Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Toothpaste? But Clutching At Straws Here.

jhol

Recommended Posts

jhol Enthusiast
jhol
Posted

hi,

 

ive been having a problem with breakfast, mainly because i havent been able to find a suitable milk replacement. ive tried them all almond milk, hazelnut milk, rice milk, chocolate flavour milk and every time my mouth feels odd. cant describe it just feels like im having a reaction in my mouth . i thought today - wonder if it not the milk at all but possibly my toothpaste. im using colgate which i think is ok but wondered if it could be the fluoride or some ingredient in it.

 

anybody else have a problem with toothpaste? looks like im gonna have to try an organic brand to check.

thanks..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Takala Enthusiast
Takala
Posted

Watch out, not all organic type items are more or less likely to be gluten free or not, it is the ingredients and the labeling that you have to worry about. 

 

Baking soda and water makes a perfectly fine toothpaste substitute, while you are doing the Great Product Search. 

 

(the milk... have you tried coconut milk yet ?)

Adalaide Mentor
Adalaide
Posted

In my search for a dairy replacement, I noticed that everything I tried just felt different in my mouth than milk felt. I'm not sure if that is maybe what you are experiencing? It didn't feel bad, just different than what I was used to.

 

I use Earthpaste, which is gluten free. It is not corn free, the sweetener in it is sourced from both corn and birch.

  • 2 weeks later...
learning2cope Apprentice
learning2cope
Posted

Any non-dairy milk will not have the same mouthfeel as dairy milk. All the non-dairy milks I've tried are more watery and definitely have less fat which could be the issue you are experiencing. Typically those "milks" have a lot less fat and are less creamy than dairy milk. It's essentially water extracted from the plants/beans/whatever and sold to the consumer. The only milk I can stand is sweetened low fat soy milk. I've tried coconut milk, almond milk and years ago a non-dairy creamer and they all were so gross to me. The non-dairy creamer had the mouth-feel of milk but its taste was horrible.

 

As a kid I would get moody and irritable and downright mean when I would ingest milk so mom had to take me off of it, substituted the non-dairy creamer. I hated it and eventually quit eating cereal.

 

Now that I'm experiencing atypical and some typical signs of celiac disease I am exploring all my options and have found that IF I do develop an intolerance to milk/dairy I would switch to soy milk products. Dad already buys soy milk because of his lactose intolerance. But I rarely eat cereal, mainly due to my diabetes (spikes in blood sugar) so that limits my milk intake anyway. I don't anymore just go and drink a glass of milk. I used to last year. But last year my hunger hit an alltime high even if I had eaten a large meal, an hour later I'd be starving again. Needless to say I have gained over 100 pounds in just a few short years (poss. sign of celiac disease) and developed neuropathy which we originally thought was from my diabetes. Now I question that association.

 

Sorry for the long post. I guess I didn't really need to mention all that. But yeah any non-dairy milk is not going to feel the same in the mouth as dairy milk.

 

Oh and I know that Crest Pro Health toothpaste causes burning in the gums and cheeks for me, and it makes my gums and cheeks peel, the skin dies and gets replaced fast since the mouth always heals very fast. So I peel off skin from my cheeks because I can feel it and it's gross!! Needless to say I don't ever use Crest Pro Health anymore. I use Colgate Pro Enamel. It doesn't cause that reaction to me. Maybe you are having the same issue?

dilettantesteph Collaborator
dilettantesteph
Posted

You could try skipping toothpaste for a couple of days and see if it makes a difference.  I would guess that it is something else.  Another thing, do you get reactions right away?  It takes me until the next day to know so that it could have been anything I ate the day before.

jhol Enthusiast
jhol
Posted
  • Author

Any non-dairy milk will not have the same mouthfeel as dairy milk. All the non-dairy milks I've tried are more watery and definitely have less fat which could be the issue you are experiencing. Typically those "milks" have a lot less fat and are less creamy than dairy milk. It's essentially water extracted from the plants/beans/whatever and sold to the consumer. The only milk I can stand is sweetened low fat soy milk. I've tried coconut milk, almond milk and years ago a non-dairy creamer and they all were so gross to me. The non-dairy creamer had the mouth-feel of milk but its taste was horrible.

 

As a kid I would get moody and irritable and downright mean when I would ingest milk so mom had to take me off of it, substituted the non-dairy creamer. I hated it and eventually quit eating cereal.

 

Now that I'm experiencing atypical and some typical signs of celiac disease I am exploring all my options and have found that IF I do develop an intolerance to milk/dairy I would switch to soy milk products. Dad already buys soy milk because of his lactose intolerance. But I rarely eat cereal, mainly due to my diabetes (spikes in blood sugar) so that limits my milk intake anyway. I don't anymore just go and drink a glass of milk. I used to last year. But last year my hunger hit an alltime high even if I had eaten a large meal, an hour later I'd be starving again. Needless to say I have gained over 100 pounds in just a few short years (poss. sign of celiac disease) and developed neuropathy which we originally thought was from my diabetes. Now I question that association.

 

Sorry for the long post. I guess I didn't really need to mention all that. But yeah any non-dairy milk is not going to feel the same in the mouth as dairy milk.

 

Oh and I know that Crest Pro Health toothpaste causes burning in the gums and cheeks for me, and it makes my gums and cheeks peel, the skin dies and gets replaced fast since the mouth always heals very fast. So I peel off skin from my cheeks because I can feel it and it's gross!! Needless to say I don't ever use Crest Pro Health anymore. I use Colgate Pro Enamel. It doesn't cause that reaction to me. Maybe you are having the same issue?

hi,

yes i do have a problem with the texture of the milk. i use just enough to wet the cereal now .ive also had the peeling skin on the inside of my mouth - i thought id just chewed it or scratched it.i used to scrape it off with my fingernail !!! maybe it is the type of toothpaste i use, i,ll change it and see if it makes a difference. ta

jhol Enthusiast
jhol
Posted
  • Author

You could try skipping toothpaste for a couple of days and see if it makes a difference.  I would guess that it is something else.  Another thing, do you get reactions right away?  It takes me until the next day to know so that it could have been anything I ate the day before.

hi,

im off work tomorrow so i might just skip toothbrushing and have breakfast first for a change. im currently waiting for allergy tests - i get reactions in my mouth about 15-20 mins after eating . not gluten reactions , just more intolerences..fruit and stuff

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lizardloo Newbie
lizardloo
Posted

I have trouble with toothpaste (have for years), but mine is a problem with the preservatives.  Something to look into anyway.  I cannot use any of the major brands but Toms, Trader Joe's, and Jason are all good brands I can use without problems.

Gemini Experienced
Gemini
Posted

In 8 years gluten-free, I have yet to find a toothpaste that does contain gluten.  Colgate and Crest brands are safe.

 

As far the reaction you describe with Colgate Pro-Health with regards to the shedding of tissue on your cheeks, the same thing happened to me.  My dentist said he was noticing this in a  number of his patients and advised me to switch to another brand.  He had no explanation of why it was happening but thought that for some people, it was a mouth irritant.  It had nothing to do with any potential gluten exposure.  I also have Sjogren's Syndrome so the tissue shedding may be because I have dry mouth and the toothpaste may have been too irritating for me, although I noticed no outright irritation or burning.  The tissue was just shedding on the inside of my mouth on the cheeks. It was not "tissue death" as you described but just irritation.

I now use Colgate Sensitive and it works just fine.

Krystenannette Newbie
Krystenannette
Posted

I have been having issues with my head. Like really bad dry scalp and sores and I was just recently diagnosed and switched to a shampoo called derm organic and I have seen a huge improvement!!!

Juliebove Rising Star
Juliebove
Posted

I have a problem with toothpaste but it's likely not your problem.  My problem?  Mint!  I thought I needed a paste for sensetive teeth and thankfully someone here located one online that is free of all flavorings.  I have no problems with it except that it is a bit weird with no flavor.  I also can not have clove and that is in a lot of mouth products.  I wound up using Closeup.  It's cinnamon flavored and causes me no problems.  Turns out that I do not have sensitive teeth at all!

 

As for the cereal, I have never liked milk on it so when I eat it, and that's rarely, I eat it dry.  But I also know people who dampen theirs with a little apple juice.  You might try that if you can't stand it dry.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,724
    • Most Online (within 30 mins)
      7,748
    HNB
    Newest Member
    HNB
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By cristiana · Posted

      Hi Marie Welcome to the forum. I am so sorry your daughter is pointing the finger at you like this.   I am afraid children of any age can be very cruel to their parents - I certainly look back at some of the things I said to my mother and father in the past, and wish I could unsay them.  Sometimes people just need a safe place to vent, and unfortunately having a go at one's parents is the all too easy option.  If she is anything like me, she will regret what she says one day.  (Oh... if only I had the chance rewind the clock!) I just wanted to add one more thing to Trent's and Scott's excellent posts and that is regarding diet:  I have to say, not one person  (my nutritionist, my gastroenterologist or GP) has EVER suggested that a poor diet was the cause of my coeliac disease.    In all the various clinics I have attended these past nearly 12 years no-one has ever asked if I was brought up on processed food, or questioned if I eat 5 fruit and veg a day.  Sure, unfortunately I am only too well aware that I could do a lot better with my diet and it's a constant challenge for me not to give into what I like (unfortunately I've always had a sweet tooth).   But I know some super healthy 10 fruit and veg a day types who still got coeliac disease, and equally, a lot of people who eat all the wrong stuff and they still have cast iron stomachs. Do encourage her to get checked though - it may be that she hasn't got coeliac disease at all. Come back to us if you need any more support through the process. Cristiana
    • trents
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By trents · Posted

      Welcome to the forum, @Marie70! The first thing to know is that celiac disease has a genetic base. The two main genes that have been identified as providing the potential to develop celiac disease are HLA-DQ2 and HLA-DQ8. About 40% of  the general population carries one or both of these genes. However, only about 1% of the general population ever develops celiac disease. So, we know that in addition to possessing the genetic potential to develop celiac disease, there has to be some triggering environmental or medical "stress" factor (or factors) that switches the gene or genes on such that they are awakened from their latent condition and become active. What may be the triggering factor (or factors) is the subject of much debate. Here is an article that discusses this subject: Second, what will your daughter have to say if her testing for celiac disease is negative? She may have to add crow to her diet. Third, and this is what I really want to focus on because my wife and I are dealing with something similar in our relationship with our own adult daughter: the real problem is not whatever shortcomings you, as the family cook, may have had when providing meals, the real problem is with your daughter's heart/soul/attitude. If it turns out to be true that she has celiac disease, it is likely she would have developed the condition sooner or later even if her diet had been healthier while growing up. She is angry about the prospect of having to deal with the dietary and social limitations that having celiac disease would impose upon her. She doesn't want to face up to the fact that this may be a new reality that will dramatically changer her life and she is looking for someone or something to blame. And she has conveniently turned her wrath on you rather than saying to herself, "Okay, this is what it is. Now what can I do to make adjustments in order to with it the best way I can?"  When faced with a life-changing reality, people will either accept it for what it is, make adjustments and move on or they will become angry and look for something or someone to blame and get stuck. For now, at least, your daughter has chosen the latter option. Don't let her problem destroy both of you.
    • Scott Adams
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Scott Adams · Posted

      It sounds like you’re carrying a lot of guilt, but please know that you didn’t cause your daughter’s potential celiac disease or your son’s Crohn’s. These conditions have strong genetic components, and while diet can influence symptoms, it does not cause autoimmune diseases. You did the best you could with the knowledge you had at the time, and no parent is perfect. Your daughter’s frustration is understandable, but it’s likely coming from a place of fear and uncertainty rather than true blame. Let her get tested, and if she does have celiac disease, you can support her moving forward. Instead of focusing on guilt, try shifting the conversation toward healing and learning together. You’re not alone, and you don’t deserve to carry this weight on your own. This article might be helpful. She needs to be screened for celiac disease before she can be sure that she has it. Another approach not discussed in the article is a genetic test for celiac disease, which she could do without eating gluten.      
    • Marie70
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Marie70 · Posted

      Hello, My mid twenties daughter is blaming my husband and I for her celiac disease.  She has not been diagnosed at all, but GOOGLE has informed her she has it.  She is going to go get tested now, but my question is, did we?  I was not the best cook while she was growing up and often made quick processed food for meals.  She is blaming us for what she ate growing up and is angry that we didn't feed her better.  I don't know how to react and all I could tell her was I was sorry.  Her older brother has Crohn's disease and he was diagnosed as a teenager.  She is also furious with us that we didn't change his diet either.  I don't know why I didn't and I am having so much guilt I don't even know how to handle this situation.  Both sides of our family have a history of IBS, Celiac and Crohn's disease.   I guess I just wanted to hear from anyone out there that can either point blame at me (I can accept it) or tell me that the food she ate growing up didn't have an affect on her.  I am thinking it most likely did. Thank you, Marie
    • RMJ
      High blood test numbers - with scales. Any advice?

      By RMJ · Posted

      I’d say celiac is likely.  Please continue to eat plenty of gluten until your endoscopy to be sure that any gluten-related damage can be seen.  Plus it gives you one last chance to enjoy your favorite gluten-containing foods. I hope the endoscopy/biopsies give you a definitive answer. 
×
×
  • Create New...