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Coping with Celiac Disease

Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.


16,208 topics in this forum

  1. thleensd
    Mydietgirl
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    kareng
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    T.H.
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  20. missceliac2010
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    missceliac2010
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  22. discodiver
    missceliac2010
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    Tidings
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  • Recent Activity

    1. - Erain replied to 20021979's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Orgain Protein Powder

    2. - Erain replied to 20021979's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Orgain Protein Powder

    3. - trents replied to kim-d's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Postponing seeking a diagnosis?

    4. - kim-d posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Postponing seeking a diagnosis?

    5. - Scott Adams replied to 20021979's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Orgain Protein Powder


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  • Posts

    • Erain
      Here’s the answer from the company 😊   Hi Emily,    Thank you for reaching out to us! We can confirm the Organic Protein + 50 Superfoods Powder is gluten free. The organic barley and wheatgrasses we use are harvested prior to jointing, before the grain forms and any gluten protein is present. Rest assured appropriate measures are taken to ensure our gluten free products comply with the FDA final rule to be labeled as gluten free, as claimed on the side-panel label. Our suppliers are required to verify each ingredient and in order to ensure that our gluten free products comply with the FDA requirements, our manufacturing facilities use the ELISA test method to confirm gluten levels...
    • Erain
      That’s great to know. Thanks Scott
    • trents
      Welcome to the forum, @kim-d! Recently revised guidelines or the "gluten challenge" recommends the daily consumption of at least 10g of gluten for at least two weeks up until the day of the antibody test blood draw. 10g of gluten is the amount found in about 4-6 slices of wheat bread. IMO, I would wait until you have time to do it right so as to remove all doubt as to whether or not your gluten consumption was adequate for long enough to ensure valid testing. In the meantime, focus on removing gluten from your diet and see how your symptoms improve (or not) as one piece of the diagnostic puzzle.
    • kim-d
      Hello. I'm a 22 year old college student and I've had constant stomach problems since I was 14. Recently I noticed that my problems get worse when I eat more wheat. I tried to follow a gluten free diet, which didn't end up entirely gluten free, but I still had reduced my gluten consumption very much, and I felt a lot better. I also have fatigue, inability to gain any weight, iron deficiency, possible vitamin deficiencies, really bad memory and brain fog that increases by time, unexplainable muscle aches and tachycardia which all can possibly explained by celiac/NCGS.  I wasn't able to continue a completely gluten free diet as I am eating from my school and dorm's cafeteria and almost...
    • Scott Adams
      I've not tried the product, but it is definitely possible that it contains barley and wheat grass, and is gluten-free. I would imagine that they are regularly testing their product for gluten content, since they are making the claim that their product is gluten-free. I personally avoid these ingredients, but some celiacs do consume them without issues. PS - my daughter uses this product regularly, and she is very sensitive and has DH as well. She does not have issues with it.
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