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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- trents replied to Brown42186's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms10Help Understanding Test Results
Yes, the TTG-IGG was positive but not the TTG-IGA. -
- Scott Adams replied to Joyes's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3Test results
For someone with celiac disease who might have extreme villi damage the term "cross-reactivity" gets thrown around a lot. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an... -
- Scott Adams replied to Brown42186's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms10
Help Understanding Test Results
This test was positive according to the original post, so the next normal step would be a biopsy: TTG IGG - 9 U/mL (0-5 range) @Brown42186 Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
- trents replied to Connie Smitj's topic in Coping with Celiac Disease5
Hunger, nervous stomach or Hpylori?
Connie, spinach is high in oxalates. Many celiacs do not tolerate oxalates well. If you are still battling dermatitis herpetiformis, you may want to look into a low iodine diet as well as reviewing possible sources of gluten cross contamination.- 1
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- Scott Adams replied to Connie Smitj's topic in Coping with Celiac Disease5
Hunger, nervous stomach or Hpylori?
Do you eat outside your home, especially in restaurants, as this can be a source of cross-contamination. If you need to take dapsone still your diet may not be 100% gluten-free. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
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Yes, the TTG-IGG was positive but not the TTG-IGA.
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By Scott Adams · Posted
For someone with celiac disease who might have extreme villi damage the term "cross-reactivity" gets thrown around a lot. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. -
By Scott Adams · Posted
This test was positive according to the original post, so the next normal step would be a biopsy: TTG IGG - 9 U/mL (0-5 range) @Brown42186 Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
Connie, spinach is high in oxalates. Many celiacs do not tolerate oxalates well. If you are still battling dermatitis herpetiformis, you may want to look into a low iodine diet as well as reviewing possible sources of gluten cross contamination.
-
By Scott Adams · Posted
Do you eat outside your home, especially in restaurants, as this can be a source of cross-contamination. If you need to take dapsone still your diet may not be 100% gluten-free. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
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