Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hey, I'm New To This Message Board Stuff

blb1285

By blb1285
in Meet Up Room

Recommended Posts

blb1285 Newbie
blb1285
Posted

Hey, guys, My name is Bonnie and I'm 19. I just got started on this forum and omg is it confusing. Anyway, I live in Chicago and I just wanted to meet celiacs my age from my area or throughout the country. I've been diagnosed for 8 years, went to camp celiac in RI for two years, and I just attended the CSA conference in Virginia last weekend where I helped out with their new teen program. Someone from there suggested that I get started on this and post a message. I would have a picture, but for some reason it said i wasn't able to post a personal picture. Anyway, feel free to reply and talk to me. (maybe you can help me out on how to use this message board). :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Hello Bonnie! My name is Kristina and I am 20. The message board is a bit hard at first but once you play around it gets easier!

Janelson Apprentice
Janelson
Posted

Hey there guys my name is Janelle I am 20 years old as well and just diagnoised with Celiac 3 days before my 20 b-day...what a gift! LOL I know what you mean by this site being confusing! When I first joined (because my moms wishes) I never went on it because I couldnt figure it out! Now its like my best friend.... I mean all my other friends dont understand me so at least there all of you that do! Take care all!

Janelson Apprentice
Janelson
Posted

P.S. I have a new theory...Gluten is in the air! LOL I swear I breath and I am contaminated! I left my class early the other day because I was sick and tried to explain my situation to my professor...I think he thinks I was looking for pitty! Great that is all I need!

Carriefaith Enthusiast
Carriefaith
Posted

I'm 24, a little older, but I think I can help you with the picture problem. Click on your name and then click on Avatar options at the bottom and follow the instructions. Hope this helps.

KaitiUSA Enthusiast
KaitiUSA
Posted

Welcome!

I am 18 and diagnosed almost 2 years now....you can email me anytime...my email address is at the bottom of my signature.

fisharefriendsnotfood Apprentice
fisharefriendsnotfood
Posted

Hi, I'm Jackie and I'm fourteen years old. I'm a bit younger than most people here, but I like it. It's pretty easy to figure out, don't worry.

-Jackie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


quantumsugar Apprentice
quantumsugar
Posted

Hi Bonnie!

My name is Monica, and I'm 21. The board is a lot less intimidating once you get used to it (kinda like celiac disease itself). It's nice to "meet" you, and feel free to message me.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,816
    • Most Online (within 30 mins)
      7,748
    Shamrock HVAC Services
    Newest Member
    Shamrock HVAC Services
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Years of testing - no real answers

      By knitty kitty · Posted

      Welcome to the forum, @Kiwifruit, I agree further testing is needed.  Disaccharidase deficiency is a symptom of Celiac disease.   On your test results, this line  "IgA: 0.9 g/l (norm 0.8 - 4.0)" is referring to Total IgA and it's very low.  People with low or deficient Total IgA should also have DGP IgG test done.  Low Total IgA means you are making low levels of tTg  IgA as well, leading to false negatives or "weak positives".  Maybe a DNA test for known Celiac genes.   Anemia, diabetes, and thiamine deficiency can cause test results like these.  Get checked for B12 deficiency anemia and have your iron (ferritin) checked.  Vitamin D deficiency is common, too.   Might be time to find a gastrointestinal doctor who is more familiar with diagnosing Celiac Disease.   Best wishes on your journey!  Please keep us posted on your progress.  
    • trents
      Celiac Test Results - Thoughts?

      By trents · Posted

      Yes, there is a trend in the medical community to forego the endoscopy/biopsy and grant an official celiac diagnosis based on high tTG-IGA antibody scores alone. This trend started in the UK and is spreading to the USA medical community. And yes, 5-10x the normal level is what I have been seeing as the threshold as well. Here is the relevant section dealing from the article above dealing with the importance of the total IGA test being ordered. See the embedded attachment.
    • hmkr
      Celiac Test Results - Thoughts?

      By hmkr · Posted

      Ok, interesting. Not what I was thinking that meant. I'm reading the article and trying to understand. I see this “According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy” My IgG is 90, which is 6 times. So to me that means it's highly likely I do have it. 
    • trents
      Celiac Test Results - Thoughts?

      By trents · Posted

      It just means you aren't IGA deficient, i.e., that IGA deficiency cannot have given you artificially low scores in the individual IGA celiac antibody tests. This is explained in the article Scott linked above.
    • hmkr
      Celiac Test Results - Thoughts?

      By hmkr · Posted

      Normal range: 70 - 400 mg/dL, a little above middle of the range. So what does that mean? Thank you! I will check out that page you linked. Appreciate it! 
×
×
  • Create New...