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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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- trents replied to Brown42186's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Help Understanding Test Results
The elevated TTG-IGG could be caused by celiac disease but it can be elevated for other reasons as well. The centerpiece of celiac blood antibody testing is the TTG-IGA and apparently that was not elevated. When you had the blood draw done for the testing, had you already been cutting back on gluten? -
- jeema replied to Cathijean90's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease6I’m terrified it’s too late for me😭
@Cathijean90 It's pretty common to suffer from symptoms for a long time. I had symptoms for a decade before I was diagnosed and I think that is about average. The problem is the symptoms are often vague enough to be attributed to other digestive issues and that was the case with me. It was only after I found out I was anemic from routine bloodwork and... -
- Scott Adams replied to Brown42186's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Help Understanding Test Results
Welcome to the forum, could you please include the reference ranges for each test, as they vary from lab to lab...thank you! -
- Brown42186 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Help Understanding Test Results
I'm having a hard time understanding my blood test results. I've dealt with stomach issues for a few years and was tested for celiac but had not been eating much gluten if any at all around the date of my test. Could you help me interpret my results? Should I eat gluten consistently then have them redone? Thanks! Deamidated Gliadin ABS, IGA - 4 units ... -
- trents commented on Scott Adams's article in Additional Concerns3
Is McDonald's Gluten-Free? A Complete Guide to Safe Menu Options (+Video)
@Oriol, I am jealous!- burgers
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The elevated TTG-IGG could be caused by celiac disease but it can be elevated for other reasons as well. The centerpiece of celiac blood antibody testing is the TTG-IGA and apparently that was not elevated. When you had the blood draw done for the testing, had you already been cutting back on gluten?
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@Cathijean90 It's pretty common to suffer from symptoms for a long time. I had symptoms for a decade before I was diagnosed and I think that is about average. The problem is the symptoms are often vague enough to be attributed to other digestive issues and that was the case with me. It was only after I found out I was anemic from routine bloodwork and the doctor referred me to a gastroenterologist that I was finally diagnosed. Afterwards I was mad at myself for not figuring it out sooner. That being said, you do probably need to talk to your doctor and figure out where to go from here. A dietician and online resources (including this site) can assist you with going gluten free and as long as you do that, I think you'll likely be okay and your body will heal in time.
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By Scott Adams · Posted
Welcome to the forum, could you please include the reference ranges for each test, as they vary from lab to lab...thank you! -
By Brown42186 · Posted
I'm having a hard time understanding my blood test results. I've dealt with stomach issues for a few years and was tested for celiac but had not been eating much gluten if any at all around the date of my test. Could you help me interpret my results? Should I eat gluten consistently then have them redone? Thanks! Deamidated Gliadin ABS, IGA - 4 units Deamidated Gliadin ABS, IGG - 3 units Endomysial Antibody IGA - Negative Immunoglobulin A, QN, Serum - 211 mg TTG IGA - <2 U/mL TTG IGG - 9 U/mL The bottom result for TTG IGG is the only one flagged as high, but does that mean I have celiac? Or is that just something else? -
One of the manifestations of celiac disease that some people experience is a rash known as dermatitis herpetiformis. It has little pustules in the center of the bumps. There is no other know cause for dermatitis herpetiformis other than celiac disease. If properly biopsied during an outbreak, dermatitis herpetiformis can be used to diagnose celiac disease. Not ever dermatologist knows how to properly biopsy dermatitis herpetiformis. But dermatitis herpetiformis is generally very itchy. Concerning the diarrhea and the sulfur burps, it certainly is possible the cause is something besides celiac disease or in addition to celiac disease. Many other health problems are known to be associated with celiac disease. I encourage you to look into MCAS (Mast Cell Activation Syndrome)/histamine intolerance, SIBO (Small Intestine Bacterial Overgrowth), H. pylori and IBS (Irritable Bowel Syndrome). And as I said earlier, there is always the possibility/probability that you are still getting gluten in your diet in unexpected ways.
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