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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- Connie Smitj replied to Connie Smitj's topic in Coping with Celiac Disease3Hunger, nervous stomach or Hpylori?
I was diagnosed 5 years ago. I also have celiac rash which is no longer an issue thanks to maintenance dose of dapsone. I ate spinach with lemon juice and had terrible pain after. My mother whom I suspect had undiagnosed celiac disease developed a duodenal ulcer that turned into a sarcoma late in life . My celiac clinic suggests seeing my family doctor... -
- trents replied to Tyoung's topic in Related Issues & Disorders1High Folate Levels
Welcome to the forum, @Tyoung! Apparently, folic acid in supplements is readily absorbed into the bloodstream as opposed to getting folate from natural food sources. So, high levels in the blood can happen quickly from supplementation: Your body doesn’t absorb folate as easily as it absorbs folic acid. It’s estimated that about 85% of folic aci... -
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- Tyoung posted a topic in Related Issues & Disorders1High Folate Levels
I was diagnosed in November with celiacs and at the time had been tested for multiple vitamin deficiencies. During that time my folate level was 4ng/mL, Although I was told to take supplements, I ended up only taking them for a week or so as they made my stomach upset. I had my blood work redone yesterday and as the results came in I noticed that most of... -
- JohannesW85 replied to JohannesW85's topic in Related Issues & Disorders4Do I have celiac/Gluten sensitivity?
Did you take a look at my pics that I uploaded? These rashes is not itchy, but I have seen that people have this too that have celiac and it’s not itchy for them either. I have also heard that sulfur burps are a common things with celiac too. Yes it can be something else too but it’s to much symptoms that I have that match with either gluten sen...
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By Connie Smitj · Posted
I was diagnosed 5 years ago. I also have celiac rash which is no longer an issue thanks to maintenance dose of dapsone. I ate spinach with lemon juice and had terrible pain after. My mother whom I suspect had undiagnosed celiac disease developed a duodenal ulcer that turned into a sarcoma late in life . My celiac clinic suggests seeing my family doctor. -
Welcome to the forum, @Tyoung! Apparently, folic acid in supplements is readily absorbed into the bloodstream as opposed to getting folate from natural food sources. So, high levels in the blood can happen quickly from supplementation: Your body doesn’t absorb folate as easily as it absorbs folic acid. It’s estimated that about 85% of folic acid from fortified foods or supplements is absorbed, while only 50% of natural folate from foods is used by your body. After folic acid is absorbed into your bloodstream, it’s broken down into smaller compounds by your liver. However, the liver is only able to process a certain amount of folic acid at a time. As a result, consuming too much folic acid from fortified foods and supplements can cause unmetabolized folic acid (UMFA) to accumulate in your blood. This doesn’t happen when you eat high folate foods. From: https://www.healthline.com/nutrition/folic-acid-side-effects#How-excess-folic-acid-develops I would think your folate levels will normalize over time. But I'm curious. Were you tested for vitamin/mineral deficiencies before being given supplements or was it just assumed you would have them after finding out you have celiac disease? Your acid reflux issues could certainly be a holdover from the week of supplementation now discontinued. Another possibility is "gluten withdrawal" which some experience in the first few weeks after going gluten free. Gluten has addictive qualities similar to opiates. Another possibility is certain polysaccharides commonly found in gluten free prepackaged facsimile foods. They use these polysaccharides (e.g., xanthan gum) as texturing agents to approximate what gluten does in wheat products and they are hard to digest. Let me caution you against long term proton pump inhibitor (PPI) therapy for the acid reflux. That simply raises gut PH (lowers acidity) which interferes with the absorption of vitamins and minerals from our diets. Way too often, docs will prescribe PPIs as a band aid for reflux and leave their patients on them forever. It's much better to use over the counter calcium-based remedies like TUMS to give you coverage as needed rather than treat reflux systemically with acid blockers.
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I was diagnosed in November with celiacs and at the time had been tested for multiple vitamin deficiencies. During that time my folate level was 4ng/mL, Although I was told to take supplements, I ended up only taking them for a week or so as they made my stomach upset. I had my blood work redone yesterday and as the results came in I noticed that most of my levels are now normal, but folate level is >24ng/mL. Has anyone else had similar results? If so were you able to figure out why or how to normalize them? I also have been having constant acid reflux since about two weeks into going gluten free (no acid reflux history prior to) that we are trying to get to the bottom of with no answers. Could that be related? Thank you!! Also wanted to not that I am not eating any gluten free processed food.
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By JohannesW85 · Posted
Did you take a look at my pics that I uploaded? These rashes is not itchy, but I have seen that people have this too that have celiac and it’s not itchy for them either. I have also heard that sulfur burps are a common things with celiac too. Yes it can be something else too but it’s to much symptoms that I have that match with either gluten sensitivity or celiac. Hopefully it’s just gluten intolerance and not celiac. As I said before I have the gen type for celiac and diabetes typ 1 and the those diseases going hand in hand. Thanks again Trent for your time to reply, and I wonder if any body else have kind of the same symptoms that I have? -
By captaincrab55 · Posted
Welcome Connie Smitj, Did you have a follow up test to see if the treatment for H Pylori was successful? It's possible to catch it again, especially from a partner. When I contracted it a second time my wife was tested and was positive for two of the bacteria in H Pylori.
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