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Support & Help

Forums in this area offer support and help to those with celiac disease and gluten sensitivity.

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  1. Introduce Yourself / Share Stuff

    General chit chat...please keep it light and avoid controversial topics.

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  2. Parents, Friends and Loved Ones of Celiacs

    Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.

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    • Doreyn
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  3. Meet Up Room

    A Place where all gluten-free people can meet each other--support groups, adults, teenagers, men, women, people who live inside or outside the USA. Everyone is welcome!

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  4. Doctors

    Share experiences with doctors, how to find a good one, and avoid the bad ones.

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    • cristiana
    • How to choose a Naturopath for 6yr old
  5. Publications & Publicity

    Share stories, news, and articles here. 

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  • Posts

    • Alibee
      I haven’t been diagnosed formally. My doctor always called it eczema but over the years I have figured out it isn’t.  I’ll do some research on iodine. Thanks for that info. 
    • trents
      I would not think abstaining from commercially processed food would have any effect on dermatitis herpetiformis. What can help with dermatitis herpetiformis is reducing iodine in your diet and, of course, you must completely abstain from gluten.  Many who suffer from dermatitis herpetiformis cannot find relief until they get on a med called Dapsone. It seems to be pretty effective but stresses the liver. So, anyone taking it must have their liver enzymes monitored regularly. By the way, celiac disease is the only know cause for dermatitis herpetiformis. Has your rash been officially diagnosed as dermatitis herpetiformis? It can be a challenge to find a dermatologist who knows how to properly biopsy dermatitis herpetiformis when seeking a diagnosis.
    • Alibee
      I was eating gluten at the time it was done. I do not eat commercially processed food and we make it all from scratch so I wonder if that might cause an issue. 
    • trents
      When you had the blood draw done for the antibody testing, had you already been practicing a gluten free diet? If so, that would also sabotage the results of the tTG-IGA.
    • Alibee
      The rash on my hands is the little blisters or  dermatitisherpetiformi you are referencing. They itch like crazy and no doctor has ever been able to get them to go away. When I remove gluten from my diet they go away. I decided to do the test for that reason. It’s really my only symptom but my sister has celiac disease and the same hand rash. her doctor recommended I get tested. 
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