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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- WednesdayAddams13 replied to mytummyhurts's topic in Gluten-Free Foods, Products, Shopping & Medications7Alpine Brand Spiced Cider
Hello, I contacted the makers of Alpine Original Spiced Cider Drink Mix and they sent me this email..... Subject: [EXTERNAL] Fw: Ref. ID:1335211 Alpine Original Spiced Cider Drink Mix. On Friday, December 6, 2024, 1:04 PM, Consumer <baking@continentalmills.com> wrote: December 06, 2024 Dear Janie... -
- trents replied to sillyyak52's topic in Coping with Celiac Disease8Family education
@Rogol72, dermatitis herpetiformis occurs in a minority of celiac patients and if the OP hasn't developed it yet I doubt it will show up in the future. I think it unwise to use a scare tactic that probably won't materialize in the OP's experience. It has a good chance of backfiring and having the opposite effect. -
- Rogol72 replied to sillyyak52's topic in Coping with Celiac Disease8Family education
Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make... -
- Helen Vajk commented on Scott Adams's article in Product Labeling Regulations1FDA's Inaction on Gluten Labeling Fails to Protect Celiac Patients (+Video)
Amen. Even worse than the food labeling is the near-complete absence of medication labeling.- fda
- fda regulations
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- peg replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease25Supplements for those Diagnosed with Celiac Disease
Thank you, Scott! This is just what I needed. Appreciate your site very much and all of your time and energy that goes into it! Kind Regards, Peg
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By WednesdayAddams13 · Posted
Hello, I contacted the makers of Alpine Original Spiced Cider Drink Mix and they sent me this email..... Subject: [EXTERNAL] Fw: Ref. ID:1335211 Alpine Original Spiced Cider Drink Mix. On Friday, December 6, 2024, 1:04 PM, Consumer <baking@continentalmills.com> wrote: December 06, 2024 Dear Janie, Thank you for taking the time to contact us regarding our Alpine Original Spiced Cider Drink Mix. We appreciate your interest and are happy to provide you with additional information. This product does not contain gluten. However, it is not manufactured in a gluten free facility. If I can be of further help, please contact me at 1 (800) 457-7744, weekdays 7:00 a.m. to 4:00 p.m. (PT), or visit www.alpinecider.com and select "Contact Us." Sincerely, Kristin Kristin Consumer Relations Specialist Ref # 1335211 I hope this helps everyone. I am currently looking for a spiced hot apple cider drink and have yet to find one that is not made in a plant that manufactures other gluten products. It's so frustrating. -
@Rogol72, dermatitis herpetiformis occurs in a minority of celiac patients and if the OP hasn't developed it yet I doubt it will show up in the future. I think it unwise to use a scare tactic that probably won't materialize in the OP's experience. It has a good chance of backfiring and having the opposite effect.
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Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make life easier for him/her, and the family might begin to take his/her strict gluten-free diet more seriously. A picture says a thousand words and the shock factor of dermatitis herpetiformis blisters might have the desired effect. The OP did say ... "How do you deal with people close to you who just refuse to understand? Are there any resources anyone could recommend for families that are short and easy to read?". @sillyyak52, It might also help mentioning to your family that Coeliac Disease is genetic and runs in families. Any one of them could develop it in the future if they have the HLA DQ 2.5 gene. Here's a Mayo Clinic study calling for screening of family members of Coeliacs ... https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-celiac-disease-screening-for-family-members/ https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/ I got glutened a few months ago because I missed the may contains statement on a tub of red pesto. It was my own fault but it happens.
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Thank you, Scott! This is just what I needed. Appreciate your site very much and all of your time and energy that goes into it! Kind Regards, Peg
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By Hopeful1950 · Posted
Oh yes. I would never recommend taking it for an extended period of time. When 70% of my body was covered in blistering itchy sores, an amazing doctor prescribed it diagnostically because I was unwilling to do a gluten challenge after already going strictly gluten-free in desperation after 10 years of suffering and being poo pooed by dermatologist after dermatologist. The fact that it stopped the itch and mostly cleared the rash after about 2 months was diagnostic for him. I stopped it and have remained strictly gluten-free with very few flares since that time (over 10 years ago). So the fact that it cleared the rash was diagnostic for me.
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