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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- lsky posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Question on if i can contact my gastro doctor whenever?
I have had celiac disease since i was 7 and i've recently had worsening symptoms, I live in canada and the doctors right now are horrible so my general doctor never puts in my referrals or she does it wrong and i have to wait months-years for an answer. I was wondering I already have a Gastroenterologist, could i just contact him and ask to book an upcoming... -
- trents replied to Juliana82's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Symptoms after ingesting gluten
Welcome to the forum @Juliana82! Bleeding where? Thanks for the articles on seronegative celiac disease. As I recall, one of our moderators is seronegative and has been faithful to draw our attention to this phenomenon at different times. The heterozygous factor seronegative celiac disease is an important factoid I believe. -
- Wrensmith replied to CatLady15's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Toddler Diagnosis?
With such a weak positive, his got may or may not be cleared in three months. My daughter when diagnosed at the age of seven had a TTG score of 388. It was 18 months on a gluten-free diet before her levels returned to normal. it seems to me that when you started something that allows your son to gain weight, as he clearly needs to do, you may want to... -
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- Juliana82 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Symptoms after ingesting gluten
Does anyone have bleeding after eating gluten? You can still have celiac disease with negative blood test results, although it's not very common: Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/ Seronegative...
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0December 11, 2024 12:00 AM
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Posts
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I have had celiac disease since i was 7 and i've recently had worsening symptoms, I live in canada and the doctors right now are horrible so my general doctor never puts in my referrals or she does it wrong and i have to wait months-years for an answer. I was wondering I already have a Gastroenterologist, could i just contact him and ask to book an upcoming appointment? i'm not sure if it's different in canada or not.
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Welcome to the forum @Juliana82! Bleeding where? Thanks for the articles on seronegative celiac disease. As I recall, one of our moderators is seronegative and has been faithful to draw our attention to this phenomenon at different times. The heterozygous factor seronegative celiac disease is an important factoid I believe.
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With such a weak positive, his got may or may not be cleared in three months. My daughter when diagnosed at the age of seven had a TTG score of 388. It was 18 months on a gluten-free diet before her levels returned to normal. it seems to me that when you started something that allows your son to gain weight, as he clearly needs to do, you may want to keep doing it. Sometimes you just need to figure out the science of it as you go along. Have you been tested? That’s how I found out I had celiac disease, was after my daughter was diagnosed, and the recommendation given to me was that all of her first-degree relations should be tested as well. I came back with a weak positive when I was on a largely, though not entirely, gluten-free diet (cooking for my newly diagnosed child). good luck with everything.
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Does anyone have bleeding after eating gluten? You can still have celiac disease with negative blood test results, although it's not very common: Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/ Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/ Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/
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By Wheatwacked · Posted
vitamin D levels in obsessive-compulsive disorder "The number of participants with vitamin D insufficient ... and vitamin D deficiency ... in the OCD group was statistically significantly higher than the control group... and also the number of participants whose vitamin D levels were in the normal range ... in the OCD group was statistically significantly lower than the control group." Low vitamin D iscommon in Celiac Disease patients. Also no lithium in drinking water (bottled water) or in areas with low ground water Lithium contributes to anxiety. Association between naturally occurring lithium in drinking water and suicide rates The EPA calculated a provisional oral reference dose (p-RfD) of 2 μg/kg-day using the Provisional Peer-Reviewed Toxicity Value https://www.epa.gov/system/files/documents/2023-11/ucmr5-technical-fact-sheet-lithium-in-drinking-water.pdf Should we all take a bit of lithium?! Raising my vitamin D to 80 ng/ml and taking 5 mg a day of Lithium Orotate for a few month helped me.
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