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Super Sensitive People

Non-scientific discussions for those who react to lower levels of gluten than most.


538 topics in this forum

  1. Shell156
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  2. CeliacAndrew
    Shell156
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    crazymurdock
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    nvsmom
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    meowndy
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    RollingAlong
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    dilettantesteph
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  25. squirmingitch
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  • Recent Activity

    1. - Bebee posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Testing for celiac

    2. - K6315 replied to K6315's topic in Related Issues & Disorders
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      Newly gluten free… withdrawal?

    3. - kate g posted a topic in Gluten-Free Restaurants
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      Nandos improper preparion celiac childrens food

    4. - Scott Adams replied to TexasCeliacNewbie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      High blood test numbers - with scales. Any advice?

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      Newly gluten free… withdrawal?


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  • Posts

    • Bebee
      I am new here, I have been diagnosed with Microscopic Colitis (Lymphatic) years ago and have been gluten-free, DF since, but I still can have occasional bouts of diarrhea (still trying to figure that out).  I also have MS, Hypothyroid, Arthritis, Reynaud's and my rosacea has been acting up lately.  What treatment is suggested to help with rosacea?  I would like to know too if there is a test for celiac if you have been gluten-free?   Thank you, Barb    
    • K6315
      Well, that's interesting. I am lactose intolerant and have been managing that for years. I'd be interested in seeing if that changes once I feel better from not eating gluten (one thing at a time for now, though). Helpful to hear about the avenin. I will do some digging and pose that to the dietitian. Grateful for your feedback.
    • kate g
      Recently my daughter ate in nandos harlow I rang in advance to speak about the celiac protocals and learned that childs portion chicken nandinos is cooked on the same grill as garlic bread even if they are celiac! Even if you clean it this is not good practise and will be making many children ill. I learnt adults butterfly chicken cooked on a grill purely for chicken.  This is fine and what we ordered however nandos need to take note of your practises for the safety of celiac children. my daughter has been ill from their nandinos chicken before and i emailed head office and they wouldnt accept responsibility 
    • Scott Adams
      I agree with @RMJ, you have multiple positive tests so celiac disease is likely.  This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
    • trents
      One small study found that 50% of celiacs react to the dairy protein "casein" like they do to gluten. It is also common for celiacs to be lactose (the sugar in milk) intolerant, though that often disappears in time as the villi heal. About 10% of celiacs react to the oat protein "avenin" like they do gluten.
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