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Super Sensitive People
Non-scientific discussions for those who react to lower levels of gluten than most.
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Recent Activity
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- Celiacandme replied to ChrisSeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Waiting on Blood test results…
Keep us posted on your results. I hope you don't have to wait too long. Are you planning to have your son tested? Do you feel your father might get tested? Wishing you all better health.🍀 -
- Scott Adams replied to mariamccl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Waiting on camera test
Were you eating lots of gluten in the 6-8 weeks before your blood test? If not, you can end up with false negative results. Feel free to share your blood test results--were your antibody levels elevated at all? Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms g... -
- Scott Adams replied to Sicilygirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease11
Enegy level extremely low
It's difficult to say exactly why, but it is worth discussing this with your doctor, as it can by a symptom of other things--especially if you're also losing weight. -
- ChrisSeth posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Waiting on Blood test results…
Hi I finally visited with the Dr today and she ordered labs to be done. Not just for celiac disease but about 7 blood tests in total including iron levels. I’m 30 years old. My symptoms are -Chronic diarrhea. In the last month and I half I had it multiple times a day, everyday. Pretty often occurrences before I really started paying attention. ... -
- trents replied to mariamccl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Waiting on camera test
Welcome to the forum, @mariamccl! It is outrageous that you have to wait so long for a GI appointment! I assume you are in the UK from your use of "mum" for your mother. That is par for the course I understand in the current UK medical system. I am glad you went private concerning the camera. Will this also include a biopsy of the small bowel lining...
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By Celiacandme · Posted
Keep us posted on your results. I hope you don't have to wait too long. Are you planning to have your son tested? Do you feel your father might get tested? Wishing you all better health.🍀 -
By Scott Adams · Posted
Were you eating lots of gluten in the 6-8 weeks before your blood test? If not, you can end up with false negative results. Feel free to share your blood test results--were your antibody levels elevated at all? Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. If your biopsy ends up negative you still may want to go gluten-free for a few months to see if your symptoms go away. Also, be sure to eat tons of gluten daily in the 2 weeks leading up to your endoscopy, otherwise you could get false negative results. -
By Scott Adams · Posted
It's difficult to say exactly why, but it is worth discussing this with your doctor, as it can by a symptom of other things--especially if you're also losing weight. -
Hi I finally visited with the Dr today and she ordered labs to be done. Not just for celiac disease but about 7 blood tests in total including iron levels. I’m 30 years old. My symptoms are -Chronic diarrhea. In the last month and I half I had it multiple times a day, everyday. Pretty often occurrences before I really started paying attention. -frequent headaches -fatigue -had my appendix removed 1 year ago due to appendicitis (not sure if this is related) -frequent stomach rumbling and gas -sleep disturbances-waking up multiple times a night (3-5 times a night) -severe restless leg syndrome -generally just don’t feel well on a daily basis -hands and feet get cold very easily tingly feet -anxiety/depression/mood swings/irritability . I take medication for bipolar disorder and anxiety but still have anxiety -sometimes get acid reflux. And sometimes it’s really bad. Like wake up choking on vomit thinking I’m gonna die bad. My son is 6 and has excema, is anemic, is on 2nd percentile for growth, gets constipated, and is at risk of having seizures… My Dad was diagnosed with ulcerative colitis as a kid 50 years ago, and has a non alcoholic fatty liver, is anemic, and is fatigued. I’ll post my results as soon as I get them. To be honest I’m hoping it is celiac disease as it could explain so many things I’m dealing with.
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Welcome to the forum, @mariamccl! It is outrageous that you have to wait so long for a GI appointment! I assume you are in the UK from your use of "mum" for your mother. That is par for the course I understand in the current UK medical system. I am glad you went private concerning the camera. Will this also include a biopsy of the small bowel lining?
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