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Today My Life Changed Forever

Phoenix-Sweetheart

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Phoenix-Sweetheart Newbie
Phoenix-Sweetheart
Posted

Today I got "the call" from my GI doctor which confirmed my theory that I have celiac disease. From what I understand, it is more common in woman than in men. Also, it is not uncommon for the symptoms to occur later on in life. I'm 24 and after living a life of extreme discomfort after eating nearly anything I put in my mouth, I am kinda relieved that I have finally found out what was wrong with me. Today is Day 1 of being gluten free. I have done a lot of research online and honestly I am very overwhelmed. Does anyone have any advise for someone who is just starting out in there "new way of life?" Any advise would be greatly appreciated. 

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kareng Grand Master
kareng
Posted

Welcome to the club. Your secret decoder ring will be shipped in 2- 8 weeks.

Read the Newbie thread.

https://www.celiac.com/forums/topic/91878-newbie-info-101/

Gemini Experienced
Gemini
Posted

Welcome to the club. Your secret decoder ring will be shipped in 2- 8 weeks.

Read the Newbie thread.

https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

:lol:  :lol:  :lol:   I'm sorry, I am not laughing at the OP's anxiety over this but the decoder ring line just did me in!

 

Phoenix......yes, read the newbie thread and if you have questions, ask away.  Relax, it isn't bad at all and food will become happy for you again as you won't be sick anymore.  It does take a little while but you will feel better.  There is a learning curve but everything can be mastered well. We'll help with food cravings and replacements...there are a lot of them out there.  :D

psawyer Proficient
psawyer
Posted

From what I understand, it is more common in woman than in men.

I can't let that go by without a comment. I don't think it is more common in women, but I definitely agree that it is more commonly diagnosed in women, for two reasons.

Men are less likely to go see a doctor about abdominal issues--gas and the runs just happen, don't they? And if they do go to a doctor, they are more likely to accept the IBS brush off--rather than persisting and insisting on a real answer.

gatita Enthusiast
gatita
Posted

Hello, and welcome! :)

 

I do have advice... First of all, don't do what I did. When I started to realize that gluten was a problem, I treated it like counting calories or carbs from my dieting days -- ie. thinking that "ballparking" it was good enough. That a little crumb wouldn't hurt me. How wrong I was!

 

I had to learn the hard way that I have to be super vigilant about keeping even a tiny amount of gluten out of my diet and my mouth.

 

That meant reading every single label ALL THE TIME, avoiding eating out until I knew a place was safe, and a few other strict measures... such as getting rid of the strainers I used to rinse pasta in.

 

But now for the good news -- once those details were taken care of, the rest has become second nature.

 

Once you start to feel better, you won't ever look back!

 

So... definitely click that link that kareng posted. You will get the hang of it and feeling better is going to be its own reward.

GFinDC Veteran
GFinDC
Posted

Hi PhoenixSweetie,

 

Here are some tips for the first 6 months.  There are just a few threads on what to eat floating around.  The topic hardly ever comes up for some reason... :)  I'll post a couple for you to get some ideas.

 

Get tested before starting the gluten-free diet.
Get your vitamin/mineral levels tested also.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy.
Avoid sugars and starchy foods.
Avoid alcohol.

Buy a nun's habit.

 

What's For Breakfast Today?
https://www.celiac.com/forums/topic/81858-whats-for-breakfast-today/

What Did You Have For Lunch Today?
https://www.celiac.com/forums/topic/87765-what-did-you-have-for-lunch-today/

What's for dinner tonight chat?
https://www.celiac.com/forums/topic/75238-what-are-you-cooking-tonight/

Dessert thread
https://www.celiac.com/forums/topic/93840-whats-for-dessert-tonight/page__pid__802399#entry802399

Easy yummy bread in minutes
https://www.celiac.com/forums/topic/56641-easy-yummy-bread-in-minutes/

Thread For gluten-free, Dairy, Soy, Corn And Nightshade Free Recipes
https://www.celiac.com/forums/topic/97786-thread-for-gluten-free-dairy-soy-corn-and-nightshade-free-recipes/

Super Easy Meal Ideas Anyone?
https://www.celiac.com/forums/topic/97027-super-easy-meal-ideas-anyone/
 

 

nvsmom Community Regular
nvsmom
Posted

Welcome to the board.

 

I only have a couple of things to add to the good advice already given. First, hang in there for those first few weeks during which time some people go through a withdrawl. Some people feel a bit worse before they feel better so if it happens to you, wait it out and it will pass.

 

Second, when you go back to the doctor for nutrient testing (many celiacs are low in calcium, iron/ferritin, D, B12 and potassium) check you thyroid too. Hypothyroidism is liked to celiac disease; I believe just over 1 out of every 10 celiacs have hashimoto's.

 

Best wishes! I hope you feel well soon.

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  • 3 weeks later...
running like a zombie Newbie
running like a zombie
Posted

Whatever you do don't walk down the bread aisle as I did....I felt by the time I reached the end I needed antidepressants. Also make sure family knows the situation, it makes it easier around holidays when those evil gluttened foods are involved.

mommida Enthusiast
mommida
Posted

It is said that autoimmune disease symptoms are excerbated by female hormones. 

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