Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

If You Have Another Autoimmune Disorder...


jenvan

Recommended Posts

jenvan Collaborator

Hey there! I thought this would be an interesting question to ask. I also wonder because since going gluten-free my psoriasis has continually gotten worse. I am definitely gluten-free, and my last blood work came back normal. Perhaps my body is going crazy on my skin since it is no longer attacking my intestines?! I'm not sure...but wanted to see if anyone else's additional autoimmune disorder or disease had gotten worse since going gluten-free...even if it was only for a period of time. Gracias! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jnkmnky Collaborator

Does dairy free help with that?

elisabet Contributor
Does dairy free help with that?

<{POST_SNAPBACK}>

for my son It helped both diary free and soy free,but it is so difficult.

Guest Viola

Hi, my psoriasis seemed to get worse for the first year or two ... I think because I was so stressed out over the new diet, plus changing houses and other family stuff. But after that it continued to get better until now I only get it when some crises pops up. Also It does tend to show up in small patches in the hot humid days during the summer.

My arthritis improved after diagnosis, but now as I get older it is starting to get worse again.

nikki-uk Enthusiast

My husband was dx with Psoriatic Arthritis about 2 yrs before celiac disease.

Psoriatic Arthritis is very similar to rheumatoid arthritis.

Anyhow ,the arthritis was very painful,very aggresive flare ups and he had a general decline in health.

Since going gluten-free a year ago-his psoriasis has disappeared completely-and has only had niggles in his joints(touch wood!)

The arthritis is still there-but no where as debilitating pre gluten-free. :)

redheadheather Explorer
for my son It helped both diary free and soy free,but it is so difficult.

<{POST_SNAPBACK}>

You're dairy and soy free as well as gluten-free w/your son? MY son was diagnosed w/milk and soy allergies as an infant - but we were told he outgrew them because he has no skin reactions to them anymore. What are your typical meals for your son? How old is he? I'm going to bring up these issues w/my son's doctor when we see them next week (how we know he's *really* outgrown these allergies, etc).

Thanks!

julie5914 Contributor

Apparently YES! I had had some mild thyroid troubles before going gluten free and have been wondering all this time, isn't that supposed to get better, but it is getting worse. Then I wonder if maybe I am noticing it more since my intestines are more happy, but I don't think that's it. Headaches came back worse, fatique is often worse and muscle pain and achiness is worse! What a trade off. I am waiting on a slew of blood test results to see if we can figure out what's going on.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

I wonder if maybe some of your headaches are due to gluten withdrawl .. something like caffine withdrawl causes headaches as well. I can remember getting headaches years ago, but can't remember if it was before or after I started the diet. Now I only get them if I have to skip my morning coffee :rolleyes: Also I find a good many Celiacs have problems with bouts of depression, would that cause headaches? Certainly stress does if we are dealing with family or friends that won't help, or at the very least co-operate with food issues.

Just some thoughts <_<

Rachel--24 Collaborator
Apparently YES! I had had some mild thyroid troubles before going gluten free and have been wondering all this time, isn't that supposed to get better, but it is getting worse. Then I wonder if maybe I am noticing it more since my intestines are more happy, but I don't think that's it. Headaches came back worse, fatique is often worse and muscle pain and achiness is worse! What a trade off. I am waiting on a slew of blood test results to see if we can figure out what's going on.

<{POST_SNAPBACK}>

Julie,

What kind of thyroid problems did you have? Were you Hypo? Do you take meds?

When I went gluten-free I got headaches and hairloss related to overactive thyroid. It was because more of my meds were being absorbed as I started to heal. I had to decrease the dose.

maxcarr Newbie
Julie,

What kind of thyroid problems did you have? Were you Hypo? Do you take meds?

When I went gluten-free I got headaches and hairloss related to overactive thyroid. It was because more of my meds were being absorbed as I started to heal. I had to decrease the dose.

<{POST_SNAPBACK}>

Hi Rachel, I have hypo too, and was diagnosed with celiac about 18 months ago - but I'm now having my hair fall out quite a bit (again) ...I guess time to get the thyroid levels checked!

judy05 Apprentice
Hey there!  I thought this would be an interesting question to ask.  I also wonder because since going gluten-free my psoriasis has continually gotten worse.  I am definitely gluten-free, and my last blood work came back normal.  Perhaps my body is going crazy on my skin since it is no longer attacking my intestines?!  I'm not sure...but wanted to see if anyone else's additional autoimmune disorder or disease had gotten worse since going gluten-free...even if it was only for a period of time.  Gracias!  :)

<{POST_SNAPBACK}>

My auto immune disease got worse, I developed type 2 Diabetes! Before that I had to have half of my thyroid removed because it was destroying itself. I also get bad headaches from allergies but my migraines have lessened. You name it, I've had it. The only thing that helps is the gluten-free diet and exercise. I thank God I am losing weight so maybe the diabetes will get better without having to take medication.They say when one organ goes, they all go. Remember the skin is condidered an organ too.

jenvan Collaborator

Judy- interesting thoughts on developing diabetes... makes me wonder--maybe my skin is also worse b/c now i am absorbing more carbs, sugar etc...which is related to one of the theories for psoriasis. hmm...

julie5914 Contributor

No, I wasn't on meds - I should have said I had symptoms like hypo, but the numbers were always normal until lately - now they are going up, and I will likely be on meds soon. Hopefully that will correct itself though. My doc also thinks that a lot of my autoimmune symptoms are linked to adrenal problems (which then later cause thyroid trouble). We shall see when she calls back next week with the results. I suppose it could be some sort of withdrawal - the headaches usually wake me up at night though - I sense they are blood pressure related (I have low bp).

Eliza13 Contributor

I had pain in my knee and edema, which went away after 3 weeks on the diet. I also had what I believe was DH on my elbows, which went away spontaneously prior to going on the diet.

Skar.

jenvan Collaborator

thanks for the responses all...trying to play 'detective' ;)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,911
    • Most Online (within 30 mins)
      7,748

    Deborah anne
    Newest Member
    Deborah anne
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jack Common
      My old results (almost a year ago) are: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months and after I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   I didn't have any symptoms now except tiredness but I think it's just work. I'm not IgA deficient as you can see so I don't need to do this Deamidated gliadin peptide IgG test. But I do because it's sometimes not in the normal range. What do you think this time? I think I don't have celiac disease. But this test... 
    • Wheatwacked
      @plumbago, I found a good PDF on cholesterol:  Unlocking the mysteries of VLDL: exploring its production, intracellular trafficking, and metabolism as therapeutic targets I just started it, but it may have answers for us, with whacky cholesterol.  The pharmaceuticals don't seem to be interested in anything but statins.   "The nicotine in tobacco causes a decrease in the HDL cholesterol level. " Maybe you should start smoking? 🤪 I have high LDL and low HDL.  It is genetic mutations in the LDLR, APOB, PCSK9, or LDLRAP1 genes. My whole family is on statins for Familial Hyperliperdemia except me.  December I had ultrasound and cat scan for Carotid Artery blockage and both sides are above 85% blockage.  I started on Atorvastatin and that made me weaker than ever, even with CoQ10.  I asked for and got prescription for 2000 mg/day Nicotinic Acid B3 and in the 3 weeks my numbers changed. I am feeling realy good lately.  Stronger and more flexible.  Sleeping better.  Getting roto router (TCar) as soon as I get clearance from a cardiologist.  I expect that by my next blood panels in April to be even better. I am beginning to believe that like vitamin D where the RDA only accounts for preventing Rickets, the RDA for B3 is way underestimated.   From Oct 22 to Jan 17: A1c from 13.5 to 10.2 eGFR from 55 to 79 Triglyeride from 458 to 362 Total cholesterol from 245 to 264 HDL from 27 to 44 VLDL from 84 to 68 LDL from 134 to 154
    • plumbago
      I have taken thiamine on and off (just not at this exact moment), and I’m not sure it's made any difference. Yes, I almost always “fast” (12 hours NPO) for blood tests, as do a great many other Americans, so I tend to think that’s not it. All I can say is that the mystery continues. I could do some speculating here…well, heck, let me go ahead and speculate now: The lab ranges we all see on our reports are more or less the averages of Americans who have had those blood tests. Now, it’s up to you and me whether or not to think of the average American as healthy. I can make arguments both ways, more often than not, on the negative. My point here is that maybe the current range of HDL is somewhat skewed (ie, low), and maybe just maybe my super high (plus 100s) HDL results are not something to worry about; the range just needs updating. Why do I say this? Because pre-celiac disease diagnosis, my HDL values were in the normal range, but post celiac disease diagnosis, my HDL levels are way above average. See where I’m going? My trusty guidebook on celiac disease, Recognizing Celiac Disease by Cleo Libonati, RN, BSN, says that HDL increases after being on the gluten free diet. Or can increase, I guess. Then again, it could be something else. ¯\_(ツ)_/¯ In thinking of going to a cardiologist, I sort of fear that he/she will be dismissive of a link to celiac disease, treated celiac disease, and would not therefore be considering all possibilities. @trents I'm sorry you've been diligently working on your numbers to no effect. That must be frustrating. LDL is a world that is far better understood than HDL, so for you there's maybe less "mystery." Familial hypercholesterolemia is for sure something that can be tested. Outside of that, you're right, genetics can determine a general pattern.
    • trents
      Well, I have the opposite problem. My LDL has been moderately high for years. I eat healthy and exercise regularly but can't seem to move that meter. I used to be on a statin (and my doctors want me to go back on one) and it brought both HDL and LDL down but the ratios never changed. I think a lot of that cholesterol stuff is just baked into the genes.
    • knitty kitty
      Wow, @plumbago, Curiouser, and curioser... Have you been fasting?  Apparently HDL levels increase after fasting... https://ajcn.nutrition.org/article/S0002-9165(23)31185-7/abstract   I must say it, try taking some Thiamine.  Thiamine helps regulate lipoproteins... Thiamine helped lower HDL in this study whether they had diabetes or not. https://pmc.ncbi.nlm.nih.gov/articles/PMC3921172/#:~:text=Serum thiamine and its derivatives,supplementation (p %3D 0.009).
×
×
  • Create New...