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jmryan83

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jmryan83 Rookie
jmryan83
Posted

I should point out that I have zero trust in my current doctor who ordered these tests. It's a long story, and I trust the opinions and knowledge of you forum moderators and participants more than my Dr. at this point.

 

Doc said she was running a Celiac panel. Turned out it was only 2 tests. These are the results:

 

Immunoglobin A, Qn, Serum - Result (264) Reference 91-414

Endomysial Antibody IgA - Result (Negative)

 

Everything else was in range except for my Vitamin D which was very low (14.4) Reference 30.0-100.0

 

My biggest question!

Are the two test she ran conclusive that I'm negative for Celiac?

 

 

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powerofpositivethinking Community Regular
powerofpositivethinking
Posted

unfortunately, those two tests do not disqualify you from having celiac.  In fact, the first one is to make sure you make enough igA antibodies, which you do, and although EMA is highly specific to celiac, it doesn't become positive until there is major tissue damage.  Your low Vitamin D is suspicious.  Can you go back and ask specifically for this panel:

 

DGP igA/igG

ttg igA/igG

EMA (already done)

Total igA serum (already done)

 

good luck!

Deaminated Marcus Apprentice
Deaminated Marcus
Posted

Nope you don't have Celiac....   (just joking)

 

Me and problably powerofpositivethinking are banging our heads on our desks at how dumb the doctor is to order just the one test.

 

You have lots of  Immunoglobin A  so that is the good news.  (mine are quite low just within the norm).

By this number being enough, it means you have enough for the  IgA related tests to work. 

 

To echo  powerofpositivethinking here is  the Celiac panel that I did:

 

 

 

Total IgA
Transglutaminase IgA       tTG-IgA
Deaminated Gliadin IgA    DGP-IgA
Deaminated Gliadin IgG    DGP-IgG

 

 

 powerofpositivethinking   adds    tTG-IgG to the panel.

 

Phone or go online to get your local labs code for the panel then when you see the doctor, you just give her the test code.

 

and of course be sure that you are actively eating about 4 slices of bread for 12 weeks prior to the test.

(white and brown bread)

 

 

About the vitamin D:

my D 25 was low normal but my D 1.25 was over the limit so don't take supplements till you have your D 1.25 levels checked.

 

 

Thanks for the compliments... :D .... yes we know more  :rolleyes:  because we read about each others experiences... :unsure:

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