Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Canker Sores


megsybeth

Recommended Posts

megsybeth Enthusiast

One of my most recent symptoms before diagnosis was cankers sores. I've had them all my life. Other celiac symptoms went away over the years but these stuck. Since going gluten free I get them occasionally and mentioned to my celiac specialist and she says the symptoms can last a while. But they're getting a lot better and less comon.

 

Today my son, who is 4 and gluten intollerant, showed me has first canker sore. And I have one. I've heard some people get them when glutened. Anyone else? I'm not sure what could be new, checked all our supplements. The only restaurant we've been to is Chipotle which has been good to us so far. I'm just wondering if I should eliminate some foods or if it's a coincidence we both have them.

 

Thanks for any advice!
Megan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

It could be a cc issue. Its been known to happen :(

 

Hope you start feeling better. I read somewhere that honey helps to heal them.

GF Lover Rising Star

I get them whenever my immune system acts up.  I swab with vinegar to hurry them along.

JNBunnie1 Community Regular

Without other symptoms, I wouldn't consider canker sores to be a sign of a glutening,

although it is possible. I found that any commercial toothpaste gives me canker sores,

I now have to use liquid soap to brush my teeth (you get used to it....). All it is is a

localized bacterial infection. I find that zinc lozenges kick the crap out of them. I hold

the lozenge against it for as long as I can, until it melts away. It also numbs the canker

sore, which is good, cuz those buggers hurt! Also avoiding sugar helps, as with any

illness.

EmiPark210 Contributor

I get them when I've had too much sugar coupled with stress. Everyone has their own causes but if you've still been getting them without gluten then it doesn't seem like it's a CC sign, though it's ways worth checking things every once and a while.

gluten-is-kryptonite Apprentice

I used to get them all the time growing up and then once i got diagnosed with Celiac last year and got completely off gluten I no longer get canker sores (or the laundry list of other symptoms).

 

If i get glutened accidentally I always will get a canker sore a few days later. Every time!!

 

If you are still getting canker sores I would ask if you by any chance are getting a small amount of gluten. Do you use a separate toaster? Are you getting cross contamination without knowing it?

VeggieGal Contributor

After my positive blood test and then being referred to the hospital, one of the first questions the specialist asked me was "do you get mouth ulcers?" so I guess it must be related. I used to get them as a kid but thats all. My 11 yr old son gets them all the time but he tested negative on a home testing kit , but of course its not the full panel. I used to just think they were caused by being run down and too much sugar.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



birdie22 Enthusiast

I've had them since I was a child. I always assumed it was acidic food, and later on, hormonal. Since going gluten-free in Nov '11 they all but disappeared. I do still get one every now and then. Usually they are tiny and come/go within a few days, unlike before when they'd get huge and take forever to heal. Sadly, I've had two horrible ones back to back this month, each lasting at least 7 days and one immediately following the other. I chalk it up to cc issue as my husband and kids are not gluten-free.

 

I've heard that SLS free toothpaste helps (I used Rembrandt C) as well as B12 and l-lysine.

Sharon-1 Newbie

My sons canker sores were severe. It was between that and his constantly complaining about his stomach aches that pushed me to take him to a specialist.  My family doctor tested for h pylori, it came back negative.  I just had the feeling that he was wrong.  After an upper and lower Gi we found he did have the h pylori bacteria and not long after we started on meds for it his test results came back saying he was positive for Celiacs.  Wow what a moment to finally find out what the problem was after so long of fighting it.  He had mouth sores so severely that it actually scared his mouth.  He could not even get braces which he needs badly.  Now we are on the right track. I can tell when he has something he is not suppose to eat because his mouth breaks out.  I currently give him B complex and lysene every day. He has aspergers and ADHD also.  His melt downs have been fewer and he is currently doing a little better in school.   His father has always had mouth sores also.  We had him tested for celiacs but it came back negative.  He has all of the symptoms including osteoporosis   He just had a hip replacement and is only 53 years old.  He has not complained of a mouth sore since I insisted we all go gluten free.  I am currently still learning about all of the wheat products and I am still amazed at the items with wheat in them.  I am grateful to have forums like this one to help. 

  • 3 months later...
Pegleg84 Collaborator

I realize I'm reviving an old topic, but might as well add to it rather than starting a new one.

I'm dealing with a nasty nasty sore right now. I almost couldn't get to sleep last night the pain was so bad.

I used to get them a lot pre-gluten-free, and now they only show up if I've been glutened or have a cold or something. It's usually a sure sign that I'm still recovering from some damage.

I've had this one for almost a week, so need to do something serious to force it to heal (It's in a really bad spot, constantly rubbing against my teeth, so any protective gel stuff rubs right off). I've done a salt pack (PAIN!!) which does help a bit, but I'll try the vinegar instead. Apple cider vinegar is my new cure-all.
Taking lots of vitamin c, b12, and zinc is also supposed to help.

 

Anyone else have canker-killing tips?

ImaMiriam Apprentice

I'd like to hear any remedies, too! My daughter says she has these mouth sores a lot, and I found out that Anbesol has gluten in it. So we have nothing now.

 

How do you know if it's the toothpaste? I thought that all toothpaste is gluten-free. If it's not, I gotta go check them all right away before anyone brushes their teeth tonight!!!!

 

Can anyone recommend gluten-free zinc lozenges? That sounds like a good idea -- are there any side effects to these?

 

Thanks!

Pegleg84 Collaborator

Some toothpastes do have gluten, but its not common. I'm sure there's a thread or two around about which are/aren't. Some people do find other ingredients in toothpaste to be irritating, like sulphites and other nastiness (yet toothpaste is one of the few non-all-natural things I still use).

 

I tried the vinegar (unfiltered apple cider vinegar, with the mother, which is kind of a cure-all) and it seems to be helping. It's starting to heal, and being less of a pain. Hopefully will be gone by the end of the week. Instead of swabbing, I rinced my mouth with a bit, concentrating on the sore area. It stings, but not as bad as salt.

birdie22 Enthusiast

Prescription orabase pastes work well. My PCP gave me an RX but your dentist could too. Just dob it on with a Qtip before bed. It's gritty and gross tasting/feeling but it does help cut down the pain and longevity of a nasty sore.

GF Lover Rising Star

There is this stuff called Swish And Swirl.  My Oncologist gave it to me when my immune system crashed and canker sores were killing me.  It's a Rx.  Easy to use and tastes fine.  You swish in mouth and swallow.  Speeds healing and works to decrease severity.  And GP can prescribe it.

 

Colleen 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - YoshiLuckyJackpotWinner888 replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Water filters are a potential problem for Celiac Disease

    2. - knitty kitty replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Water filters are a potential problem for Celiac Disease

    3. - Wheatwacked replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Water filters are a potential problem for Celiac Disease

    4. - YoshiLuckyJackpotWinner888 replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Water filters are a potential problem for Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,577
    • Most Online (within 30 mins)
      7,748

    Claire Carucci
    Newest Member
    Claire Carucci
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • YoshiLuckyJackpotWinner888
      Most people are already deficient in minerals.  I can understand the concern. However, if you do happen to get enough through supplementation, drinking pure distilled water is not going to matter.  I happen to get over 100% of rda vitamins and minerals.   I push myself to get 4000 mg of potassium a day through food, drinks, and supplements combined. I don’t know anyone else that does. The rda is closer to 4700 mg a day. For anyone else that might be deficient, I suppose tap water might be a better option.  I personally can’t stand the taste of most city tap water sources.  I don’t mind mineral water and prefer it when possible. I recently found out we would need to drink 5 liters of San Pellagrino mineral water a day to get enough lithium to satisfy the suggested 1 mg a day. Unfortunately, this and other mineral waters can also have trace amounts of uranium that occur naturally in nature. Uranium is not a good thing to have in your water. I wouldn’t want that or naturally occurring lead in my water.  There is no perfect solution for drinking water.  Smart water distills and then adds back in some electrolytes.  I could evaporate two gallons day of tap water or mineral water and the remaining sodium, potassium, calcium, magnesium, iron, etc… wouldn’t amount to what I already consume on a daily basis. I’m not worried about drinking distilled water. 
    • knitty kitty
      Reverse osmosis water pulls electrolyte minerals out of the body.  If used for cooking, RO water will even pull even more electrolytes out of the food.  If you're not replacing electrolytes because you're eating food cooked with RO water, you can suffer from Electrolyte Imbalance.  The symptoms of Electrolyte Imbalance are similar to those that occur with being exposed to gluten.   Also consider that many people with Celiac disease have malabsorption issues and may already be low in electrolytes.  Exposure to RO water may create some health changes more quickly than in healthier individuals.   RO water impacts the body in many ways.  Read this fascinating study.   Long-Term Consumption of Purified Water Altered Amino Acid, Fatty Acid and Energy Metabolism in Livers of Rats https://pmc.ncbi.nlm.nih.gov/articles/PMC11122726/ Drink mineral water.  
    • Wheatwacked
      Library paste and paper mache.  I have in passing read of wheat based glue used to glue fish tank filters together so it is not surprising they might be in refridgerator filters. Seems the issue with bottled water would be at the personal filters rather than the mass filtering.  Just have to boycott the brands that effect you.  Gatorade drinks all have either gums, modified starches or stevia that might be affecting you.  Looking for energy or hydration try Red Bull.  It has the vitamins, minerals, antioxidant Taurine, sugar and glucose to process the sugar from mouth to ATP and clean up. Taurine is essential for protecting mitochondria from damage, such as from reactive oxygen species (ROS) or calcium overload. If you are exclusively drinking bottled water you may want to consider taking Lithium Orotate 5 mg.  We need about 1 mg a day of Lithium and mostly it is gotten from ground water.  Lithium deficiency can cause anxiety and suicide.  I find it helpful. Lithium in the public water supply and suicide mortality in Texas: Journal of Psychiatric Research Is Lithium a Micronutrient? From Biological Activity and Epidemiological Observation to Food Fortification
    • YoshiLuckyJackpotWinner888
      What non organic or nonorganic molecules from a plastic bottle of water can trigger a reaction that I have only experienced during an auto immune experience? There really should not be any organic molecules in  such a bottle. I seen a thread where it was mentioned that his refrigerator water filter tested positive for gluten when he had it checked. If I went to physician to get checked for other possible triggers from a water bottle, I don’t think that will go anywhere. Again, distilled water containers cause no reactions. I’m not an industry expert, but something is there.  I don’t think that this is a case of microplastics causing this. Too bad we can’t call upon some third party investigation.  
    • Scott Adams
      It’s understandable to want to be cautious, especially after experiencing symptoms. However, there is currently no scientific evidence that reverse osmosis or standard activated carbon water filters expose people to gluten in amounts that would trigger celiac disease. Gluten is a protein, and if any starch-based binder were used in filter manufacturing, it would not pass through RO membranes or remain in finished bottled water at clinically meaningful levels. Plain water — filtered, RO, or bottled — does not contain gluten unless it is intentionally added (which would require labeling). Steam-distilled water is certainly safe, but it is not considered medically necessary for people with celiac disease. If reactions are occurring, it may be helpful to explore other potential explanations with a healthcare provider rather than assuming filter-related gluten exposure.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.