Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy - Affect On Symptoms


dilettantesteph

Recommended Posts

dilettantesteph Collaborator

How have peoples symptoms been affected by endoscopy and biopsy?  Do they worsen for a few days from the procedure itself?  I'm trying to figure out what is going on, and I don't remember ever reading about this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Nope, I didn't :)

nvsmom Community Regular

I've heard many poeple feel worse because of the gluten they ate prior to the test but I haven't heard of the test making them feel worse... I never had the endoscopy so I'm not exactly knowledgable about this... Hope you find answers and feel better soon.

pricklypear1971 Community Regular

My son had very negative behavioral/emotional reactions for a month+ after his endoscopy.

Funny enough, he mostly stopped complaining of stomach upset, c, d, etc.

But the behavior was definite. Even his teacher noticed.

We think it was a reaction to the anasthesia. He was a little "shocky" post procedure. The chills, chattering. Not unusual or unheard of-but a slight reaction.

lisa74 Newbie

When I had my endoscopy and biopsy, my symptoms stayed the same, no changes until I went gluten free. Are you feeling worse?

dilettantesteph Collaborator

Thank you for replies.  This was a follow up endoscopy while already gluten free, but suffering minor symptoms from slight gluten contamination.  I think that I just wasn't being patient enough with improvement upon finding a safer diet.  Things seem to be going better now.

Em314 Explorer

I felt reeeeeeally wiped out and kinda like I had a low grade fever for a day or two after, but I don't remember much else being wrong.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I don't think I was any different. I started gluten-free right after it so I can't really judge.

I have several friends, probably not Celiac, whose " stomach" issues got better after and endo/ colo combo. Probably the good clean- out.

gatita Enthusiast

I felt pretty wasted after my double 'scopes last week (endo- and colono-).... my guts were all squirrelly too. It's a week later today and I'm fine now. I think the pre-colonoscopy flush-out might have been a good thing for my SIBO.

dilettantesteph Collaborator

I think the endoscopy caused some flare up for about a week here too.

 

The pediatrician thought that likely.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,252
    • Most Online (within 30 mins)
      7,748

    MI-Hoosier
    Newest Member
    MI-Hoosier
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Sunshine4
      Many apologies for somehow changing your first name Scott! 
    • Sunshine4
      Mark, do you have suggestions as to celiac centers that could be helpful? Oklahoma/Texas neurologists have only offered me the “eat gluten free” advice and then when I ask about the hands or muscle twitching they said they just don’t know. I appreciate your great information on supplements, thank you for your help!  Scott, do you have suggestions as to celiac centers that could be helpful? Oklahoma/Texas neurologists have only offered me the “eat gluten free” advice and then when I ask about the hands or muscle twitching they said they just don’t know. I appreciate your great information on supplements, thank you for your help! 
    • Scott Adams
      It sounds like you’ve been through a challenging journey since your celiac diagnosis, especially with the unexpected neurologic symptoms like muscle twitching and hand tremors. While celiac disease is primarily known for gastrointestinal issues, it’s important to recognize that it can also manifest in non-GI ways, including neurological symptoms. Research has shown that celiac disease can sometimes be linked to conditions like gluten ataxia, peripheral neuropathy, or even myoclonus (involuntary muscle twitching), which might explain what you’re experiencing. The fact that your symptoms have fluctuated with dietary changes suggests a possible connection, even if it’s not yet fully understood by your local neurologists. It might be worth seeking out a specialist who has experience with celiac-related neurological issues or consulting with a celiac-focused research center. In the meantime, staying strict with your gluten-free diet is a good step, as even small amounts of gluten can trigger immune responses that may contribute to these symptoms. You’re not alone in this—many with celiac report similar struggles, and connecting with online communities or support groups could provide additional insights and reassurance. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Sunshine4
      I was initially diagnosed with celiac in June 2024. I had no G.I. issues but got chest and pelvic pain. I changed my diet – although I was not great at watching cross-contamination – and had no problems until the end of October 2024 when I started getting headaches. At the end of December 2024 the headaches ended but I started having twitching throughout my body. Not long-term twitching just a fast burst twitch. In addition, I had tremors start in both of my hands. Sometimes it is stronger in one hand than the other and sometimes it seems to die off and then comes back. This has gone on for two months and the twitching has gradually lessened although sometimes it comes back with a vengeance. I have been really strict about  my diet and cross contamination so I feel these symptoms are related to my celiac disease although I’m not certain and I’m unsure that the strict diet is what has helped. I’ve been tested for everything -  MS, lupus, ALS and a variety of other things which were all negative. I can only relate these symptoms to my celiac but no neurologist in my area seems to know anything about celiac causing anything other than gastric issues. I’m so frustrated and just looking for others that have had similar symptoms and doctors that are more knowledgeable about celiac and neuro issues. Thank you! 
    • LookingForAnswers101
      I can't tell yet because it's only been a few days and the issue occurs every 2/3 months!
×
×
  • Create New...