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Confused And Need Help With Sons Symptoms


alicia534

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alicia534 Rookie

My son is 21 months old. He has been unofficially diagnosed with Celiac Disease based on symptoms. He has been gluten free for 8 months. The one symptom that has not gone away is constipation. He goes 4-5 days between bm and when he goes it's painful for him. I cannot stand to see him like this anymore. He takes a tsp of miralax everyday. I have tried increasing the miralax, but then he gets diarrhea. I would like to figure out what is causing his problems instead of just treating the symptom.  He is allergic to dairy and peanuts. He also had an IgG blood test run when he was 8 months old. It came back positive for dairy, peanuts, eggs, strawberries, banana, and brewers yeast. After having the skin test done the allergist said we did not need to avoid anything but the dairy and nuts. His GI also said that the IgG testing does not mean anything and he can eat those foods. I am now wondering if we should avoid those foods. I have been keeping a food diary off and on for the last year, but I can't figure this out. I don't know what to do for him anymore. I need help figuring this out.


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cyclinglady Grand Master

Think of allergies as a "fire".  You need to calm down that fire and maybe, if your'e lucky, extinguish it.  I had I
gG testing done years ago.  Tested high for five foods, moderately for many others.  First thing is to eliminate completely all those items that were on the list.  Then divide up a list of foods that he can eat and divide them into four days (some docs suggest 7 days)

 

Here's a hurried example and you need to add more foods:

 

 

Day 1 Day 2 Day 3 Day 4 Turkey Beef Fish Pork Green Beans Broccoli Cali-flower Spinach Quinoa Potatoes Butternut Squash Rice Oranges Blueberries Melon Apples Lemons Plums Grapes Kiwi Tangerines lettuce    

 

When you get to the end of day 4, start over.  Hang the chart up in your kitchen, so that when you wake up, you and the rest of your family will know what day it is and what you can feed your baby.  I found that it was easier for me to start my rotation with the evening meal and that would allow me to eat items I cooked for dinner to be eat for leftovers for lunch!  This rotation will allow your baby's system to calm down.  As months go by you can introduce the foods that he was only mildly or moderately allergic to, but never consume them for several days.  Do not feed him the foods that he's most allergic to.  I am still allergic to milk, eggs, almonds, garlic and mushrooms.  I never outgrew them, but they have diminished in the capacity to make me ill.  Other foods like rice, pork, brewer's yeast.....the list is so long, I now eat, but I make sure I don't eat them daily.  

 

Within a year, I was much better (enough to do Triathalons).  Would even have a bit of ice cream, but only in the winter months when pollen and weed counts were low.  Your son may have allergic reactions to non-foods and those need to be addressed or minimized too.  Lucky for me, I got out of cleaning the bathroom for years for fear of mold!!!  Now I have to clean it but mold still bothers me when we have dry winds.  

 

Make sure your son has access to foods that are whole and full of fiber, but introduce those gradually.  If the four day rotation doesn't work, then stretch it out to seven days.   Cow's milk will constipate me while garlic will give me diarrhea -- totally different reactions!   My family pretty much followed the diet too and no one ever ate an ice cream or some other forbidden food in front of me.  Hubby and my daughter would go out for "treats".  Now, it doesn't other me, but it did in the beginning.  By the way, I felt great for 13 years until the Celiac Disease showed up probably due to stress and menopause!

 

Carry a little ice chest with food items when you leave home.  It's so handy!

 

Good luck!

 

 

 

 

cyclinglady Grand Master

Think of allergies as a "fire".  You need to calm down that fire and maybe, if your'e lucky, extinguish it.  I had I

gG testing done years ago.  Tested high for five foods, moderately for many others.  First thing is to eliminate completely all those items that were on the list.  Then divide up a list of foods that he can eat and divide them into four days (some docs suggest 7 days)

 

Here's a hurried example and you need to add more foods:

 

 

Day 1 Day 2 Day 3 Day 4 Turkey Beef Fish Pork Green Beans Broccoli Cali-flower Spinach Quinoa Potatoes Butternut Squash Rice Oranges Blueberries Melon Apples Lemons Plums Grapes Kiwi Tangerines lettuce    

 

When you get to the end of day 4, start over.  Hang the chart up in your kitchen, so that when you wake up, you and the rest of your family will know what day it is and what you can feed your baby.  I found that it was easier for me to start my rotation with the evening meal and that would allow me to eat items I cooked for dinner to be eat for leftovers for lunch!  This rotation will allow your baby's system to calm down.  As months go by you can introduce the foods that he was only mildly or moderately allergic to, but never consume them for several days.  Do not feed him the foods that he's most allergic to.  I am still allergic to milk, eggs, almonds, garlic and mushrooms.  I never outgrew them, but they have diminished in the capacity to make me ill.  Other foods like rice, pork, brewer's yeast.....the list is so long, I now eat, but I make sure I don't eat them daily.  

 

Within a year, I was much better (enough to do Triathalons).  Would even have a bit of ice cream, but only in the winter months when pollen and weed counts were low.  Your son may have allergic reactions to non-foods and those need to be addressed or minimized too.  Lucky for me, I got out of cleaning the bathroom for years for fear of mold!!!  Now I have to clean it but mold still bothers me when we have dry winds.  

 

Make sure your son has access to foods that are whole and full of fiber, but introduce those gradually.  If the four day rotation doesn't work, then stretch it out to seven days.   Cow's milk will constipate me while garlic will give me diarrhea -- totally different reactions!   My family pretty much followed the diet too and no one ever ate an ice cream or some other forbidden food in front of me.  Hubby and my daughter would go out for "treats".  Now, it doesn't other me, but it did in the beginning.  By the way, I felt great for 13 years until the Celiac Disease showed up probably due to stress and menopause!

 

Carry a little ice chest with food items when you leave home.  It's so handy!

 

Good luck!

Ugh!  My nice chart imported from Excel didn't take.  But I think you'll get the idea.

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    • trents
      Yes, I'd like to know also if a "total IGA" test was ever ordered. It checks for IGA deficiency. If you are IGA deficient, it will likely render the individual celiac IGA antibody tests invalid. Total IGA goes by other names as well:  Immunoglobulin A (IgA) Test Serum IgA Test IgA Serum Levels Test IgA Blood Test IgA Quantitative Test IgA Antibody Test IgA Immunodeficiency Test People who are IGA deficient should have IGG tests run as well. Check this out:    I am also wondering if your on again/off again gluten free experimentation has sabotaged your testing. For celiac disease testing to be valid, one must be eating generous amounts of gluten for weeks/months leading up to the test.
    • Scott Adams
      I’m so sorry you’re going through this—it sounds like you’ve been on a really challenging journey with your health. Your symptoms (stomach pains, bloating, low iron, joint pain, brain fog, etc.) do sound like they could be related to gluten sensitivity or another condition like non-celiac gluten sensitivity (NCGS). It’s interesting that your bloodwork hasn’t shown celiac markers, but the lymphocytosis in your duodenum could still point to some kind of immune response or irritation, even if it’s not classic celiac disease. The fact that your symptoms improved when you went gluten-free but returned when you reintroduced gluten (especially with the donut incident) is a pretty strong clue that gluten might be a trigger for you. It’s also worth noting that symptoms can be inconsistent, especially if your body is still healing or if there are other factors at play, like stress, cross-contamination, or other food intolerances. Do you have more info about your blood test results? Did they do a total IGA test as well? 
    • KDeL
      For years, I have dealt with various gluten related symptoms like stomach pains, bloating, IBS-C "ish" digestive issues, low iron, low Vit D, joint pains, brain fog, and more. I finally got a double scope and stomach looks clear, but I have some lymphocytosis of the duodenum. I am wondering if this sounds familiar to anyone, where I have not shown celiac red flags in bloodwork IGA tests. WIll be following up soon with GI Dr, but so far, my symptoms are intermittent. I go back and forth with gluten-free diet (especially this past year.... did two tests where the stomach pains I had went away without gluten in diet. HOWEVER, I added it back a third time and I didn't get the pains)   Anyway, I am so confused and scared to eat anything now because I recently had a few bites of a yeasty donut and I immediately got so sick. Any thoughts??
    • Peggy M
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