Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Medication? Levoxyl Discontinued


Tigercat17

Recommended Posts

MissUrka Newbie

I take Synthroid. It is gluten free.

The manufacturer of Synthroid (Abbott) DOES NOT GUARANTEE THE GLUTEN FREE STATUS OF ITS PRODUCT ANY LONGER. I believe this includes all dosages. Please check glutenfreedrugs.com


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MissUrka Newbie

Of course, you will have a source for this claim, and I expect that you will be sharing it with us promptly.

Please check the Alpha List at GlutenFreeDrugs.com

Open Original Shared Link

This is what they say about Synthriod:

Synthroid (all strengths)-can no longer guarantee gluten-free status

The new wording was put there sometime between October 2012 and March 2013

Regarding the glutefreedrugs website:

The Gluten Free Drugs website is authored and maintained by a clinical pharmacist as a public service, receiving no compensation whatsoever for providing this information. Information for this website is obtained from a number of sources, including personal contact with the manufacturers and input from other individuals who contact manufacturers. The information is continually updated as it is obtained.

This site is for informational purposes only. Please note that a reasonable attempt is made to provide accurate information. The webmaster is not responsible for any error contained within. All persons should interpret the information with caution and should seek medical advice when necessary. This descipifion is from Open Original Shared Link

kareng Grand Master

Please check the Alpha List at GlutenFreeDrugs.comOpen Original Shared Link

This is what they say about Synthriod:

Synthroid (all strengths)-can no longer guarantee gluten-free status

The new wording was put there sometime between October 2012 and March 2013

Regarding the glutefreedrugs website:

The Gluten Free Drugs website is authored and maintained by a clinical pharmacist as a public service, receiving no compensation whatsoever for providing this information. Information for this website is obtained from a number of sources, including personal contact with the manufacturers and input from other individuals who contact manufacturers. The information is continually updated as it is obtained.

This site is for informational purposes only. Please note that a reasonable attempt is made to provide accurate information. The webmaster is not responsible for any error contained within. All persons should interpret the information with caution and should seek medical advice when necessary. This descipifion is from Open Original Shared Link

There is a difference between " yes. Our drug contains gluten" and "we don't knowingly use gluten "but, because we don't test for gluten, we will no longer say officially " gluten free". I choose to read the ingredients. You may decide to use it or not. That would be your choice.
MissUrka Newbie

Thanks for your reply! I just wanted to remind that, yes you can read the ingredients but you can never rule out cross contamination. If a company does not specifically TEST for gluten, it is highly unlikely that they will state without qualification that a product is gluten-free. Companies may not be able to guarantee that the raw materials they purchased to make the drug have not suffered cross-contamination. Even though their ingredient list does not include gluten for Synthroid, they have had some doses that supposedly included a gluten ingredient in the past and doses that did not. So, without knowing their manufacturing process it's hard to say about cross contamination. Myself, at least where food is concerned, I only consume food that is tested guaranteed gluten-free. I myself would not take a chance with a company who will not guarantee it through testing. Thanks!

kareng Grand Master

Thanks for your reply! I just wanted to remind that, yes you can read the ingredients but you can never rule out cross contamination. If a company does not specifically TEST for gluten, it is highly unlikely that they will state without qualification that a product is gluten-free. Companies may not be able to guarantee that the raw materials they purchased to make the drug have not suffered cross-contamination. Even though their ingredient list does not include gluten for Synthroid, they have had some doses that supposedly included a gluten ingredient in the past and doses that did not. So, without knowing their manufacturing process it's hard to say about cross contamination. Myself, at least where food is concerned, I only consume food that is tested guaranteed gluten-free. I myself would not take a chance with a company who will not guarantee it through testing. Thanks!

So you never eat frozen veggies? Fresh fruits? Canned pineapple? Dried beans? Meats?

It's your choice but hard to eat healthy that way. As far as meds, very few have gluten in them, so I'm not sure about cc. I wonder how many drug companies say gluten-free but haven't tested them. I guess you could call every food or drug company and quiz them about why they say gluten-free.

Where do you get the info that Synthroid's company "they have had some doses that supposedly included a gluten ingredient in the past and doses that did not"? Did the company post that? Or are you just guessing?

  • 2 weeks later...
LauraTX Rising Star

I take Mylan brand levothyroxine.  Some times people don't do well with a certain brand, but what matters is that you find one that works for you and stick with it.  If you change manufacturers, follow up with a blood test, since when things are measured in micrograms, the teeny differences in active ingredients between manufacturers can be enough to make you need a different strength.  A lot of physicians will write brand name Synthroid as medically necessary to avoid these problems.

 

I work in a hospital pharmacy, and we carry 4 different brands of levothyroxine, all strengths, plus the alternatives, and they try to keep the patient on the brand/manufacturer they were already on, or use the meds they bring from home, as to not adversely affect their blood levels. 

 

If you are nerdy like me and would like to read into this further, here is a good article from University of Illinois Pharmacy School:

Open Original Shared Link

 

I hope you have good luck settling into another brand.  Usually at a singular retail pharmacy, they will only carry one brand of generic levothyroxine as to not cause mix ups, but they can order your preferred brand as well.  That way you can keep all your medications safely filled at one place.  :)

kitgordon Explorer

Lannett brand generic levothyroxine is gluten free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



melisc312 Newbie

I Had To Get Off Of Synthroid Since It Was No Longer Gluten-Free. I Am Also Not On Amour Because It Is Not Gluten-Free. I Have Been On Levothyroxine And It Has Made Me Bloat Up.

So what do you take then?

cyclinglady Grand Master

So what do you take then?

Read the rest of the earlier posts.    I can speak only for Armour Thyroid (been on it since 1997) and it's gluten free.  There are plenty of gluten free choices.  I also recommend doing more research on thyroid meds outside of this site (we're really into Celiac Disease!) :)

  • 2 months later...
cyclinglady Grand Master

So glad I found this thread. I'm jumping through hoops getting my HMO to get/order gluten-free thyroid meds for me. I brought a copy of glutenfreedrugs.com list to show my Endo and the Pharmacist. I've been gluten-free because of celiac disease for a year and apparently my meds aren't "clean".

 

I get my prescription from Costco (Armour Thyroid) and I DO NOT use my insurance.  If my doc writes the script for 100 tablets, it's actually cheaper than paying the monthly co-pay.  I don't have to order each month or go through a mail-house pharmacy either!  Shop around your local pharmacys and ask for the cash price.  Then get whatever thyroid med you want as long as it's gluten free!   :)

cahill Collaborator

Read the rest of the earlier posts.    I can speak only for Armour Thyroid (been on it since 1997) and it's gluten free.  There are plenty of gluten free choices.  I also recommend doing more research on thyroid meds outside of this site (we're really into Celiac Disease!) :)

I for one can multi  task . I am "into" celiacs that is true but since other autoimmune diseases ( such as hashimotos ) go hand and hand with celiacs many of us have  learn to multi task .

I can not recommend any of the "thyroid " sites for information . They are just plain scary .

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to BeeBarnard's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Chicken Thighs

    2. - trents replied to BeeBarnard's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Chicken Thighs

    3. - BeeBarnard posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Chicken Thighs

    4. - S V replied to S V's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Cooking with Scallop Medalions

    5. - Celiacandme posted a topic in Related Issues & Disorders
      0

      Perimenopause/menopause


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,965
    • Most Online (within 30 mins)
      7,748

    Debidiah
    Newest Member
    Debidiah
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Here is a link to the skin version, and the only ingredients are "chicken": https://www.perduefarms.com/en-US/perdue-bone-in-chicken-thighs-pack/60625.html There should also be ingredients and any allergens listed there on the package.
    • trents
      Welcome to the forum, @BeeBarnard! I really can't imagine how either skin or skinless chicken thighs could not be gluten free unless one or the other were treated with some seasoning ingredient that was not gluten free. Do the product labels indicate any additional ingredients added to the meat? Is your daughter a super sensitive celiac? If not, the amount of gluten cross contamination found in seasonings is usually inconsequential.
    • BeeBarnard
      HI, My daughter was recently diagnosed with Celiac and I would like to make her some chicken soup (she's got he flu). I found all gluten free ingredients but I'm having trouble with the chicken. I purchased Purdue bone-in chicken thighs from BJ's Wholesale Club. Purdue says that they are gluten free but the BJ's website says no. It seems like skin-on chicken is not, but skinless is. Does this seem accurate? Thank you
    • S V
      On 1/1/2025 10:04 PM, Sandra Vail wrote: The medalions we're actually pretty tasty wrapped in bacon. I was just trying to accommodate one of the guests who is sensitive to wheat. They had other appies to choose from so all's well that ends well. The Costco scallops are excellent but 4 x the price. Thanks!
    • Celiacandme
      Hello there, it's been ages since I signed into this account. Wanted to see if there were other celiac patients that have gone through perimenopause/menopause and chose to take estrogen or wear an estrogen patch? I know all of our bodies are different but curious how it went or is going for you. Thanks so much. 
×
×
  • Create New...