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Coping with Celiac Disease
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- Lucille Cholerton commented on Scott Adams's article in Refractory Celiac Disease & Collagenous Sprue5A New Study Focuses on Understanding Non-Responsive Celiac Disease
Thank you so much Scott for these enlightening replies.- celiac disease
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- badastronaut posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0Still unsure.....
Dear forum members, I’m still trying to find out whether or not I actually have gluten sensitivity or not. Recent blood test showed a slightly elevated Bilirubine and Lipase but an abdominal ultrasound showed no problems with the liver or pancreas. My zinc and folic acid where both too low. When I eat gluten I get a lot of mucus with my stool and most o... -
- knitty kitty replied to robingfellow's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Can gallbladder issues cause symptoms of celiac disease?
Welcome to the forum, @robingfellow and @Mr-Collateral531, I also had to have my gallbladder removed in emergency surgery. The gallbladder uses lots of thiamine vitamin b1 to function. The gallbladder cannot secrete bile if it doesn't have sufficient thiamine. Thiamine provides our muscles and glands energy to move and secrete needed enzymes... -
- Matt13 replied to Matt13's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease5Certified gluten free oats
Thanks for the reply ! I am asking because tomorow i have egd and nobody told me not to eat gluten-free oats… and i was scared that it could ruin my biopsy results…
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By badastronaut · Posted
Dear forum members, I’m still trying to find out whether or not I actually have gluten sensitivity or not. Recent blood test showed a slightly elevated Bilirubine and Lipase but an abdominal ultrasound showed no problems with the liver or pancreas. My zinc and folic acid where both too low. When I eat gluten I get a lot of mucus with my stool and most of the times it’s quite thin. As soon as I take gluten away from my diet my stool becomes normal. I also have been quite anxious and little bit down for quite some time now and it seems to correlate with my gluten intake. The problem is that my colonoscopy showed no damage to my gut and my blood test for celiac always come back negative. Can you be gluten sensitive without damage to your villi? (I believe that’s what is normally seen in celiac disease). Thanks for helping! I don’t seem to get anywhere with my doctor so I thought I’d give this forum another try. -
By knitty kitty · Posted
Welcome to the forum, @robingfellow and @Mr-Collateral531, I also had to have my gallbladder removed in emergency surgery. The gallbladder uses lots of thiamine vitamin b1 to function. The gallbladder cannot secrete bile if it doesn't have sufficient thiamine. Thiamine provides our muscles and glands energy to move and secrete needed enzymes and hormones. The thyroid is another gland that requires lots if thiamine to function and secrete hormones. Our brains, just thinking at a desk job, requires as much thiamine as our muscles do if running a marathon. Migraines are linked to thiamine deficiency. Thiamine is the first of the eight B vitamins that our body needs. Thiamine can only be stored for three weeks at most. Our thiamine stores can be depleted in as little as three days. We need more thiamine when we have a physical injury (like recovering from surgery or fighting the flu), if we're emotionally stressed or traumatized, and if we're physically active. Thiamine, like the other B vitamins, is water soluble and easily excreted in urine or most in diarrhea. B vitamins are commonly poorly absorbed in Celiac Disease. Thiamine and the other B vitamins need to be taken together because they interact with each other to make life sustaining enzymes. Thiamine deficiency can affect individual organs. Gallbladder dysfunction is connected to thiamine deficiency, as is hypothyroidism. Migraines are connected to thiamine deficiency. Gastrointestinal Beriberi (abdominal pain, vomiting, etc.) is a result of thiamine deficiency. Tachycardia and fatigue are also symptoms of thiamine deficiency. Thiamine and magnesium make enzymes that are essential for life. Thiamine is needed to absorb certain minerals like iron. Anemia and thiamine deficiency frequently occur together. Thiamine deficiency can cause poor blood cell production (including low antibody production). Thiamine interacts with other vitamins and minerals. Vitamin D is not utilized by the body until turned into an active form by Thiamine. Thiamine is safe and nontoxic even in high doses. High doses of thiamine correct deficiencies quickly which prevent further health deterioration. A one a day type multivitamin is not sufficient to correct vitamin and mineral deficiencies that occur in the malabsorption of Celiac Disease. The Gluten free diet is low in vitamins as they are not required to be enriched with vitamins lost in processing. Supplementing with thiamine and the B vitamins boosts their absorption. Helpful Reading: Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ Gastrointestinal Beriberi and Wernicke's Encephalopathy Triggered by One Session of Heavy Drinking https://pmc.ncbi.nlm.nih.gov/articles/PMC6739701/ P. S. Try a DNA test to see if you have any known genes for Celiac Disease before doing a gluten challenge. -
Thanks for the reply ! I am asking because tomorow i have egd and nobody told me not to eat gluten-free oats… and i was scared that it could ruin my biopsy results…
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Yes, I would think that for the 10% of celiacs who can't tolerate oats it would cause villous atrophy just like gluten. No, it would not produce marsh 3b villous atrophy in a couple of days. Nothing will produce measurable villous atrophy that fast. It takes at least two weeks of at least 10g of gluten consumption daily (10g is the amount found in about 4-6 slices of wheat bread) to develop measurable villous atrophy and even then probably not 3b villous atrophy. Are you asking these questions in because you are considering taking on a gluten challenge?
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Thanks for the awnsers i understand there is maybe system reaction but do they create or cause villious atrophy? And igmf you it them for example a couple of days di they instantly induce marsh 3b?
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