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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- Scott Adams replied to TerryinCO's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Status Update...
As you noticed, GliadinX is a site sponsor which I use regularly whenever I eat outside my home. There have been multiple studies which have shown that AN-PEP enzymes, used in the product, can break down small amounts of gluten in the stomach, which you can read here: https://www.gliadinx.com/publications -
- Scott Adams replied to Dora77's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
Permanent Floating & Undigested Stools for a Year
It sounds like you're dealing with a complex situation involving multiple factors, including type 1 diabetes, celiac disease, and potential pancreatic or digestive issues. While your doctor has ruled out pancreatic insufficiency based on one normal elastase result, it’s worth noting that elastase levels can fluctuate, and a single test might not capture t... -
- Scott Adams replied to Nicola McGuire's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Testing
Yes, there are blood tests for celiac disease, and feel free to share your son's results here if you have them. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test ... -
- Scott Adams replied to kate g's topic in Related Issues & Disorders1
Are they close to a drug that will help celiacs with cross contamination
Unfortunately we're still years away from a prescription drug to treat celiac disease. The FDA approval process can take many years to complete, and some past drug candidates have not worked out. I suspect that some current ones may not make it through the process as well, but hopefully we will see some successful drugs at some point. -
- cristiana replied to Dc91's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6Celiac or not?
Hi Dc91 Excellent advice there from Trents. He is right, not eating gluten now could generate a negative result if you do end up having an endoscopy especially as NHS waiting lists can be quite long. I'd definitely double check with the doc. Cristiana
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By Scott Adams · Posted
As you noticed, GliadinX is a site sponsor which I use regularly whenever I eat outside my home. There have been multiple studies which have shown that AN-PEP enzymes, used in the product, can break down small amounts of gluten in the stomach, which you can read here: https://www.gliadinx.com/publications -
By Scott Adams · Posted
It sounds like you're dealing with a complex situation involving multiple factors, including type 1 diabetes, celiac disease, and potential pancreatic or digestive issues. While your doctor has ruled out pancreatic insufficiency based on one normal elastase result, it’s worth noting that elastase levels can fluctuate, and a single test might not capture the full picture. Weight gain, especially with hgh injections, doesn’t necessarily rule out malabsorption, as nutrient deficiencies can still occur even if weight is stable. Regarding celiac disease, even small cross-contamination from "may contain gluten" foods could contribute to ongoing intestinal damage, especially since antibody tests aren’t always reliable indicators of healing. A follow-up endoscopy might provide more clarity. The persistent floating and undigested stools could suggest malabsorption, potentially impacting vitamin or protein levels, so it might be helpful to check for deficiencies. The fructose and lactose intolerance tests could be unreliable due to improper fasting or dietary preparation, so repeating them under correct conditions might be necessary. Stress or heavy lifting could temporarily affect digestion, but persistent symptoms likely point to another underlying issue. Consulting a gastroenterologist for further evaluation, including potential small intestinal bacterial overgrowth (SIBO) or other digestive disorders, might be a good next step. Keep advocating for yourself—your concerns are valid! -
By Scott Adams · Posted
Yes, there are blood tests for celiac disease, and feel free to share your son's results here if you have them. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. -
By Scott Adams · Posted
Unfortunately we're still years away from a prescription drug to treat celiac disease. The FDA approval process can take many years to complete, and some past drug candidates have not worked out. I suspect that some current ones may not make it through the process as well, but hopefully we will see some successful drugs at some point. -
Hi Dc91 Excellent advice there from Trents. He is right, not eating gluten now could generate a negative result if you do end up having an endoscopy especially as NHS waiting lists can be quite long. I'd definitely double check with the doc. Cristiana
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