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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- trents replied to JA917's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9A year and a half of test confusion...
I just want to reinforce what Scott said and that is we have tended to think in these neat little black and white categories of it's either celiac or NCGS when in reality it may not be quite that neat. There's just a lot we don't know and the immune system is very complex. I often wonder if I had been gluten free as a child if I would have avoided developing... -
- JA917 replied to JA917's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9A year and a half of test confusion...
I am actually in the middle of this article currently already! Thank you. This website is extraordinarily helpful. -
- Scott Adams replied to JA917's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9A year and a half of test confusion...
This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.): -
- JA917 replied to JA917's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
A year and a half of test confusion...
Gotcha. I'll give 100% gluten-free a whirl after my testing concludes. I know the traditional endoscopy is the gold standard, but I've already had that done and it was normal, so my gastro wants to do a capsule endo to try to cover more surface area and see if she can see anything further than the traditional endo... If I do have Celiac, I just seem to... -
- Scott Adams replied to JA917's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
A year and a half of test confusion...
Given your long list of symptoms it would make sense to see if a 100% gluten-free diet helps relieve them, especially the anemia, and if so, it would make sense to just stay 100% gluten-free. Also, capsule endoscopy is not ideal for diagnosing celiac disease, as subtle villi damage cannot be detect by it.
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I just want to reinforce what Scott said and that is we have tended to think in these neat little black and white categories of it's either celiac or NCGS when in reality it may not be quite that neat. There's just a lot we don't know and the immune system is very complex. I often wonder if I had been gluten free as a child if I would have avoided developing celiac disease as an adult. I think there is also this misconception that if you have NCGS, gluten is not harmful, it just creates discomfort and inconvenience.
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I am actually in the middle of this article currently already! Thank you. This website is extraordinarily helpful.
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By Scott Adams · Posted
This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.): -
Gotcha. I'll give 100% gluten-free a whirl after my testing concludes. I know the traditional endoscopy is the gold standard, but I've already had that done and it was normal, so my gastro wants to do a capsule endo to try to cover more surface area and see if she can see anything further than the traditional endo... If I do have Celiac, I just seem to be on the very early end, I think.
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By Scott Adams · Posted
Given your long list of symptoms it would make sense to see if a 100% gluten-free diet helps relieve them, especially the anemia, and if so, it would make sense to just stay 100% gluten-free. Also, capsule endoscopy is not ideal for diagnosing celiac disease, as subtle villi damage cannot be detect by it.
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