Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Before Endoscopy?

taynichaf

Recommended Posts

taynichaf Contributor
taynichaf
Posted

Can I quit eating gluten after three blood tests, but before the endoscopy? My doctor said I could...but everything I've read says to not go gluten free until after tests...how long will the damage show up on the endoscopy after not eating gluten? I'm tired of feeling like crappp, plus I wanna be a little better by my birthday in a few days.

Thanks!! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

If you endoscopy is within a few weeks I would GUESS that you could cut out most gluten and that you would still show damage... but that is just a guess.  People heal at such different rates, it is hard to guess how quickly you would start to heal.  Some people have autoantibodies that hang around and continue to do damage for months or even years, for others the healing begins almost immediately.  Even if your endoscopy is withing 2 weeks, I would suggest eating some gluten every few days to keep your autoimmune reaction going.

 

I would err on the side of caution and continue to eat small amounts of gluten - if you are undergoing an endoscopy, you might as well make the test as accurate as possible.

 

happy early birthday.

EmiPark210 Contributor
EmiPark210
Posted

I'm having my endoscopy on Friday and was instructed to go back on gluten right after the meeting with the GI. If it makes you feel really sick to the point where you can't function, talk to your doctor. How important is having this last test to you? That being said, if you do an endoscopy stay on gluten, at least a little. Going back on is a lot worse than staying on. 

Takala Enthusiast
Takala
Posted

'Tis better to err on the side of caution, however, if your birthday is a big gluten blow-out typically, you might want to start to experiment with gluten free treats for that, such as a special gluten-free cake, ice cream, homemade pizza on a gluten free purchased crust, gluten-free beer or soda, etc, but keep consuming at least 2 servings of the glue- poison per day. 

 

My husband isn't gluten free, but eats that way at home, so we had buckwheat chocolate pancakes twice that week he had a birthday, with coconut, chocolate chips, and chocolate- almond spread and sweetened yogurt.  I made some other stuff that week that was also a little fancier than the usual meat/vegetable routine, like Indian curry sauce, (mixed my own curry powder) and I think we had a homemade pizza crust in there.  The regular food doesn't appeal to me at all, because of how it makes me feel, and pizza is pizza if you get whatever concoction of crust that works for your food intolerances halfway there. B)  

taynichaf Contributor
taynichaf
Posted
  • Author

Thanks! I am not even getting an endoscopy anymore, so I'm just focusing on eliminating the gluten.I slowly start to cook different things. Thank you for the ideas :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,308
    • Most Online (within 30 mins)
      7,748
    Cindy Lou who
    Newest Member
    Cindy Lou who
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      I’m terrified it’s too late for me😭

      By trents · Posted

      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
    • Cathijean90
      I’m terrified it’s too late for me😭

      By Cathijean90 · Posted

      I’ve just learned that I had been diagnosed with celiac and didn’t even know. I found it on paperwork from 15 years ago. No idea how this was missed by every doctor I’ve seen after the fact. I’m sitting here in tears because I have really awful symptoms that have been pushed off for years onto other medical conditions. My teeth are now ruined from vomiting, I have horrible rashes on my hands, I’ve lost a lot of weight, I’m always in pain, I haven’t had a period in about 8-9 months. I’m so scared. I have children and I saw it can cause cancer, infertility, heart and liver problems😭 I’ve been in my room crying for the last 20minutes praying. This going untreated for so long has me feeling like I’m ruined and it’s going to take me away from my babies. I found this site googling and I don’t know really what has me posting this besides wanting to hear from others that went a long time with symptoms but still didn’t know to quit gluten. I’m quitting today, I won’t touch gluten ever again and I’m making an appointment somewhere to get checked for everything that could be damaged. Is this an automatic sentence for cancer and heart/liver damage after all these symptoms and years? Is there still a good chance that quitting gluten and being proactive from here on out that I’ll be okay? That I could still heal myself and possibly have more children? Has anyone had it left untreated for this amount of time and not had cancer, heart, fertility issues or liver problems that couldn’t be fixed? I’m sure I sound insane but my anxiety is through the roof. I don’t wanna die 😭 I don’t want something taking me from my babies. I’d gladly take anyone’s advice or hear your story of how long you had it before being diagnosed and if you’re still okay? 
    • trents
      diagnostic testing variance

      By trents · Posted

      Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires some kind of trigger to turn the latent genes "on", as it were. The trigger can be a lot of things and is the big mystery component of the celiac disease puzzle at this point in time with regard to the state of our knowledge.  Your IGA serum score would seem to indicate you are not IGA deficient and your tTG-IGA score looks to be in the normal range but in the future please include the reference ranges for negative vs. positive because different labs used different reference ranges. There is no industry standard.
    • Scott Adams
      diagnostic testing variance

      By Scott Adams · Posted

      Since nearly 40% of the population have the genes for celiac disease, but only ~1% end up getting it, a genetic test will only tell you that it is possible that you could one day get celiac disease, it would not be able to tell whether you currently have it or not.
    • KDeL
      diagnostic testing variance

      By KDeL · Posted

      so much to it.  the genetic testing will help if i don’t have it right? If theres no gene found then I definitely don’t have celiac?  I guess genetic testing, plus ruling out h.pylori, plus gluten challenge will be a good way to confirm yes or no for celiac. 
×
×
  • Create New...