Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Experienced This?


Danijela

Recommended Posts

Danijela Contributor

Hey everyone!!!

I was just wondering if anyone in here suffers also from hypoglycemic like attacks ..

I just had one and they really scare me!

the thing is when i go through this my sugars are at a normal level

however eating does slowly stop the attack.

when i expalained to my DR what was happening he said that by definition i was having a hypoglycemic attack which didn't make sence to him cause my sugars were in normal range.

Ive noticed that this happens to me if i dont eat every 3-4 hours yet sometimes i can go 6 hours with out eating and this doesn't happen... the only connection that i have made with these attacks is they do happen more often around my period???

does anyone else have this same problem if so i'd appreciate a responce

these things terrify me to no end becasue sometimes when it happens i'm not thinking straight and don't think to eat and they get progressivly worse....

my heart races, i shake, my vision blurres, i stumble, my hands and feet go really cold, i also get short of breath....

thanks for the support!!! :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

I was having these episodes for awhile but I think it may have been from too much thyroid meds. I started a thread on this a few weeks back....apparantly lots of people get these "attacks".

Open Original Shared Link

Danijela Contributor
I was having these episodes for awhile but I think it may have been from too much thyroid meds. I started a thread on this a few weeks back....apparantly lots of people get these "attacks".

Open Original Shared Link

<{POST_SNAPBACK}>

During most of these attacks I'm not actually hungry thats why they creep up on me and take over...If i was hungry i'd know they were coming...

Guest Kalynn
During most of these attacks I'm not actually hungry thats why they creep up on me and take over...If i was hungry i'd know they were coming...

<{POST_SNAPBACK}>

Hi. I'm new here too and pre-diagnosis as well. I go Monday to have my bloodwork done. These attacks that you are describing actually sound like panic/anxiety attacks. I know how frightening it is because I have suffered from them as well. From all of the research that I've done, I've learned that celiac disease can actually interfere with your seratonin levels, which could result in anxiety/panic attacks. I always thought I just have problems handling stress because about three times in my life (just prior to losing a large amount of weight, losing my appetite and experiencing major D) I would start having these attacks, then the gi problems would set in. The more research I do and the more I read from people on this forum with celiac disease, it really makes more sense that it might be celiac disease rather than anxiety. I really believe this now, because my life, family, job - everything is really great, except for the fact that I have been sick as a dog for the past almost four months.

Just food for thought based on my experience. I hope it helps.

Danijela Contributor
Hi.  I'm new here too and pre-diagnosis as well. I go Monday to have my bloodwork done.  These attacks that you are describing actually sound like panic/anxiety attacks.  I know how frightening it is because I have suffered from them as well.  From all of the research that I've done, I've learned that celiac disease can actually interfere with your seratonin levels, which could result in anxiety/panic attacks.  I always thought I just have problems handling stress because about three times in my life (just prior to losing a large amount of weight, losing my appetite and experiencing major D) I would start having these attacks, then the gi problems would set in.  The more research I do and the more I read from people on this forum with celiac disease, it really makes more sense that it might be celiac disease rather than anxiety.  I really believe this now, because my life, family, job - everything is really great, except for the fact that I have been sick as a dog for the past almost four months.

Just food for thought based on my experience.  I hope it helps.

<{POST_SNAPBACK}>

Hi Kalynn

When these attacks first started happening I thought it was anxiety and so did the DRs (i think they still think it is) The only reason i realized it wasn't was because during an attack i called my DR and he said whens the last time you ate it took to awhile to realize it had been 8 hours since i last ate. I had an orange juice and ate something and the attack stopped.. ever since then when i get one i eat something really quickly and the attack fades away... if i don't eat something the attacks last up to an hour.... i once sat in the emerg for over an hour shaking and breathing heavily and no one took notice it eventually went away and i went home without being seen....

Its really scary i just hope i get some answers soon

thanks for your response! :D

Guest nini

sounds like the "attacks" I had for years... I technically was dx with hypoglycemia though because my blood sugar levels were way off. I had to start carrying those glucose chewable tablets with me for if I had an attack, so I could take one right away. I still needed to eat something asap. But I also was having anxiety/panic attacks too, and while they weren't completely different, they weren't exactly the same either. Hope you get it all figured out. I do know that since I have been gluten-free, I haven't had those issues.

Danijela Contributor
sounds like the "attacks" I had for years... I technically was dx with hypoglycemia though because my blood sugar levels were way off. I had to start carrying those glucose chewable tablets with me for if I had an attack, so I could take one right away. I still needed to eat something asap. But I also was having anxiety/panic attacks too, and while they weren't completely different, they weren't exactly the same either.  Hope you get it all figured out. I do know that since I have been gluten-free, I haven't had those issues.

<{POST_SNAPBACK}>

Hi Nini

when you say your sugars were way off were they high or low or normal?

when i have these attacks if i don't eat something right away they turn into a panic attack...

thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

my sugars were very low... BUT... on occasion they were high too and when my weight was up, my Dr. told me I was borderline diabetic...

tarnalberry Community Regular
During most of these attacks I'm not actually hungry thats why they creep up on me and take over...If i was hungry i'd know they were coming...

<{POST_SNAPBACK}>

Yep, unless I've been eating well balanced meals for at least a few days, I don't get hungry, I get nauseous and headachey - that's when I know I need food. You may just need to keep your meals more balanced, and may just need to eat every few hours.

Guest BellyTimber

The numbers for blood sugar may not move but it can be hypoglycaemia all the same, eat protein every two hours at least, and plenty of protein at breakfast time, and don't be confused about what it is like to 'not feel hungry'.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,671
    • Most Online (within 30 mins)
      7,748

    Felecia
    Newest Member
    Felecia
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum @cameo674! First, let me correct a misconception you have about celiac disease and intestinal anatomy. Celiac disease does not affect the colon. It damages the lining of the small bowel which is on the other end of the intestinal track from the colon. The small bowel, the duodenum, is the part of the intestines right below the stomach. So, your colonoscopy would not have been examining that area. The scope just won't go up that far. Examination of the small bowel is done with an endoscopy, not a colonoscopy. The go in through the mouth, the stomach and into the upper part of the intestines.  People with celiac disease experience an autoimmune response when gluten is consumed that generates inflammation in the lining of the small bowel which, over times, wears down the millions of tiny finger-like projections that constitute this lining. We call those finger-like projections "villi" and the lining is termed the "villous lining" of the small bowel. The inflammatory response by the immune system perceiving gluten to be an invader threat produces antibodies that can be measured in the blood. This is what was what those tests were done for that you posted in your opening narrative. The villous lining of the small bowel is where all of the nutrition is absorbed from the food we eat. The constant inflammation of celiac disease over time wears down these millions and millions of tiny finger-like projections and greatly reduces the efficiency of nutrient absorption. Hence, it is common for those whose celiac disease has been undiagnosed for a long time and who continue to consume gluten develop health problems that are related to nutritional deficiencies, even though they may be eating well. Your test results do indicate you have celiac disease. The most important of those tests you listed is the Tissue Transglutaminase (IgA) - 44.0 U/mL and it was "out of range". We abbreviate this as tTG-IGA. I take "out of range" to mean it was elevated. You did not include the reference ranges used by the lab for the tests so I am assuming "out of range" means positive or high. There are no industry standards for reference ranges for these tests. Each lab uses their own because they each build the tests a little differently or may use different units to express the results. Normally, if any of the celiac blood antibody tests are positive, a GI doc will want to perform an endoscopy with biopsy of the small bowel lining to microscopically check for damage to the villous lining. This is confirmation of the blood antibody testing. Sometimes they will forego the endoscopy/biopsy if the tTG-IGA score is very high. But it is very important that you not begin to cut back on gluten until all testing is complete. Doing so will allow healing of the small bowel lining to begin and will likely invalidate the testing. It is recommended that people consume at least 10g of gluten daily (about the amount in 4-6 slices of wheat bread) in the weeks leading up to the endoscopy/biopsy.  Finally, it sounds like your middle child also needs to be tested for celiac disease. A couple of studies done with rather large sample sizes in the last couple of years showed that almost 50% of first degree relatives of those with celiac disease, when tested, also had celiac disease. Many of them were "silent". That is, they were largely asymptomatic.
    • cameo674
      Still waiting to get into the doctor to discuss my test results and see if further testing like a biopsy is necessary. My appointment is in June 2025.  Yep it takes that long to get in to see the doc.     Anyway, I paid to have some functional health bloodwork done in December 2024.  I got the results just after Christmas. Because my middle child suffers from bloating and she asked if I ever considered that I might be gluten intolerant or have celiac disease, I added the celiac blood tests to the testing that I was having completed.  That child has panic attacks when a needle goes near her; so, I decided to do the testing to see if she needed to move forward with testing for herself.   My test results were: Deamidated Gliadin (IgA) - 53.8 U/mL; Deamidated Gliadin (IgG) - 250.0 U/mL; Tissue Transglutaminase (IgA) - 44.0 U/mL; Tissue Transglutaminase (IgG) - < 1.0; and Immunoglobulin A (IgA) - 274.0 U/dL. The first 3 are out of range and the 2nd two are in range.  That company does not offer the Cyrex array 3 & 4 so I could go in armed to my appointment with further information.  I have read the article that seems to be posted as a reply for most of the posts in this forum.   First of all, I never thought I had an issue with gluten, because I never associated flatulence or constipation with gluten. I know I am lactose intolerant.  As I have gotten older, I’m in my late 50’s, I have decreased my bread/pasta intake 4 or 5 years ago, because I have been trying to increase my protein intake which is hard for me to do since I don’t really like protein most the time.  My friend who is a nurse said that I should not go on a gluten free diet until a doctor decides whether or not I need a biopsy which may take a few months to get on a doctor’s schedule based on how long it will be just for my initial visit. So my question is this, wouldn’t the gastro doc, who did my colonoscopy when I turned 50 when I did not have a restricted gluten diet, have noticed that I had celiac if I had it? Or are there zero visible changes to the colon it’s self?   I did not have any polyps so no biopsies were preformed as a result of that preventative colonoscopy.            
    • Rebeccaj
      glutened peoples experience ?via flour airbourne.
    • eKatherine
      Keep in mind that you might also have a dietary sensitivity to something else. Get into the habit of reading ingredients lists.
    • BoiseNic
      I would avoid gluten at all cost. Sometimes there will be no noticeable damage, but it is still causing an autoimmune response that will manifest in some way or another eventually. Throwing up from a macaroon sounds like something other than celiac disease also.
×
×
  • Create New...