided pain and elevated lipase levels could also indicate other conditions, such as pancreatic issues, which should be evaluated by a healthcare professional. Gluten itself is not typically known to directly irritate the pancreas, but if you suspect a connection, it’s worth discussing with your doctor. They may recommend further testing, such as imaging or additional blood work, to rule out other causes. Others in gluten-sensitive communities have occasionally reported similar symptoms, but individual experiences can vary widely. Keeping a detailed food and symptom diary might help identify patterns.
    • Scott Adams
      I was also surprised to learn that Morton Iodized Salt contains: "Salt, Calcium Silicate (an anticaking agent), Dextrose, potassium iodide." Their non-iodized version contains only salt. https://www.mortonsalt.com/home-category/culinary-salts/
    • Jason Dyer
      Trents, It's a good question. The experts I have spoken to have told me the distillation process does remove the offensive proteins. Again, I'm not the expert on that. I'm only reporting. I don't have any issue with distilled spirits that don't have any additives. That said, maybe there is something else at play here? Good question for the forum. 
    • trents
      I'm wondering if this is the same issue some celiacs have with distilled liquors. The complete gluten molecule is too large and heavy to to travel up with the vapor but if their are gluten fragments created by the heat, they may not be and the immune systems of some celiacs still recognize it as gluten. I have no scientific proof for this, just a thought because we have so many forum contributors who still react to these "gluten removed" products.
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