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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- Maria Elena Martinez commented on Scott Adams's article in Conferences, Publicity, Pregnancy, Church, Bread Machines, Distillation & Beer1Navigating Low-Gluten Hosts for Catholics with Celiac Disease (+Video)
Many churches use gluten-free matzo crackers for communion.- catholic
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- knitty kitty replied to Sharke's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms43 years with Celiac, now I appear fine.
@Sharke, The updated guidelines for a gluten challenge are to eat ten grams of gluten per day for two weeks minimum. Lesser amounts of gluten (3 grams) don't provoke an immune response strong enough that the antibodies leave the gastrointestinal tract and get into the blood where they can be measured in tTg blood tests. Have no doubt that the... -
- Auldtwa commented on Scott Adams's article in Product Labeling Regulations2FDA's Inaction on Gluten Labeling Fails to Protect Celiac Patients (+Video)
Another strange failure of the FDA just happened to me. Like many, if I DO ingest gluten I experience massive projectile vomiting. This can be life threatening when it messes with my insulin/food balance. So my doctor has prescribed for years two anti nausea drugs. I don't, thank goodness, have to use them often. This time, my doctor apparently, when...- 1
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- knitty kitty replied to sillyyak52's topic in Coping with Celiac Disease9
Family education
@sillyyak52, Count another one in the same boat! My family has always been in denial. They said my tummy aches were a ploy to miss school. My parents passed from health problems associated with uncontrolled Celiac Disease (Abdominal Aortic Aneurysm and Glioblastoma brain tumor). My sister still has her head buried in the sand. I agree with... -
- Lotte18 replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms26Can food allergies like milk and soy flatten villi?
I have never been tested for tTg 6 antibodies but I will certainly do that next time I'm at the doc's. Maybe there's a home test kit for that? I drink lactose free milk and seem to be ok so I'm probably not a casein case but...who knows?!- 1
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By knitty kitty · Posted
@Sharke, The updated guidelines for a gluten challenge are to eat ten grams of gluten per day for two weeks minimum. Lesser amounts of gluten (3 grams) don't provoke an immune response strong enough that the antibodies leave the gastrointestinal tract and get into the blood where they can be measured in tTg blood tests. Have no doubt that the antibodies made in the small intestine are doing damage there, even if you don't suffer severe symptoms, yet. Did you react to barley prior to going gluten free? Have you been checked for chronic autoimmune gastritis which is another autoimmune disease that sometimes occurs with Celiac Disease? Have you been checked for nutritional deficiencies? Thiamine deficiency (Gastrointestinal Beriberi) can cause constipation and/or diarrhea, abdominal pain, and weight loss. Thiamine Deficiency Disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ -
By knitty kitty · Posted
@sillyyak52, Count another one in the same boat! My family has always been in denial. They said my tummy aches were a ploy to miss school. My parents passed from health problems associated with uncontrolled Celiac Disease (Abdominal Aortic Aneurysm and Glioblastoma brain tumor). My sister still has her head buried in the sand. I agree with @Rogol72, try the consequences of untreated celiac disease shock treatment. Sometimes people are just scared of having to change their comfortable lifestyle. -
I have never been tested for tTg 6 antibodies but I will certainly do that next time I'm at the doc's. Maybe there's a home test kit for that? I drink lactose free milk and seem to be ok so I'm probably not a casein case but...who knows?!
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By knitty kitty · Posted
I take Life Extension brand Mega Benfotiamine, (250 mg with each of two meals) and Maxlife Natural TTFD-B1 Max Thiamine (100 mg). I try to take my Benfotiamine and TTFD before four pm, otherwise I have so much energy, it can be hard to fall asleep. -
By knitty kitty · Posted
Some people react to the Casein in dairy the same as to gluten, like me. I avoid dairy avidly because I get ataxia so bad. Some Celiac people produce tTg 6 antibodies in response to gluten or casein. tTg 2 antibodies are what blood tests for Celiac measure. tTg 6 antibodies are also found in Alzheimer's and Parkinson's diseases, contributing to ataxia. Have you been checked for tTg 6 antibodies? P. S. Can you share your B vitamin test results?
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