Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To This And Need Help


joeessex

Recommended Posts

joeessex Rookie

hi all my name is joe ! anyhow i am 27 years old and in around September i kept feeling mysteriously ill and getting alot of anxiety and depression mainly anxiety and feeling ill all the time, sick dizzy a feeling of not myself stomach pains and cramps alot of feeling ill after eating someday ok other days very bad flu like symptoms feeling foggy in the head panic attacks 2 of my main symptoms where red eyes or like a blood shot eye and post nasal drip constant swallowing basically i want feeling well lol in lots of ways anyway i noticed in around December January that i would feel ill after eating certain types of foods pastry ect and other things so around 2 and a half weeks ago the anxiety had gotten good and i decided after reading about celiac and gluten intolerance to compleatly cut out gluten even in condiments toothpaste i cut it completely out the very nexy day i still felt abit ill but slightly less i then felt iller than before i almost like withdrawal symptoms they soon went and i didnt feel ill any more my red eyes that where red almost everyday compleatly went the post nasel drip stopped almost other night with the red eyes and i didnt feel sick after eating anymore my stools started to look better and within a week i was feeling great like i hadent felt in a long while then 5 days ago i eat somethings that contain glutain without knowing i let my guard down and within one hour i started to feel sick and then i had ditherer bad aswell i felt very anxious the next day i felt sick ill had slightly red eyes and the post nasel drip was back the day after that i felt abit dizzy and very sick afetr eating and more runny stools then the day after i felt a bit better then we get to today post nasil drip has gone ted eyes gone anxiety good no depression and dont feel sick atall doctor thinks i have had a virus along with anxiety but the nutritionist thinks the proofs in the pudding and i am gluten sensitive ok sorrry for lack of punctuation as i am not good at typing thanks for reading my post i have enjoyed learning about celiac and what i can and cant eat i would like really for as people with epericance your thoughts on what i have gone throgh kind regards joe  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cara in Boston Enthusiast

Resume eating gluten and go to the doctor for a blood test.  I definitely sound like you are intolerant.  If you don't feel you need an "official" diagnosis, stop eating gluten 100% - be careful of even the smallest amounts and cross contamination.  

 

I had many of your symptoms.  Most were gone within a week, some took a little longer.  Now if I accidentally have gluten - even the tiniest amount, I am sick for days.  It can take weeks for me to get back to normal.  I don't make mistakes often.

 

Good luck to you.

 

Cara

joeessex Rookie

Resume eating gluten and go to the doctor for a blood test.  I definitely sound like you are intolerant.  If you don't feel you need an "official" diagnosis, stop eating gluten 100% - be careful of even the smallest amounts and cross contamination.  

 

I had many of your symptoms.  Most were gone within a week, some took a little longer.  Now if I accidentally have gluten - even the tiniest amount, I am sick for days.  It can take weeks for me to get back to normal.  I don't make mistakes often.

 

Good luck to you.

 

Cara

 

 

Resume eating gluten and go to the doctor for a blood test.  I definitely sound like you are intolerant.  If you don't feel you need an "official" diagnosis, stop eating gluten 100% - be careful of even the smallest amounts and cross contamination.  

 

I had many of your symptoms.  Most were gone within a week, some took a little longer.  Now if I accidentally have gluten - even the tiniest amount, I am sick for days.  It can take weeks for me to get back to normal.  I don't make mistakes often.

 

Good luck to you.

 

Cara

thanks Cara i am feeling better and better everyday the further away from gluten i get in time the greater i feel!   i am not going to eat nasty gluten and feel rubbish as far as i am concerned i have confirmed proof i am intolerant and i look forward to feeling great in my new lifestyle thanks : )

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,253
    • Most Online (within 30 mins)
      7,748

    MI-Hoosier
    Newest Member
    MI-Hoosier
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @MI-Hoosier! You are operating on a misconception about your "mixed" test results. You only had two celiac disease diagnostic tests run out of six that could have been ordered if your doctor had opted for a complete celiac panel. It is perfectly normal to not test positive for all possible celiac disease diagnostic tests. That is why there is more than one test option. It is the same way with other diagnostic testing procedures for many or most other diseases. Generally, when diagnosing a condition, a number of different tests are run and a diagnosis is arrived at by looking at the total body of evidence. The tTG-IGA test is the centerpiece of celiac disease blood antibody testing and the one most commonly ordered by doctors. You were strongly positive for that test. It was not an unequivocal result.  Having said that, it is standard procedure to confirm a positive celiac disease blood antibody test result with an endoscopy/biopsy which is still considered the gold standard of celiac disease diagnosis. Had your tTG-IGA been 150 or greater, your doctor many have opted out of the endoscopy/biopsy. The absence of GI distress in the celiac disease population is very common. We call them "silent celiacs". That can change as damage to the lining of the small bowel worsens. Elevated liver enzymes/liver stress is very common in the celiac population. About 18% of celiacs experience it. I was one of them. Persistently elevated liver enzymes over a period of years in the absence of other typical causes such as hepatitis and alcohol abuse was what eventually led to my celiac disease diagnosis. But it took thirteen years to get that figured out. Within three months of going gluten free my liver enzymes were back into normal range. Thank goodness, there is more awareness these days about the many long fingers of celiac disease that are not found in the classic category of GI distress. Today, there have been over 200 symptoms/medical conditions identified as connected to celiac disease. It is critical that you not begin a gluten free diet until your endoscopy/biopsy of the small bowel is over. Doing so before that procedure will invalidate it because it will allow healing of the small bowel lining to begin. Here is a link to an article covering celiac disease blood antibody testing:  
    • MI-Hoosier
      Hi,  I was recently diagnosed with stage 3 NASH and doctor is concerned something is caused my disease to progress quicker than they would expect.   During blood tests a celiac screen was pulled as my mom is a celiac. My ttg was a 49.4 (normal >15) but my endomysial antibody was negative. I have never had gluten symptoms and no issues with bread and am 54. Do I need a biopsy to rule celiac in or out with this mixed test? Any thoughts are appreciated.  
    • Sunshine4
      Many apologies for somehow changing your first name Scott! 
    • Sunshine4
      Mark, do you have suggestions as to celiac centers that could be helpful? Oklahoma/Texas neurologists have only offered me the “eat gluten free” advice and then when I ask about the hands or muscle twitching they said they just don’t know. I appreciate your great information on supplements, thank you for your help!  Scott, do you have suggestions as to celiac centers that could be helpful? Oklahoma/Texas neurologists have only offered me the “eat gluten free” advice and then when I ask about the hands or muscle twitching they said they just don’t know. I appreciate your great information on supplements, thank you for your help! 
    • Scott Adams
      It sounds like you’ve been through a challenging journey since your celiac diagnosis, especially with the unexpected neurologic symptoms like muscle twitching and hand tremors. While celiac disease is primarily known for gastrointestinal issues, it’s important to recognize that it can also manifest in non-GI ways, including neurological symptoms. Research has shown that celiac disease can sometimes be linked to conditions like gluten ataxia, peripheral neuropathy, or even myoclonus (involuntary muscle twitching), which might explain what you’re experiencing. The fact that your symptoms have fluctuated with dietary changes suggests a possible connection, even if it’s not yet fully understood by your local neurologists. It might be worth seeking out a specialist who has experience with celiac-related neurological issues or consulting with a celiac-focused research center. In the meantime, staying strict with your gluten-free diet is a good step, as even small amounts of gluten can trigger immune responses that may contribute to these symptoms. You’re not alone in this—many with celiac report similar struggles, and connecting with online communities or support groups could provide additional insights and reassurance. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...