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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- knitty kitty commented on Jefferson Adams's article in Gluten-Free Foods & Beverages13Top Brands of Gluten-Free Mayonnaise
@Kate Murray, What did the doctors prescribe for your daughter's elevated tryptase? Antihistamines? Steroids? Is your daughter following a low histamine diet like the Autoimmune Protocol diet (Dr. Sarah Ballantyne)? Does she still eat processed foods? Dairy?- brands
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- knitty kitty commented on Jefferson Adams's article in Gluten-Free Foods & Beverages13
Top Brands of Gluten-Free Mayonnaise
@Kate Murray, Has your daughter been checked for nutritional deficiencies? Low Vitamin D and low Thiamine can contribute to MCAS. Vitamin D levels should be between 70 and100 ng/mL . Is she following a low histamine diet? https://pmc.ncbi.nlm.nih.gov/articles/PMC10672129/ P.S. Can you share with us the "hidden gluten" sources...- brands
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- Kate Murray commented on Jefferson Adams's article in Gluten-Free Foods & Beverages13Top Brands of Gluten-Free Mayonnaise
@knitty kittythank you, and yes, tryptase levels were measured as part of her reaction to look at or rule out MCAS. In fact, many, many additional blood tests and other tests were run for a variety of autoimmune reactions. After keeping a highly detailed food and symptom log for several months, the “hidden” gluten exposure was still found to be the ultimate cul...- brands
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- knitty kitty commented on Jefferson Adams's article in Gluten-Free Foods & Beverages13
Top Brands of Gluten-Free Mayonnaise
Mayonnaise is high in Histamine. Histamine Intolerance (HIT) frequently occurs in Celiac Disease. Histamine release is part of the immune response in Celiac Disease or any infection. Histamine Intolerance has symptoms similar to being glutened. Histamine Intolerance occurs when our bodies become overwhelmed by histamine. Our body makes histamine...- brands
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- trents commented on Jefferson Adams's article in Gluten-Free Foods & Beverages13Top Brands of Gluten-Free Mayonnaise
But the onus is not on Jefferson Adams. What he reported in his article was true and accurate according to FDA regulations. What happened to your son daughter has happened to others regardless of how the food product was labeled, whether making no specific claim of being gluten free or whether it was labeled "Gluten Free" or even "Certified Gluten Free"....- brands
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Posts
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Welcome to the forum, @marinke! "Type 1a diabetes (DM1) is associated with an increased risk of celiac disease (celiac disease) (1)." from: https://diabetesjournals.org/care/article/35/10/2083/38503/IgA-Anti-transglutaminase-Autoantibodies-at-Type-1 "The prevalence of celiac disease (celiac disease) in children with type 1 diabetes (T1D) is 5.1%, and it is often asymptomatic (1)." from: https://diabetesjournals.org/care/article/48/2/e13/157637/Diagnostic-Outcomes-of-Elevated-Transglutaminase So, this is 5x the rate found in the general population.
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Hi James47, You are less than 2 years into your recovery from Celiacs. Tell us more about the problems you are having. Do you just want to get rid of belly fat or are you still having symptoms like gas and bloating. For symptoms you may need to change your diet and take various supplements that you cannot adsorb from the foods you eat because of the damage caused by the autoimmune reaction in your small intestine.
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My daughter (4 years old) has type 1 diabetes since she was 1. Therefore, every year a screening is done. We live in the Netherlands. Every year the screening was fine. This year here ttg is positive, 14, >7 is positive. IGA was in range. Could the diabetes cause this positive result? Or the fact that she was sick the weeks before the brood test?
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@DayaInTheSun what were the shortness of breath symptoms for you ? And did they come on all of a sudden or was it a gradual increase in said symptoms?
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By DayaInTheSun · Posted
I had shortness of breath so much so I went to a lung doctor. I told him I get short of breath wirh certain foods, he said “Food doesn’t affect hour breathing.” I told him maybe it was an allergy he cut me off then said “Food allergies don’t cause shortness of breathe.” I beg to differ as soon as I figured out what foods were causing my shortness of breath it went away. I also never saw him again as he was rude, condescending? And refuse to listen to me kept dismissing my problems as “you’re young.” I cut out Soy, dairy, sesame, eggs, and of course gluten. I stopped being short of breath, going on a two years now. No thanks to the doctor I saw. Figured it out on my own.
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