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Recent Activity
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- trents replied to englishbunny's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Negative biopsy and seeking doctor recs in Los Angeles
If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid. -
- englishbunny replied to englishbunny's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Negative biopsy and seeking doctor recs in Los Angeles
it did include Total Immunoglobin A which was 135, and said to be in normal range. when i did the blood test in January I would say I was on a "light' gluten diet, but def not gluten free. I didn't have any clue about the celiac thing then. Since then I have been eating a tonne of gluten for the purpose of the endoscopy....so I'm debating just getting... -
- trents replied to englishbunny's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Negative biopsy and seeking doctor recs in Los Angeles
Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?- 1
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- englishbunny posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Negative biopsy and seeking doctor recs in Los Angeles
I'm upset & confused and really need help finding a new gastro who specializes in celiac in California. Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which... -
- ShariW commented on Scott Adams's article in Additional Concerns9Is McDonald's Gluten-Free? A Complete Guide to Safe Menu Options (+Video)
I got glutened at a McDonald's last summer (in the US), although I didn't eat any gluten-containing items. I had a cheeseburger minus bun with lettuce, tomato and onion, along with a strawberry-banana smoothie. Symptoms set in about 3 hours later (typical for me). Pretty sure it was due to cross-contact - I have no other food sensitivities. I did say "gluten...- burgers
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If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
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By englishbunny · Posted
it did include Total Immunoglobin A which was 135, and said to be in normal range. when i did the blood test in January I would say I was on a "light' gluten diet, but def not gluten free. I didn't have any clue about the celiac thing then. Since then I have been eating a tonne of gluten for the purpose of the endoscopy....so I'm debating just getting my blood test redone right away to see if it has changed so I'm not waiting another month... -
Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
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By englishbunny · Posted
I'm upset & confused and really need help finding a new gastro who specializes in celiac in California. Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies... -
Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
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