Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Really, How Reliable Are Blood Tests?


taynichaf

Recommended Posts

taynichaf Contributor

I've had people tell me that there are many false negatives and the blood testing isnt all that reliable... and then theres the people that say false negatives are rare with blood testing.... WHICH IS IT?!

 

I'm really freaking confused on wether or not to go through with my endoscopy or not because my tests were negative(although they were not the full panel :/  )


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Pretty reliable. Ask the experts:

Open Original Shared Link

Open Original Shared Link

Deaminated Marcus Apprentice

I'd wait till you have positive blood tests before doing the endoscopy which is more expensive than the blood tests.

 

The blood panel will cover more bases.

 

Off the top of my head the DGP-IgG is about 98% accurate and the EMA is 100 % accurate but it is less sensitive.

 

If you are short on money for blood tests, at least go for the DGP-IgG.

I might just get that one myself in the future as my IgA is normal low.

 

While you are waiting to do the tests,  phone or visit the blood lab and ask for the code for the panel.

Tell them the doctor gets it mixed up.

If you decide you want DGP-IgG,  write it down, tell the doctor that is the test you want and read the paper she gives you.

If it says tTG then give it back to her and say you want DGP-IgG.

She problably has no clue about DGP tests as they are newer and more specific but we know what it is.

 

You have to consider that your problems could also be caused by Crohns or colitis, if it's not Celiac.

Find out this summer so you can enjoy the rest of your life.

 

 I hope you can find out what is your true problem as you are young and starting your life

and you want to put all your illnesses behind you before starting College in the fall. 

taynichaf Contributor

Pretty reliable. Ask the experts:

Open Original Shared Link

Open Original Shared Link

Awesome, thanks!

taynichaf Contributor

I'd wait till you have positive blood tests before doing the endoscopy which is more expensive than the blood tests.

 

The blood panel will cover more bases.

 

Off the top of my head the DGP-IgG is about 98% accurate and the EMA is 100 % accurate but it is less sensitive.

 

If you are short on money for blood tests, at least go for the DGP-IgG.

I might just get that one myself in the future as my IgA is normal low.

 

While you are waiting to do the tests,  phone or visit the blood lab and ask for the code for the panel.

Tell them the doctor gets it mixed up.

If you decide you want DGP-IgG,  write it down, tell the doctor that is the test you want and read the paper she gives you.

If it says tTG then give it back to her and say you want DGP-IgG.

She problably has no clue about DGP tests as they are newer and more specific but we know what it is.

 

You have to consider that your problems could also be caused by Crohns or colitis, if it's not Celiac.

Find out this summer so you can enjoy the rest of your life.

 

 I hope you can find out what is your true problem as you are young and starting your life

and you want to put all your illnesses behind you before starting College in the fall. 

Ok... I'll make a new doctors appointment and have all the tests picked out and everything... thanks! And I will do research on the other two, but I don't think I have crohns because I have C instead of D, and weight gain instead of weight loss.

Deaminated Marcus Apprentice

Once you have the blood test requisition form in your hand make sure it's the tests you want.

If it's not don't be shy to give it back to her if it's the wrong test. You are the boss.

And you don't have to go the same day to the blood lab.

You can wait till you've done your gluten challenge whatever amount of weeks you decide to do it.

taynichaf Contributor

Once you have the blood test requisition form in your hand make sure it's the tests you want.

If it's not don't be shy to give it back to her if it's the wrong test. You are the boss.

And you don't have to go the same day to the blood lab.

You can wait till you've done your gluten challenge whatever amount of weeks you decide to do it.

Lol, I know this now! I'm not leaving the office unless it's the tests I want!

Thanks for everything


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,308
    • Most Online (within 30 mins)
      7,748

    Cindy Lou who
    Newest Member
    Cindy Lou who
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
    • Cathijean90
      I’ve just learned that I had been diagnosed with celiac and didn’t even know. I found it on paperwork from 15 years ago. No idea how this was missed by every doctor I’ve seen after the fact. I’m sitting here in tears because I have really awful symptoms that have been pushed off for years onto other medical conditions. My teeth are now ruined from vomiting, I have horrible rashes on my hands, I’ve lost a lot of weight, I’m always in pain, I haven’t had a period in about 8-9 months. I’m so scared. I have children and I saw it can cause cancer, infertility, heart and liver problems😭 I’ve been in my room crying for the last 20minutes praying. This going untreated for so long has me feeling like I’m ruined and it’s going to take me away from my babies. I found this site googling and I don’t know really what has me posting this besides wanting to hear from others that went a long time with symptoms but still didn’t know to quit gluten. I’m quitting today, I won’t touch gluten ever again and I’m making an appointment somewhere to get checked for everything that could be damaged. Is this an automatic sentence for cancer and heart/liver damage after all these symptoms and years? Is there still a good chance that quitting gluten and being proactive from here on out that I’ll be okay? That I could still heal myself and possibly have more children? Has anyone had it left untreated for this amount of time and not had cancer, heart, fertility issues or liver problems that couldn’t be fixed? I’m sure I sound insane but my anxiety is through the roof. I don’t wanna die 😭 I don’t want something taking me from my babies. I’d gladly take anyone’s advice or hear your story of how long you had it before being diagnosed and if you’re still okay? 
    • trents
      Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires some kind of trigger to turn the latent genes "on", as it were. The trigger can be a lot of things and is the big mystery component of the celiac disease puzzle at this point in time with regard to the state of our knowledge.  Your IGA serum score would seem to indicate you are not IGA deficient and your tTG-IGA score looks to be in the normal range but in the future please include the reference ranges for negative vs. positive because different labs used different reference ranges. There is no industry standard.
    • Scott Adams
      Since nearly 40% of the population have the genes for celiac disease, but only ~1% end up getting it, a genetic test will only tell you that it is possible that you could one day get celiac disease, it would not be able to tell whether you currently have it or not.
    • KDeL
      so much to it.  the genetic testing will help if i don’t have it right? If theres no gene found then I definitely don’t have celiac?  I guess genetic testing, plus ruling out h.pylori, plus gluten challenge will be a good way to confirm yes or no for celiac. 
×
×
  • Create New...