Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Have Pmdd Or Pms?

Marie1976

Recommended Posts

Marie1976 Enthusiast
Marie1976
Posted

Hi everybody, I haven't been on here in a while...

 

I'm pretty sure I have PMDD. I'm a different person before my period and not in a good way. I think I need to just get on some medication for it finally, but every time I get any kind of prescription from the pharmacy (which isn't often, thankfully), the pharmacists can never seem to tell me if the meds are gluten free or not so I end up being too scared to take it.

 

Anyone know if antidepressants are gluten free? (I assume that's what they would prescribe for PMDD.) I would guess they are gluten-free... but I would guess that a lot of things are that turn out not to be. 

 

Thanks in advance.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Adalaide Mentor
Adalaide
Posted

First, the prescription problem. Don't just drop off a prescription then ask a pharmacist if they are safe. Go to the pharmacy, ask what brand they will use to fill the prescription with and for a phone number for that company if possible. (If they don't have a phone number you can get it easily from the internet.) Then, call yourself. Drop the prescription off only when you know it is safe. I do not bother with manufacturers whose exclusive contact information is either email or international phone. Thanks, I'll pass on the language barrier since we have enough problems getting people we share a first language with to understand our issue. This is a personal choice that not everyone makes, nor advocates, and I am sure that some have found success contacting companies in this way. Once you have verified that a pharmacy can fill your prescription from a safe manufacturer, drop it off. When you pick it up, verify the manufacturer before paying. This seems neurotic, but I always do.

 

As for do I have these issues? My husband would probably tell you I am a psychotic you know what for several days, and maybe a bit more than a week before my period. I have simply learned to deal with it by attempting to keep my mouth shut and not speak for a week. My Grammy taught me as a little girl that if I don't have anything nice to say, not to say anything at all. I try to apply that rule. This generally meets with alternating amounts of success, but I am not finding this disruptive enough in my life to medicate.

gfkikamonster Newbie
gfkikamonster
Posted

Not a doctor, of course. But I have been diagnosed with PMDD and it's a lot more than PMS. Not only are the symptoms more severe, but they also cover more of the month. I have problems while I'm ovulating and for at least a week before my period as well as during.

That being said, a doctor should be able to help whether it is bad PMS or PMDD. I have done anti-depressants but now have been having good luck with just birth control to balance my hormones.

As to the prescription question, I think the other poster had good suggestions. Any medication can have gluten (and I have found some by mistake) but few actually do. Still need to do the research on whatever is prescribed.

ravenwoodglass Mentor
ravenwoodglass
Posted

I do as Adalaide suggested.  However i do not ask if the med is gluten free. I say I am allergic to wheat since wheat starch is considered to be gluten free by processing.

Marie1976 Enthusiast
Marie1976
Posted
  • Author

I do as Adalaide suggested.  However i do not ask if the med is gluten free. I say I am allergic to wheat since wheat starch is considered to be gluten free by processing.

I don't do that only because I don't want people to think it's just wheat. A lot of stuff has barley malt, right? I drink a lot of herbal tea and I had to throw out a bunch because of that. I guess I could say I have celiac and I'm allergic to wheat. Sigh... Why is this so complicated...

ravenwoodglass Mentor
ravenwoodglass
Posted

I don't do that only because I don't want people to think it's just wheat. A lot of stuff has barley malt, right? I drink a lot of herbal tea and I had to throw out a bunch because of that. I guess I could say I have celiac and I'm allergic to wheat. Sigh... Why is this so complicated...

I was speaking only about prescription and OTC meds. A lot of foods and herbals do have barley or oats but I haven't encountered either of those in meds except perhaps something prescribed by a naturopath or in supplements.

pricklypear1971 Community Regular
pricklypear1971
Posted

Hi everybody, I haven't been on here in a while...

I'm pretty sure I have PMDD. I'm a different person before my period and not in a good way. I think I need to just get on some medication for it finally, but every time I get any kind of prescription from the pharmacy (which isn't often, thankfully), the pharmacists can never seem to tell me if the meds are gluten free or not so I end up being too scared to take it.

Anyone know if antidepressants are gluten free? (I assume that's what they would prescribe for PMDD.) I would guess they are gluten-free... but I would guess that a lot of things are that turn out not to be.

Thanks in advance.

I've been struggling mid-cycle lately. I am Hashis - and we're working on it, but this mid cycle thing feels hormonal - because it has happened days 9-18 for 3 months.

And it is horrid. I feel like I'm having a thyroid flare - and maybe my thyroid is going a bit nuts, but oh man, it's somehow linked to my cycles.

I am currently on progesterone the last 2 weeks of my cycle - when I generally feel better. We are considering extending it to full cycle but lower dose the first half.

So, if you haven't had your thyroid worked up, and hormones...these may be factors.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Adalaide Mentor
Adalaide
Posted

I was speaking only about prescription and OTC meds. A lot of foods and herbals do have barley or oats but I haven't encountered either of those in meds except perhaps something prescribed by a naturopath or in supplements.

 

With prescriptions and OTC I simply say that in addition to celiac and needing gluten free I also have a wheat allergy and I need to know for sure that the starch and fillers are not wheat derived. I'm annoying like that. :lol: Drugs and foods are two whole different ballgames we deal with.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,400
    • Most Online (within 30 mins)
      7,748
    alideva
    Newest Member
    alideva
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Celiac pain relief

      By knitty kitty · Posted

      Hope you're feeling better.   I use a combination of Thiamine, Cobalamine, and Pyridoxine (Vitamins B 1, B12, and B6) for pain relief.  Together these vitamins together have pain killing effects (analgesic).  They are water soluble, so the body can easily excrete any excess.  They are safe to take.   Hope this helps.   Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/
    • trents
      Oats gluten free?

      By trents · Posted

      I did some research on what exactly is gluten . . . what defines it.  "The term gluten usually refers to the elastic network of a wheat grain's proteins, gliadin and glutenin primarily . . . " "The types of grains that contain gluten include all species of wheat (common wheat, durum, spelt, khorasan, emmer and einkorn), and barley, rye, and some cultivars of oat" (emphasis mine) "The storage proteins in other grains, such as maize (zeins) and rice (rice protein), are sometimes called gluten, but they do not cause harmful effects in people with celiac disease." (emphasis mine) From: https://en.wikipedia.org/wiki/Gluten What I found most interesting is that some cultivars of oats contain gluten. Could this explain, in part at least, the controversy surrounding oats? I mean, depending on the source, it could indeed sometimes include gluten and cause a celiac reaction.
    • Scott Adams
      Oats gluten free?

      By Scott Adams · Posted

      Your point about the limitations of current testing is valid, but the idea of "molecular mimicry" with rice and corn glutens is less clear. While corn contains zein, which can trigger reactions in some celiac patients, rice is generally considered safe and lacks proteins structurally similar to gluten. The term "molecular mimicry" is often overused and not well-supported in the context of all grains. While your experience with corn is noteworthy, extending this to all grains, including rice, may not be scientifically justified. Testing and research should indeed improve, but claims about all grains causing similar reactions need more evidence.
    • trents
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By trents · Posted

      I think Scott speaks truth. And I think there is more to this than the prospect of her having celiac disease. If it wasn't this issue, I'm betting it would be another. 
    • Scott Adams
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Scott Adams · Posted

      So one does need a specific inherited gene in order to develop celiac disease, so in some way I suppose anyone with celiac disease could take the negative approach of blaming their parents for getting it, however, it also takes some other environmental trigger, such as a specific virus or other factor, and this part is not necessarily caused by the parents. Around 40% of people have the genes to get celiac disease, but only around 1% actually get it.  In any case, we could all go through life complaining about all sorts of different wrongs supposedly caused by our parents, however, it's probably a lot more healthy for everyone to try to deal with life in a more positive way and instead move forward. For most people it's probably far more important to maintain positive family relationships in life than it is to try to attach blame to family members for getting any disease. 
×
×
  • Create New...