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It All Makes Sense Now, If I Have Celiac Disease.

taynichaf

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taynichaf Contributor
taynichaf
Posted

Sooo much to say...but after a year of trying to lose weight, I've come across celiac disease and the more I read about it, the more I thought I had it..

My symptoms now are depression, anxiety, irritability, bloating, tingling hands and feet, fatigue, muscle weakness, very gassy, frequent bowl moments and sometimes diarrhea..and very tired! Oh and I also have lost my period..

Does this sound like celiac to you?? Whenever I tried bringing it up to my mom she doesn't take it seriously, but I made a doctors appointment myself..

thus might be long, but if you keep reading I'll tell you about past celiac related issues.

The first one that I can remember was going to the doctor in about 4th grade because of reoccurring stomach pains.I got an x ray, and I think I was just really constipated or something, and then I was prescribed laxatives.. Now, in 6th grade I weighed about 75 pounds, and growing up I always thought I was fat, because my gut always seemed to sick out. By 8th grade I weighed around 115! And in 8th grade is when my anxiety seemed to get worse and I changed, and I wasn't the same person anymore..and after lunch,I would get terrible stomach pains! My stomach felt like it was popping,I would get support gassy, and my stomach made really loud noises (so embarrassing) somehow I came to the conclusion that I was lactose intolerant, and then I moved on. My depression and anxiety slowly got worse through the years and my bloating and gas seemed like a normal thing to me. By 11th grade, my depression worsened..this happened to be after my beer drinking phase!.. Then after awhile I quit drinking (and still don't) because it just makes me feel tired and I never feel "drunk". So, by the end of 11th grade I weighed almost 140! And I stopped having my periods too. Then I tried losing weight, eating very strict, over exercising, and eating very little.I lost weight but was still puffy, and it was sooo hard to keep losing, and I could gain very easily.. One time I ate 5 bread sticks (still within calorie goal) and I gained 5 pounds the next day.this want water weight, because I ate carbs daily. My breakfast every morning was whole wheat toast! Soon I became extremely fatigued, but I was determined to lose weight..so during summer I would sleep in, eat breakfast, workout for two hours, and then go home and go back to beddd.I had to sleep a lot! And my depression and anxiety slowly got even worse.then I quit restricting myself so much (but still ate really healthy) and I gained 15 pounds in two weeks...! So I gained all my weight back. The only tone I started losing again was when I didn't eat so much bread and oat meal (thus wasn't on purpose ) then I got into high fat dieting, which I mainly got carbs from veggies and fruits..then I got my period! And in two weeks,i like 8 pounds, aaand my bloating was gone just a little spotting though..then I was craving spaghetti so I aye a bunch of whole wheat pasta..the next week after that I would get random pains in my stomach..but I continued to eat wheat and got really tired and irritable again..oh and after I ate that pasta, the next morning I was 8 pounds heavier.. Now ik so exhausted all three tone that I can't even exercise..I'm sooo weak..my legs hurry and I get winded just by walking up stairs! When I run,I never get the endorphins anymore,I just feel even crappier when I'm done!

My dad knows that there has to be a reason for the ways I've changed..and I've accepted that it's just depression, but lately I don't think so...

My blood tests a few months ago..I showed low iron and low b12..normal thyroid..my doc put me on antidepressants that give you energy..and Heyyy..still no energy!

Sooo sorry about howww long this is! But if you read out, thank you!!! My doctors appointment is in a few days (I moved, so it's a brand new doctor) so how do I all to get tested for celiac?!

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taynichaf Contributor
taynichaf
Posted
  • Author

Another symptom I noticed is acid reflux..I always had it, but I was just so used to it I thoughtit was normal..after not eating gluten, and then reintroducing it,I felt it bad!

1desperateladysaved Proficient
1desperateladysaved
Posted

Yeah, get the list of tests before you go.  List the symptoms as you did above.  Hopefully, your doctor will be one that listens to their patient.  Don't give up even if they don't listen.  You have an important set of gripes, and I believe there is a reason for them.

 

Diana

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

Hi taynichaf,

 

I would bring the tests with you about low iron and B12, which are frequently associated with celiac.  check out this link:

 

Open Original Shared Link

 

Here is another link and paper I've found helpful:

 

Open Original Shared Link

 

ask for the complete celiac panel, which includes:

DGP igA/igG

ttg igA/igG

EMA

Total igA serum to make sure you aren't igA deficient because if you are that invalidates all the igA results

 

Keep eating gluten until ALL tests are done  :)

 

good luck!

 

Another symptom I noticed is acid reflux..I always had it, but I was just so used to it I thoughtit was normal..after not eating gluten, and then reintroducing it,I felt it bad!

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    • trents
      I’m terrified it’s too late for me😭

      By trents · Posted

      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
    • Cathijean90
      I’m terrified it’s too late for me😭

      By Cathijean90 · Posted

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    • trents
      diagnostic testing variance

      By trents · Posted

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    • Scott Adams
      diagnostic testing variance

      By Scott Adams · Posted

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    • KDeL
      diagnostic testing variance

      By KDeL · Posted

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