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Coping with Celiac Disease
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Recent Activity
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- trents replied to lsky's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Question on if i can contact my gastro doctor whenever?
Welcome to the forum, @lsky! In Canada I believe your healthcare system is totally socialized so I doubt if you have the option of making direct appointments with specialists. In the U.S. it is becoming more and more that way as most people here now are covered by some government managed healthcare network and almost all providers and specialists are... -
- lsky posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Question on if i can contact my gastro doctor whenever?
I have had celiac disease since i was 7 and i've recently had worsening symptoms, I live in canada and the doctors right now are horrible so my general doctor never puts in my referrals or she does it wrong and i have to wait months-years for an answer. I was wondering I already have a Gastroenterologist, could i just contact him and ask to book an upcoming... -
- trents replied to Juliana82's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Symptoms after ingesting gluten
Welcome to the forum @Juliana82! Bleeding where? Thanks for the articles on seronegative celiac disease. As I recall, one of our moderators is seronegative and has been faithful to draw our attention to this phenomenon at different times. The heterozygous factor seronegative celiac disease is an important factoid I believe. -
- Wrensmith replied to CatLady15's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Toddler Diagnosis?
With such a weak positive, his got may or may not be cleared in three months. My daughter when diagnosed at the age of seven had a TTG score of 388. It was 18 months on a gluten-free diet before her levels returned to normal. it seems to me that when you started something that allows your son to gain weight, as he clearly needs to do, you may want to... -
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0December 11, 2024 12:00 AM
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Posts
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Welcome to the forum, @lsky! In Canada I believe your healthcare system is totally socialized so I doubt if you have the option of making direct appointments with specialists. In the U.S. it is becoming more and more that way as most people here now are covered by some government managed healthcare network and almost all providers and specialists are part of those networks. Here and there you will find independent providers that take private pay only but it is the exception. Both in Canada and in the U.S. I believe there is a concerted effort to always keep the PCP in the loop.
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I have had celiac disease since i was 7 and i've recently had worsening symptoms, I live in canada and the doctors right now are horrible so my general doctor never puts in my referrals or she does it wrong and i have to wait months-years for an answer. I was wondering I already have a Gastroenterologist, could i just contact him and ask to book an upcoming appointment? i'm not sure if it's different in canada or not.
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Welcome to the forum @Juliana82! Bleeding where? Thanks for the articles on seronegative celiac disease. As I recall, one of our moderators is seronegative and has been faithful to draw our attention to this phenomenon at different times. The heterozygous factor seronegative celiac disease is an important factoid I believe.
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With such a weak positive, his got may or may not be cleared in three months. My daughter when diagnosed at the age of seven had a TTG score of 388. It was 18 months on a gluten-free diet before her levels returned to normal. it seems to me that when you started something that allows your son to gain weight, as he clearly needs to do, you may want to keep doing it. Sometimes you just need to figure out the science of it as you go along. Have you been tested? That’s how I found out I had celiac disease, was after my daughter was diagnosed, and the recommendation given to me was that all of her first-degree relations should be tested as well. I came back with a weak positive when I was on a largely, though not entirely, gluten-free diet (cooking for my newly diagnosed child). good luck with everything.
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Does anyone have bleeding after eating gluten? You can still have celiac disease with negative blood test results, although it's not very common: Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/ Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/ Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/
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