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Coping with Celiac Disease

Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.


16,213 topics in this forum

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    VegasCeliacBuckeye
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  • Recent Activity

    1. - Levi replied to Bindi's topic in Super Sensitive People
      39

      Refractory or super sensitive?

    2. - Scott Adams replied to Paula Andrews's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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      Can celiac cause widespread pain??

    3. - Paula Andrews posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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      Can celiac cause widespread pain??

    4. - Scott Adams replied to Brown42186's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Help Understanding Test Results

    5. - Levi replied to Voltage's topic in Super Sensitive People
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      Everyday life


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  • Posts

    • Levi
      I have taken D2 50K oral capsules once weekly for 7 years consecutively due to a dangerously low deficiency level of 17. It took 3 whole years before I reached D level 34, followed by higher D levels up to low 70s. Two or three times throughout the following 4 yrs my labs would show slight high TSH (hypothyroidism). Is it possible that the last 4 of the 7 consecutive years of D2 50K which gradually increased my D levels to 60s & 70s is causing current labs of high TSH, even though for at least the last 4 months I have reduced my D2 50K intake to half dosage, every other week vs. weekly? 
    • Scott Adams
      Untreated celiac disease is associated with arthritis and other autoimmune diseases which can cause such pain. These categories have research articles on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/fibromyalgia-and-celiac-disease/ https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/arthritis-and-celiac-disease/
    • Paula Andrews
      Hi! Did anyone experience severe body aches prior to being diagnosed?  Last year I suddenly experienced widespread pain, completely unexplained. After numerous tests with normal results I was diagnosed with fibromyalgia in August and started taking Cymbalta, which helped about 80%. Now other than pain, I did not have any additional fibromyalgia symptoms.    In the following months I started experiencing diarrhea, to the point where it was constant. In January I was diagnosed with celiac disease and microscopic colitis after having an endoscopy/colonoscopy. I've been gluten-free since that day and recently my pain level has dropped to ZERO.  I'm starting to wonder if I even have fibromyalgia, or if all of my symptoms were celiac and colitis.  I've seen several doctors and no one suggested this, but from what I'm reading it sounds possible.  The fact that I was diagnosed with two different diseases within a few months also seems odd. Has anyone else experienced all-over body aches with celiac?  And if so did the pain end after eliminating gluten?  Unfortunately I don't know anyone who has either celiac or fibromyalgia to talk to.
    • Scott Adams
      Understood, and with any positive blood test the usual next step is a biopsy to confirm celiac disease, and this would be true even if the tTg-IgA is negative.
    • Levi
      ADA, if that applies to you, has specific procedures, guidelines, rules, and regulations for employers to accommodate employees with disabilities. Check with your company HR Dpt. As Scott has mentioned this would be a quick fix, with the protection afforded employees with disabilities through ADA there is no need for you to job hunt. Hope this helps.    Ps. Coeliac Disease is now a listed Disability in the U.S.  
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