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Food Intolerance & Leaky Gut
Many people have cow's milk (casein), soy, egg, corn, or other issues. Share info on alternative diets like vegetarian, vegan, Specific Carbohydrate Diet (SCD), FODMAP Diet, Keto Diet, etc.
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Recent Activity
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- Erain replied to 20021979's topic in Gluten-Free Foods, Products, Shopping & Medications4Orgain Protein Powder
I meant to specify it was an Orgain product. They have several options to choose from. -
- Erain replied to 20021979's topic in Gluten-Free Foods, Products, Shopping & Medications4
Orgain Protein Powder
Thank you Scott. I bought a product that has 50 superfoods from Costco online and I saw that it said gluten free but I did not see the ingredients list of this particular powder. It has wheat and barley grass. I realize the grass is not the portion that contains gluten. However, I wonder about cross contact. Since they are not certified, I might not choose... -
- Scott Adams replied to Judi Magner's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Antibodies
Feel free to share your test results here, but depending on which test(s), a positive result could make celiac disease very likely. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels... -
- trents replied to np1209's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Interpreting results.
Based on the available test information, it does not appear you have celiac disease. This is a assuming you are not IGA deficient and also assuming your gluten consumption was adequate both in amount and duration in order to ensure valid antibody testing. Guidelines for the "gluten challenge" have recently been revised. It is now recommended that those seeking... -
- Scott Adams replied to Soleihey's topic in Related Issues & Disorders1
Gluten Ataxia and Malabsorption
Have you been taking a good multi-vitamin & mineral formulation? Long term nutrient deficiencies can lead to gluten ataxia. Be sure to discuss this with your doctor. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium...
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I meant to specify it was an Orgain product. They have several options to choose from.
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Thank you Scott. I bought a product that has 50 superfoods from Costco online and I saw that it said gluten free but I did not see the ingredients list of this particular powder. It has wheat and barley grass. I realize the grass is not the portion that contains gluten. However, I wonder about cross contact. Since they are not certified, I might not choose this product but rather choose another of their powders that forgo the grasses. But, since I bought a huge tub of it, I am tempted to try it if they respond with reassurance that when they state gluten free, they mean celiac safe gluten free. Some products will make that claim but walk it back if they know you are celiac. Plus I have not had any wheat or barley products since for many years and frankly am a little intimidated to try it. Have you tried the product?
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By Scott Adams · Posted
Feel free to share your test results here, but depending on which test(s), a positive result could make celiac disease very likely. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. -
Based on the available test information, it does not appear you have celiac disease. This is a assuming you are not IGA deficient and also assuming your gluten consumption was adequate both in amount and duration in order to ensure valid antibody testing. Guidelines for the "gluten challenge" have recently been revised. It is now recommended that those seeking testing should consume at least 10g of gluten daily for at least two weeks leading up to the day of the blood draw. 10g of gluten is about the amount in 4-6 slices of wheat bread. Based on the information you have supplied, if you are convinced that gluten is causing symptoms, it would seem you likely have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for NCGS just as it is for celiac disease.
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By Scott Adams · Posted
Have you been taking a good multi-vitamin & mineral formulation? Long term nutrient deficiencies can lead to gluten ataxia. Be sure to discuss this with your doctor. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.
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