Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coping with Celiac Disease

Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.


16,212 topics in this forum

  1. melly
    plantime
    • 1 reply
    • 1.5k views
  2. NikkiLynn
    elye
    • 7 replies
    • 2.2k views
  3. frenchiemama
    amybeth
    • 6 replies
    • 2.8k views

  4. Celiac.com Sponsor (A8):
    Celiac.com Sponsor (A8):



    Celiac.com Sponsor (A8-M):



  5. lemonade
    Guest
    • 5 replies
    • 1.7k views
  6. VydorScope
    tigy
    • 15 replies
    • 2.3k views
  7. Ashley
    SurreyGirl
    • 5 replies
    • 7.3k views
  8. spyderbabe
    GC1
    • 10 replies
    • 8.3k views
  9. Jenn2005
    aikiducky
    • 8 replies
    • 2.7k views
  10. wilbragirl
    StrongerToday
    • 2 replies
    • 1.6k views

  11. Celiac.com Sponsor (A10):
    Celiac.com Sponsor (A10):

  12. chrissy
    celiac3270
    • 9 replies
    • 1.6k views
  13. debmidge
    • 8 replies
    • 1.5k views
  14. covsooze
    • 14 replies
    • 4.2k views
  15. frenchiemama
    Lollie
    • 32 replies
    • 4.4k views
  16. pinky
    Guest
    • 10 replies
    • 3.4k views
  17. StrongerToday
    Rusla
    • 6 replies
    • 2.5k views
  18. Bena2376
    sspitzer5
    • 5 replies
    • 2.4k views
  19. fujiwabbit
    CMCM
    • 9 replies
    • 1.7k views
  20. slpinsd
    Guest
    • 7 replies
    • 1.5k views
  21. Mo92109
    • 5 replies
    • 4k views
  22. lemonade
    PghBOB
    • 6 replies
    • 1.8k views
  23. happy4dolphins
    Guest
    • 6 replies
    • 1.5k views
  24. lemonade
    dlp252
    • 1 reply
    • 1.4k views
  25. 4tomorrow
    jerseyangel
    • 1 reply
    • 1.1k views
  26. gabby
    Guest
    • 3 replies
    • 1.5k views
  27. gointribal
    Lollie
    • 8 replies
    • 2.4k views

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,523
    • Most Online (within 30 mins)
      7,748

    Annikamarie
    Newest Member
    Annikamarie
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      By far, the most likely cause of villous atrophy in the Marsh 3 range is celiac disease but there are other possible causes. Did you also have positive antibody tests? My guess is that when you see your physician he/she will declare you to have celiac disease. Of course, the ultimate proof of the pudding will be if you experience definite improvement in symptoms after going gluten free which, since you have now completed testing, you should begin to do.  
    • Lynnard
      Hi again - I received the biopsy results but haven't had follow up appointment with Dr. yet.  Wondering if you could comment on this: "Duodenum, random, Biopsy (Cold Forceps): MILD VILLOUS BLUNTING WITH PROMINENT INTRAEPITHELIAL LYMPHOCYTES, CONSISTENT WITH SPRUE (MARSH TYPE 3A). See Comment. Negative for Infectious Organisms, Dysplasia or Malignancy. COMMENT: While characteristic, the histologic findings are not diagnostic for gluten-sensitive enteropathy / celiac disease. A number of additional entities can enter into the differential diagnosis of celiac disease based on the histologic features, including tropical sprue, bacterial overgrowth / stasis, unclassified sprue, specific food allergies, many drugs including NSAIDs, olmesartan and immune checkpoint inhibitors, and a wide range of autoimmune diseases including adult-onset autoimmune enteropathy, diabetes, thyroiditis, lupus and multiple sclerosis and occasionally common variable immune deficiency. History of drug take, celiac serologies, HLA-DQ status and response to a gluten-free diet might be a key for a definitive diagnosis" They say "consistent with Sprue (Marsh Type 3A)" and then comment that the findings are not diagnostic for celiac disease.  I thought Marsh type 3 was conclusive (and I know that 3A is the best outcome as it relates to intestinal damage). Is this just normal caveat language or am I missing something?  I had appt scheduled for tomorrow but Dr. is sick and now rescheduled to over a week from now.  Appreciate any insight you can offer in the mean time.  Thanks!!
    • Sicilygirl
      Hello Scott, I did lose weight at the beginning of diagnosis and I know that it will take time to put on the weight I did lose. I think I have no appetite because this has been a roller coaster of emotions and a Big change on my body and its out of whack mentally and pysically. I think I am just depressed to be honest.  
    • trents
      It's easy to forget that it's not only the concentration of gluten in a given food item that's significant but also the total amount of gluten we consume over a period of time. This thing and that thing may meet the gluten-free requirement of not exceeding 20 ppm but if we eat enough of those things in a reasonably short amount of time it can have a cumulative effect because our bodies aren't given enough time to clear the gluten we have already consumed. Just curious. Did you know the fries were wheat breaded when you ate them?
    • SamClaire
      Hi! I try to steer clear of dairy and I cut out oats at the same time I did gluten products. It may be that something I had recently that was labeled as gluten-free contained oats. I am just so confused as to why I didn’t react when I know I ate wheat flour (breaded fries) but then reacted to something else 9 days later. Maybe you’re right and that it was the accumulation of things. 
×
×
  • Create New...