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Constipation And Diarrhea

Googles

By Googles
in Coping with Celiac Disease

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Googles Community Regular
Googles
Posted

I think that I got glutened, or something else got me. I'm having back and forth diarrhea and constipation. The diarrhea is just like muscle spasms not full fledged runny stuff. What do I do? I had two bouts of diarrhea with constipation in between them earlier this week.  I had to take imodium for the diarrhea earlier this week because I was 45 minutes from home and had to drive myself and there wasn't anywhere to stop between where i was and home. But since then I haven't been able to go at all. This is the first time I have had this problem. Either the spasam diarheaa or problems with constipation. I think that the trouble was gluten because I have gotten all the other gluten symptoms I usually get. Any advice would be helpful.

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alesusy Explorer
alesusy
Posted

dear Googles, spasms diarreha is my thing as well after a glutening. I mean: first the diarreha then the spasms diarreha. I took an Imodium too last week: of course it is better to stay home and let it run its course and not mess up with medication, but sometimes one has to. I have no answers other that we must wait for it to pass...

Googles Community Regular
Googles
Posted
  • Author

dear Googles, spasms diarreha is my thing as well after a glutening. I mean: first the diarreha then the spasms diarreha. I took an Imodium too last week: of course it is better to stay home and let it run its course and not mess up with medication, but sometimes one has to. I have no answers other that we must wait for it to pass...

Thanks so much. This is a totally new symptom for me. I DO NOT like it. My problem is that if I don't work i don't get paid and i can't afford not to get paid.. So I usually have to deal with meds unless it is a weekend. I did not even know this was possible. I'm sorry that you get it too, but nice to know I wasn't just going totally crazy and it wasn't my imagination.

JNBunnie1 Community Regular
JNBunnie1
Posted

Ohhhhh diarrhea, how do I hate thee? Let me count the ways......

 

This is definitely a common problem! When necessary, go for the Imodium. Ya

gotta do what ya gotta do. Which includes copping a squat in the woods when

necessary. I find that loading up on flax meal and yogurt in the days after an

episode help prevent the constipation that can follow Imodium use.

Coryad Rookie
Coryad
Posted

I rely on imodium too... I have to travel a great deal for work, I never go anywhere unless my bottle is full :D  I will have to try the flax idea for afterwords so I can maybe escape the constipation.... the things we put up with LOL

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    • trents
      Should I get a second opinion?

      By trents · Posted

      I would ask the GI doc about the elevated IGA score of 401. That one is what we commonly refer to as "total IGA" and also known as "Immunoglobulin A (IgA)". It could be nothing but it can also indicate some other health issues, some of them serious in nature. I would google potential causes for that if I were you. Also, if there is a chance the GI doc will want to do more testing for celiac disease, either antibody testing or an endoscopy with biopsy, you should not cut back on gluten consumption until all celiac disease testing is done. Otherwise, you will invalidate the testing.
    • shell504
      Should I get a second opinion?

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      Hello. I apologize. I didn't know there wasn't a standard.  The standard listed  for the IGA is normal range 47-310.  The others were all listed as <15.0 u/l is antibody not detected and 15> antibody is detected.  And the negative one the standard is negative.  It is a normal PCP dr. I do have a second opinion appt scheduled with a GI specialist in 2 weeks. Honestly, I haven't cut out gluten at all. I just switched to whole fibers and everything has been getting better. She wanted to do the test just to check, which I was fine with. We'll see what the GI dr says. Thank you for commenting. 
    • trents
      Mistakenly eating gluten

      By trents · Posted

      It is also possible that since eating the fries you have been glutened again during the week. I would double check the food in your cupboard and reread the ingredient lists. Food companies can and do change their formulations from time to time such that something that used to be gluten free is no more. What I am saying is, don't assume the distress you are experiencing comes from one incident of glutening. There could, coincidentally, be another one on it's heels. 
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      By trents · Posted

      Welcome to the forum, @shell504! The IGA 401mg/dl is not a test for celiac disease per se but a check to see if you are IGA deficient. People who are IGA deficient will produce celiac blood test antibody scores that are artificially low which can result in false negatives for the individual antibody tests such as the TTG IGA. You did not include reference ranges along with the test scores and since each laboratory uses custom reference range scales, we cannot comment with certainty, but from the sheer magnitude of the IGA score (401) it does not look like you are IGA deficient. And since there are no annotations indicating that the other test scores are out of range, it does not appear there is any antibody evidence that you have celiac disease. So, I think you are warranted in questioning your physician's dx of celiac disease. And it is also true that a colonoscopy cannot be used to dx celiac disease. The endoscopy with biopsy of the small bowel is the appropriate procedure for diagnosing celiac disease. But unless there is a positive in the antibody testing, there is usually no justification for doing the endoscopy/biopsy. Is this physician a PCP or a GI doc? I think I would ask for a second opinion. It seems as though this physician is not very knowledgeable about celiac disease diagnositcs. Having said all that, it may be that you suffer from NCGS (Non Celiac Gluten Sensitivity) rather than celiac disease. The two gluten disorders share many of the same GI symptoms. The difference is that NCGS does not damage the villous lining of the small bowel as does celiac disease. NCGS is 10x more common than celiac disease. The antidote for both is complete abstinence from gluten. Some experts believe NCGS can be a precursor to the development of celiac disease. There is not test for NCGS. Celiac disease must first be ruled out. So, if it becomes apparent that gluten is causing distress and testing rules out celiac disease, then the diagnosis would be NCGS. Hope this helps. 
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