Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Meet Me In Chat 1 Pm Pacific Wednesday, April 10


1desperateladysaved

Recommended Posts

1desperateladysaved Proficient

I keep going in chat and not finding anyone but me to talk to. So, tomorrow at 3 pm central, be there if you can.

 

Subject:  Coping with Celiac Disease.   Whatever about it.

 

Edited, because I need to take the children to gym at 1, although, if I can I will check at 1 since I made the error.  I also can't change the subject. 

 

Diana


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Is that central time US? Are you serving tea and snacks? :)

mushroom Proficient

I won't be there but will send a cream and raspberry cupcake from where I am having "tea".

GottaSki Mentor

I don't do well with the chat feature....but someone save me a cupcake -- which I will carefully freeze for when I get such treats back...hmmm.. i wonder how those freshly baked bagels from mariposa bakery in sf are doing in deep freeze? 

 

Sorry Diana - Shroomie and Karen mentioned sweet treats and my mind went wandering.....

1desperateladysaved Proficient

I better just have water  and there isn't too much chance of cross contamination?  Go ahead and make your favorite cupcakes, though and (Barring discussion about it) I will never have to know!  I just got a recipe for cupcakes, I printed it off, and expect that I will be able to use it one day.

 

Lisa, and whoever else is having thoughts about sweet treats.  It is okay mentioning it just now.  Sweet treats aren't even sounding good.

 

If anyone cares to talk by Skype some day.  I have it, but need my children to help me with it!  I hope it wouldn't be urgent.

 

I have some strawberries Perhaps we could share those?

kareng Grand Master

I . So, tomorrow at 3 pm central, be there if you can.

 

 

 

Edited, because I need to take the children to gym at 1, although, if I can I will check at 1 since I made the error.  I also can't change the subject. 

 

Diana

 

 

That's 1 pm on the west coast!  Your title is still right.   :D

1desperateladysaved Proficient

I got out of the gym.  I will plan to be there at both 1 and 3 pm central time.  If nobody is there, I will leave after 15 minutes.

 

And yes 1pm Pacific.

 

Diana


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

I'm in class all day ... take care!

1desperateladysaved Proficient

It is less then 10 minutes.  I am getting ready.

dilettantesteph Collaborator

Whoops, I meant to be there and forgot.  Did anyone show up?

1desperateladysaved Proficient

Yes, four of us did.  I recommend the idea of posting a "meeting" like this in the future.  Having a certain topic could be a good thing.  Having a super-sensitive group, or decades undiagnosed group, or possibly a group of people home during the day could be fun.  A  question time for Newbies, perhaps?  I am not volunteering for that one.  I think I would scare everyone away with my current can't eat list.    My personal favorite might be a group that comes from an alternative medicine group!

 

I am still looking for Dr. Phil, in order for him to tell me that my symptoms are all in my head and I can return to normal diet.  After all, I have only had 3 doctors confirm my celiac!  Somehow, I doubt that will happen for me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Bebygirl01's topic in Related Issues & Disorders
      1

      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

    2. - Bebygirl01 posted a topic in Related Issues & Disorders
      1

      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

    3. - Scott Adams replied to Dawn Meyers's topic in Related Issues & Disorders
      21

      Vaccines

    4. - knitty kitty replied to Dawn Meyers's topic in Related Issues & Disorders
      21

      Vaccines

    5. - knitty kitty replied to Tyoung's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      8

      Increasing symptoms after going gluten free


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,005
    • Most Online (within 30 mins)
      7,748

    anjie patterson
    Newest Member
    anjie patterson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @Bebygirl01, if you want to play word games with the term, "gluten", we can do that. The proteins you list in these other cereal grains besides wheat, barley and rye are somewhat different from that found in wheat, barley and rye and, technically speaking, are not "gluten". Technically speaking, "gluten" should only be applied to a particular protein found in wheat, barley and rye. These other cereal grain proteins have their own names (avenin, secalinin, zein, etc). Unfortunately, confusion has been created in popular and pseudo scientific literature by the informal use of the term "gluten" when talking about the proteins found in these other cereal grains such that you sometimes read about "corn gluten", "oat gluten", "rice gluten", etc. But these are actually misnomers, with "gluten" having been added on as an informal appendage to the actual protein names. Having said that, the protein structures of these other cereal grains is close enough to gluten that, for some people, they can cause a celiac type reaction. But this is not true for most celiacs and those who fall into the NCGS category. Apparently, it is true for you. This whole idea that cereal grains are bad for all of us has been popularized by books such as Dangerous Grains for years but it is not a widely accepted idea in the scientific community.
    • Bebygirl01
      On my Celiac journey and discovered I was also reacting to other types of gluten. The FDA in it's finite wisdom only classifies 'wheat, barley and rye' as the gluten's to be considered when a company tests for and stamps their products as gluten free. I am curious as to how many of you are aware of the other types of glutens? And another question to those on a 'traditional' gluten free diet , who are also still sick and struggling, are you also reacting to these other types of gluten as listed below? NOTE:  The new movement if you want to call it that, is now called 'grain free' and that is the true definition of gluten free. I no longer suffer with ataxia, confusion, anxiety, depression, OCD, Insomnia, ADD, acid reflux, dermatitis herpetiformis, migraines, headaches, and weight issues all due to going 'grain free'. I hope to reach as many of you out there that are still struggling and unaware of what might be setting you off such as my most recent glutening was from a vegan supplement that contained 'magnesium sterate' and 'glucose syrup' both of which are from Zien (zane) gluten at 55%. I was covered in sores that were bleeding, I was seeing squigly lines when I was trying to drive, had acid reflux, insomnia, and nightmares all from the gluten in Corn. Here are the other types of glutens that Celiacs and Gluten Intolerant people also react to: Wheat -Alpha Gliadin Gluten- 69% Rye - Secalinin gluten-30-50% Oats-Avenin gluten -16% Barley-Hordein Gluten -46-52% Millet-Panicin Gluten-40% Corn-Zien Gluten -55% Rice-Orzenin Gluten-5% Sorghum-Kafirin gluten-52% and Teff-Penniseiten Gluten 11%.
    • Scott Adams
      I just want to mention again that IF thimerosal is used in a flu vaccine the amount of ethylmercury in a single vaccine dose would be extremely small, typically around 25 micrograms (µg) or less. For context, this is much lower than the levels of methylmercury found in some seafood. Ethylmercury is metabolized and excreted from the body much faster than methylmercury. Its half-life in the blood is about 7 days, compared to methylmercury, which can persist for months. The dose of ethylmercury in vaccines is far below the threshold known to cause toxicity so would not require chelation.
    • knitty kitty
      If you have poor reactions to vaccines, preservatives, sugar alcohols and metals, you may be deficient in Thiamine Vitamin B1.  Thiamine is needed in the immune response and production of antibodies.  Thiamine can be depleted by vaccines if you are already low to begin with due to the Malabsorption of Celiac Disease.  Thiamine can be destroyed by sulfide preservatives in vaccines, which can result in the body's poor response to vaccines.  Thiamine also chelates metals which allows those metals to be removed in the feces.  Chelation removes thiamine from the body, resulting in a state of thiamine deficiency.  Sugar alcohols need to be processed through the liver using thiamine.  Again, if you're low in thiamine as many Celiac are because of the Malabsorption of celiac disease, vaccines can be a tipping point, resulting in a thiamine deficient state. High doses of Thiamine required to correct thiamine deficiency states are safe and nontoxic.  Thiamine has no toxicity level.  Thiamine and the other B vitamins need to be taken together because they interact together to sustain health.   References: https://pubmed.ncbi.nlm.nih.gov/25542071/ https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/
    • knitty kitty
      @Pasballard, Keep in mind those gluten free processed snacks are not required to have vitamins and minerals added to them to replace vitamins lost in processing like gluten containing products.   We need the eight essential B vitamins to turn those carbs into energy to fuel our bodies and make enzymes that sustain life.  Sudden weight gain (or weight loss) can be symptomatic of Thiamine Vitamin B1 deficiency.  Thiamine is the B vitamin with the shortest storage time, and so  thiamine deficiency shows up first with vague symptoms like weight gain or loss, fatigue, not sleeping well, achy or cramping muscles, digestive issues and headaches.   Taking vitamin and mineral supplements helps boost your body's ability to absorb these nutrients which keeps our bodies healthy.  B Complex vitamins and Vitamin D (which regulates inflammation) are usually low in people with Celiac disease.  Talk to your doctor and nutritionist about supplementing.
×
×
  • Create New...