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Coping with Celiac Disease
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Recent Activity
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- RMJ replied to TexasCeliacNewbie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2High blood test numbers - with scales. Any advice?
I’d say celiac is likely. Please continue to eat plenty of gluten until your endoscopy to be sure that any gluten-related damage can be seen. Plus it gives you one last chance to enjoy your favorite gluten-containing foods. I hope the endoscopy/biopsies give you a definitive answer. -
- TexasCeliacNewbie replied to TexasCeliacNewbie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2High blood test numbers - with scales. Any advice?
I do also have the bloating, gas, constipation, hair loss, an auto-splenectomy that no one can see any reason for and some elevated liver enzymes that don't seem to have a cause, I also have joint pain and some spinal compression fractures that have no explanation. I am only 42 so haven't had a bone density test yet. My calcium was normal, but my D was... -
- TexasCeliacNewbie posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
High blood test numbers - with scales. Any advice?
Hi, I have been having a lot of back pain and gut issues for 8 weeks or so. I saw the GI on Monday and my results just came in from the lab. Some of these number are high and off the little chart from the lab. I am reading this correctly that I most likely have Celiac, right??? It would explain a lot of things for me. She does have me scheduled for a... -
- trents replied to growlinhard1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Colonoscopy with large area of inflammation
Usually, the blood testing is done first and the endoscopy/biopsy follows for confirmation if there are positive antibody test scores. Historically, the endoscopy with biopsy has been considered to be the gold standard for diagnosing celiac disease. If the tTG-IGA scores are very high (5x-10x normal), some doctors will forego the endoscpoy/biopsy and grant...- 1
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- AuntieAutoimmune replied to AuntieAutoimmune's topic in Traveling with Celiac Disease2Royal Caribbean Only, Please
Thanks,Scott. Yes, I had already seen those- 1
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I’d say celiac is likely. Please continue to eat plenty of gluten until your endoscopy to be sure that any gluten-related damage can be seen. Plus it gives you one last chance to enjoy your favorite gluten-containing foods. I hope the endoscopy/biopsies give you a definitive answer.
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By TexasCeliacNewbie · Posted
I do also have the bloating, gas, constipation, hair loss, an auto-splenectomy that no one can see any reason for and some elevated liver enzymes that don't seem to have a cause, I also have joint pain and some spinal compression fractures that have no explanation. I am only 42 so haven't had a bone density test yet. My calcium was normal, but my D was a little low. They haven't checked for any other vitamin deficiencies yet. My blood test for an autoimmue disorder was quite high but my Thyroid was all normal. -
By TexasCeliacNewbie · Posted
Hi, I have been having a lot of back pain and gut issues for 8 weeks or so. I saw the GI on Monday and my results just came in from the lab. Some of these number are high and off the little chart from the lab. I am reading this correctly that I most likely have Celiac, right??? It would explain a lot of things for me. She does have me scheduled for a colonoscopy and endoscopy in 2 weeks to do the biopsy. I posted this prior, but forgot to put the range assuming they were all the same. Someone advised me to repost with the ranges for some insight in the meantime. Immunoglobulin A, Qn, Serum 140 (normal) - Normal is 87-352 Deamidated Gliadin Abs, IgA 256 (High) - Moderate to strong positive at or above 30 Deamidated Gliadin Abs, IgG 65 (High) - Moderate to strong positive at or above 30 t-Transglutaminase (tTG) IgA 31 (High) - Moderate to strong positive above 10 t-Transglutaminase (tTG) IgG 10 (High) - Positive is at or above 10 -
Usually, the blood testing is done first and the endoscopy/biopsy follows for confirmation if there are positive antibody test scores. Historically, the endoscopy with biopsy has been considered to be the gold standard for diagnosing celiac disease. If the tTG-IGA scores are very high (5x-10x normal), some doctors will forego the endoscpoy/biopsy and grant a celiac disease diagnosis without it. So, if you are starting with the endoscopy/biopsy that may be all you need to arrive at a diagnosis. Another possibility would be for the GI doc to do a blood draw for antibody testing on the same day you come in for the endoscopy/biopsy.
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By AuntieAutoimmune · Posted
Thanks,Scott. Yes, I had already seen those
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