Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Bother?

lizardloo

Recommended Posts

lizardloo Newbie
lizardloo
Posted

I've been having some stomach complaints for about a year now along with some other things that didn't really seem related at the time (horrible constipation, teeth are crumbling, migraines, random itchiness, a numb toe, fatigue, general feeling of being unwell, awful bloating, stomach cramps, allergies have been getting worse, etc) and finally decided to see a doctor about it.  He did run a blood test, took x-rays, and had various things tested from my stool.  

 

My blood test came back and everything was fine (I haven't seen the results yet).  The only thing celiac related on there was a total IgA.  I suspected that I was having a problem with gluten when I noticed how sick I felt after eating Cheerios.  I held off stopping gluten until after I saw the doctor and had the tests run.  I never specifically brought my thoughts up because I didn't want to maybe miss something else it could be I guess?  

 

Now that this has come back normal I'm wondering if it's worth it to push on?  Being off the gluten for a week has already made a world of difference, and things are slowly starting to move down there again. 

 

If I did bring it up, how can I explain without sounding like a loon?  I *know* that this is making a big difference.  I realize I'd have to start eating it again if further tests were needed.  I'm not sure I want to feel that horrible again. It could be non-celiac gluten intolerance which wouldn't show any real results anyway.  

 

Thanks for reading all that!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

You'd have to go back on the gluten for any blood tests to be accurate. The total IGA is only used (to my knowledge) to determine whether or not you are IGA deficient (which can mess up the results of the IGA TTG).

 

You could go back on the gluten, get the full panel ran, and see what happens. Bring up your concerns about it and it should be fine.

nvsmom Community Regular
nvsmom
Posted

Yes, I think Shadowicewolf is right. The celiac panels include that test as well as:

Ttg IgA and ttg IgG

DGP IgA and DGP IgG

EMA IgA

AGA IgA and IgG (older tests and becoming less common)

If you do want testing, now is the time. Many celiacs appear to react worse the longer they have been away from gluten so eating gluten for a few weeks 6 months or a year from now could be a horrible experience. I would eat gluten for a week and get tested. You haven't been off of it for long so hopefully it won't impact your results.

Any general practioner can order the tests if you do decide to go that route.

Best wishes.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,831
    • Most Online (within 30 mins)
      7,748
    BIg Nodge
    Newest Member
    BIg Nodge
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      Does it taste like black licorice?  It said it was chewable.  I do not like that flavor.     Since the burn at the back of my throat is there everyday, I usually only take something when it is unbearable and keeping me from ADL especially sleep.  
    • Scott Adams
      Nandos improper preparion celiac childrens food

      By Scott Adams · Posted

      Your concerns about Nando's cross-contamination practices are valid and important for the celiac community. It's disappointing that Nando's does not have stricter protocols for children's portions, especially given the risk of cross-contact with gluten-containing items like garlic bread. Cooking gluten-free items on shared surfaces, even if cleaned, is not safe for individuals with celiac disease, as even trace amounts of gluten can cause harm. While the adult butterfly chicken may be a safer option, the inconsistency in practices for children's meals is concerning. It's frustrating that Nando's headquarters did not take responsibility, but sharing your experience raises awareness and may encourage them to improve their protocols. Consider reaching out to celiac advocacy organizations to amplify your concerns and push for better standards. Always double-check with staff and emphasize the importance of avoiding cross-contamination when dining out.
    • Scott Adams
      Mucus discharge

      By Scott Adams · Posted

      I had this symptom when I was diagnosed. Are you sure that your diet is 100% gluten-free?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):      
    • Scott Adams
      Confused with test results

      By Scott Adams · Posted

      Based on your results, it seems unlikely that you have celiac disease. A negative endoscopy and the absence of HLA-DQ2/DQ8 genes (the primary genetic markers for celiac) strongly suggest you do not have the condition. However, the elevated TTG-IgA (22) could indicate a temporary immune response or another issue, such as a different autoimmune disorder, intestinal infection, or even a lab anomaly. The presence of DQA1*05 alone is not diagnostic for celiac. Meeting with an allergist and GI specialist is a good next step to explore other potential causes for the high antibodies, such as non-celiac gluten sensitivity or other immune-related conditions. Keep a detailed food and symptom diary to help guide further testing and discussions with your doctors. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Captain173
      Confused with test results

      By Captain173 · Posted

      I had celiac panel done back in October, only ttg iga came back high  (22 with positive being over 3). Endoscopy done in January, it was  negative. Genetic test done after endoscopy, negative for both hla dq2 & dq8. Did show positive for dqa1*05.  Scheduled to meet with an allergist next week. Not scheduled to meet with GI specialist till after allergist. Confused if I have celiac or what caused high the antibodies originally if I do not.
×
×
  • Create New...