Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Often To Test?

shelly40

Recommended Posts

shelly40 Rookie
shelly40
Posted

Hi all!

 

I was diagnosed with celiac in November. Since I was diagnosed, my whole family is going through the testing process.

 

I know I carry both genes.  My boys (9 and 11) were tested and while they also carry the genes, they don't have celiac.  So far, neither of my sisters have celiac.   One of my nephews tested postive for celiac.  I have 2 other nephews who were tested last week and we're awaiting the results. 

 

My question is about my two boys. How often should they be retested?  My ped is not very knowlegable about celiac and will test as often as I want.   I plan to talk to my GI about it but have found very useful info here too.

 

What have others on this forum done? 

 

TIA!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Open Original Shared Link

I’ve tested with the genes for celiac disease, but I haven’t yet shown any symptoms for it. What should I do?

We recommend that you undergo a blood screen every 2-3 years or immediately upon the appearance of symptoms. This is especially true for 1st-degree relatives (parents, siblings, children) of someone with celiac disease.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,373
    • Most Online (within 30 mins)
      7,748
    EvsMommy
    Newest Member
    EvsMommy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Levi
      Refractory or super sensitive?

      By Levi · Posted

      I have taken D2 50K oral capsules once weekly for 7 years consecutively due to a dangerously low deficiency level of 17. It took 3 whole years before I reached D level 34, followed by higher D levels up to low 70s. Two or three times throughout the following 4 yrs my labs would show slight high TSH (hypothyroidism). Is it possible that the last 4 of the 7 consecutive years of D2 50K which gradually increased my D levels to 60s & 70s is causing current labs of high TSH, even though for at least the last 4 months I have reduced my D2 50K intake to half dosage, every other week vs. weekly? 
    • Scott Adams
      Can celiac cause widespread pain??

      By Scott Adams · Posted

      Untreated celiac disease is associated with arthritis and other autoimmune diseases which can cause such pain. These categories have research articles on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/fibromyalgia-and-celiac-disease/ https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/arthritis-and-celiac-disease/
    • Paula Andrews
      Can celiac cause widespread pain??

      By Paula Andrews · Posted

      Hi! Did anyone experience severe body aches prior to being diagnosed?  Last year I suddenly experienced widespread pain, completely unexplained. After numerous tests with normal results I was diagnosed with fibromyalgia in August and started taking Cymbalta, which helped about 80%. Now other than pain, I did not have any additional fibromyalgia symptoms.    In the following months I started experiencing diarrhea, to the point where it was constant. In January I was diagnosed with celiac disease and microscopic colitis after having an endoscopy/colonoscopy. I've been gluten-free since that day and recently my pain level has dropped to ZERO.  I'm starting to wonder if I even have fibromyalgia, or if all of my symptoms were celiac and colitis.  I've seen several doctors and no one suggested this, but from what I'm reading it sounds possible.  The fact that I was diagnosed with two different diseases within a few months also seems odd. Has anyone else experienced all-over body aches with celiac?  And if so did the pain end after eliminating gluten?  Unfortunately I don't know anyone who has either celiac or fibromyalgia to talk to.
    • Scott Adams
      Help Understanding Test Results

      By Scott Adams · Posted

      Understood, and with any positive blood test the usual next step is a biopsy to confirm celiac disease, and this would be true even if the tTg-IgA is negative.
    • Levi
      Everyday life

      By Levi · Posted

      ADA, if that applies to you, has specific procedures, guidelines, rules, and regulations for employers to accommodate employees with disabilities. Check with your company HR Dpt. As Scott has mentioned this would be a quick fix, with the protection afforded employees with disabilities through ADA there is no need for you to job hunt. Hope this helps.    Ps. Coeliac Disease is now a listed Disability in the U.S.  
×
×
  • Create New...