Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advice For My 2 Year Old Son...


stephanie86

Recommended Posts

stephanie86 Rookie

Hello! My son is turning 2 in april. Ever since he was a baby he has had severe mucousy stools. At about 15 months dr finally agreed to do restriction diet and we found improvement with eliminating milk and soy. His stools did not go solid, but had SOME consistency. After complaining again to his dr she sent us to a gi because he has not gained any weight in 9 months. He has develoental and speech delays also. The gi agreed something is amiss besides toddlers diarrhea and tested for celiac, fats and sugars in stool and did a blood work up. His serum iga was in range at 53 and his ttg and tga were 3 with a range of 0-19. All his stool tests came back negative so it appears he is absorbing fats and sugars and his only deficiency is a tiny low on iron. His bun and creatinine are low which shows low muscle which we knew lol. I have not fully discussed what to do next with gi but I really thought he would be positive for celiacs with his symptoms! Has anyone had a similar experience and done biopsy anyways? I am going to do more allergy testing but I fear it will be a waste since he never has skin reactions, only gi issues. I am getting so discouraged. My lil guy is miserable...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

It is very possible that he has NCGI (non-celiac gluten intolerance), which has no test outside of the elimination of gluten from diet.

 

I have also heard that young children are quite difficult to test for it.

 

Allergies don't always turn up on the skin. My tomato allergy for example causes me to have a harsh sunburn like feeling on my head, face, neck and shoulders. I did the skin prick test and it was one of the largest hives the allergist had ever seen. Safe to say, he agreed i was allergic.

 

I've also heard that they can occur in different forms as well.

 

You could also do the genetic test, as celiac is genetic. It may not get a diagnosis, but it will give you some sort of idea of whether or not he has the potential to develop it or not.

GottaSki Mentor

Welcome!

 

With his symptoms I would insist on a full celiac antibody panel:

 

tTG IgA and IgG

EMA IgA

DGP IgA and IgG

 

You have already had Total Serum IgA -- what was the range for the test you quoted?

 

Also...more nutrient testing besides iron:

 

B1, B2, B6, B12, D, K, Ferritin, Zinc, Copper

 

Once all the blood is drawn -- I strongly suggest removing ALL gluten for at least three months...many children test sero-negative for Celiac Disease.  My own grands had all negative...yet removing gluten improved or removed all their symptoms.

 

Hang in there and ask any questions :)

stephanie86 Rookie

Thank you! The iga was pretty in the middle... not sure exact numbers. The past few days for some reason has been horrible. His stools are back to pure mucus, and he will barely eat which is weird for him! All he wants is milk... well rice milk. I am calling allergist today...

GottaSki Mentor

Oh goodness....I hope he is feeling better very soon.

nvsmom Community Regular

My boys all tested negative for celiac disease but because I am a celiac, and I suspected issues in a couple of them, I made them gluten-free as well.  I was right to do so. Two of my kids health had obvious improvements.  :) We didn't do the biopsy since it would not have changed the fact that they were going gluten-free.

 

I agree with Lisa (she gives great advice) and try the gluten-free diet when his testing is done. Hopefully he'll feel well soon.

  • 1 year later...
eebright Newbie

have you noticed a change in your child's speech delay since going gluten free? We are in that process right now as well with our 2 year old (25 mos).   Went gluten free and cow dairy free 10 days ago due to horrible constipation (and I was so tired of giving her miralax every day for over a year), and no improvement whatsoever on her speech.    I have seen huge improvement in her constipation, no longer having issues almost immediately and no miralax, but no changed in speech quite yet.   I am trying to be patient there.    So, we don't know if it is the gluten or the dairy, or both... but that's where we are today.   Any advice from anyone?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

have you noticed a change in your child's speech delay since going gluten free? We are in that process right now as well with our 2 year old (25 mos).   Went gluten free and cow dairy free 10 days ago due to horrible constipation (and I was so tired of giving her miralax every day for over a year), and no improvement whatsoever on her speech.    I have seen huge improvement in her constipation, no longer having issues almost immediately and no miralax, but no changed in speech quite yet.   I am trying to be patient there.    So, we don't know if it is the gluten or the dairy, or both... but that's where we are today.   Any advice from anyone?

 

 

You asked that question in your own, current thread here:

 

https://www.celiac.com/forums/topic/110684-food-allergies-and-speech-delay-in-toddlers/

 

Might be better to discuss your issues on your own new thread?

 

The original poster has not been on the forum for almost 2 years.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,467
    • Most Online (within 30 mins)
      7,748

    addisoncarol1615
    Newest Member
    addisoncarol1615
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rebeccaj
    • jimmydee
    • robingfellow
      The Celebrity brand Luncheon Loaf (found at dollar tree, distributed by Atalanta Corporation) is gluten free according to the distributor. I emailed their customer service line for information on the ingredients, and they contacted the vendor and followed up with me that the "starch" ingredient I was worried about is corn and potato. It should be safe.
    • trents
      Welcome to the forum, @jimmydee! Celiac disease is an autoimmune disorder, meaning the consumption of gluten triggers a response by the immune system that causes the body to attack it's own tissue. Celiac disease has a genetic base that requires some kind of trigger for the genes to be turned on. We know that there are two primary genes responsible for providing the potential to develop celiac disease and we know that about 40% of the population carries one or both of these genes. However, only about 1% of the population actually develops celiac disease. So, that tells us that something more than just having the genes is necessary in order to develop celiac disease. Something must trigger those genes to wake up and produce the active disease. It's that "something" that we are struggling to understand and that is somewhat of a mystery. But there is a growing body of evidence pointing to the culprit being a disruption of the proper balance of microorganisms in the gut. Apparently, the microorganisms that live in our intestines produce chemicals that regulate the size of the openings in the mucous lining of our small bowel. A disruption in the healthy balance of this microorganic community causes an increase in the size of the openings in the mucous lining. This in turn allows protein fragments from the food we eat that are larger than normal to invade the mucous lining where they are detected as threats by the immune system. This is what is happening with gluten for those with celiac disease. The attack in the mucous lining of the small bowel by the immune system on these incompletely broken down gluten components causes inflammation and, over time, as we continue to consume gluten, it damages the mucosal lining of the small bowel which results in the loss of efficiency of nutrient absorption. This mucosal lining is made up of millions of tiny finger like projections that create an enormous surface area for the absorption of nutrients when healthy. The "wearing down" of these millions of finger-like projections due to celiac inflammation greatly reduces the surface area and thus the ability to absorb nutrients. This in turn typically results in numerous health issues that have a nutrient deficiency base. But the answer to the question of why there seems to be an epidemic of celiac disease in recent years may not be simple. It may have many facets. First, we don't know how much of this epidemic is real and how much is apparent. That is, how much of what we perceive of as a dramatic increase in the incidence of celiac disease is simply due to greater awareness and better detection methods? Celiac disease is not new. There is evidence from ancient writings that people suffered from it back then but they did not have a name for it. And it wasn't until WW2 that gluten was identified as the cause of celiac disease. Current thinking on what is causing imbalance in gut biology has put forth a number of causes including overuse of antibiotics and pesticides, environmental toxins, fluoridation of drinking water, preoccupation with hygiene and sanitation, and the western diet. https://www.celiac.com/celiac-disease/theories-on-the-growing-prevalence-of-celiac-disease-and-gluten-sensitivity-over-the-last-half-century-video-r6716/?tab=comments#comment-25345 All this to say that I doubt your UTI or the low dose aspirin had anything to do with the onset of your celiac disease. It was probably just coincidence unless the UTI was the stress trigger that activated the celiac potential genes. The onset of celiac disease an happen at any stage of life and many people report it following a period of illness. But what is interesting about your low dose aspirin theory is that aspirin is in a class of medications known as NSAIDs (Non Steroidal Anti Inflammatory Drugs). Scientific studies have shown that long term use of NSAIDs can damage the villous lining of the small bowel in the same way as celiac disease.  The other thing I wish to point out is that unless you have actual testing done for celiac disease, you can't be sure if you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). They share many of the same symptoms, the difference being that NCGS doesn't damage the lining of the small bowel. There is no test for NCGS, celiac disease must first be ruled out. NCGS is 10x more common than celiac disease. The antidote for both is a gluten free diet.
    • julie falco
      BRAND NAME: NOT BURGER PLANT-BASED PATTIES  A product I came across labeled gluten-free bought it when I got home I read the back ingredients further to notice that it says gluten with a line going through it u will see in the attached pics.     The label says down below that it is processed in a facility that also processes "WHEAT".  I tried to put this on the Gov. website as false advertisement but couldn't do it.  Maybe on here at least the word can get out to others not to purchase anything gluten-free without throughly reading the whole label....It won't let me upload 2 pics.  says to contact manager.   The products name is Not Burger    INGREDIENTS: Water, Pea Protein, Coconut Oil, Sunflower Oil, Natural Flavors, Bamboo Fiber, Less than 2% of: Methylcellulose, Dried Yeast, Rice Protein, Salt, Cocoa Powder Processed with Alkali, Psyllium Husk, Potato Fiber, Red Beet Juice Powder (color), Chia Protein Concentrate, Spinach Powder.   Manufactured in a facility that also processes wheat and soy.          MANUFACTURED FOR: The NotCompany, Inc, 438    Treat Avenue, San Francisco, CA 94110.
×
×
  • Create New...