Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Medication? Levoxyl Discontinued


Tigercat17

Recommended Posts

MissUrka Newbie

I take Synthroid. It is gluten free.

The manufacturer of Synthroid (Abbott) DOES NOT GUARANTEE THE GLUTEN FREE STATUS OF ITS PRODUCT ANY LONGER. I believe this includes all dosages. Please check glutenfreedrugs.com


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MissUrka Newbie

Of course, you will have a source for this claim, and I expect that you will be sharing it with us promptly.

Please check the Alpha List at GlutenFreeDrugs.com

Open Original Shared Link

This is what they say about Synthriod:

Synthroid (all strengths)-can no longer guarantee gluten-free status

The new wording was put there sometime between October 2012 and March 2013

Regarding the glutefreedrugs website:

The Gluten Free Drugs website is authored and maintained by a clinical pharmacist as a public service, receiving no compensation whatsoever for providing this information. Information for this website is obtained from a number of sources, including personal contact with the manufacturers and input from other individuals who contact manufacturers. The information is continually updated as it is obtained.

This site is for informational purposes only. Please note that a reasonable attempt is made to provide accurate information. The webmaster is not responsible for any error contained within. All persons should interpret the information with caution and should seek medical advice when necessary. This descipifion is from Open Original Shared Link

kareng Grand Master

Please check the Alpha List at GlutenFreeDrugs.comOpen Original Shared Link

This is what they say about Synthriod:

Synthroid (all strengths)-can no longer guarantee gluten-free status

The new wording was put there sometime between October 2012 and March 2013

Regarding the glutefreedrugs website:

The Gluten Free Drugs website is authored and maintained by a clinical pharmacist as a public service, receiving no compensation whatsoever for providing this information. Information for this website is obtained from a number of sources, including personal contact with the manufacturers and input from other individuals who contact manufacturers. The information is continually updated as it is obtained.

This site is for informational purposes only. Please note that a reasonable attempt is made to provide accurate information. The webmaster is not responsible for any error contained within. All persons should interpret the information with caution and should seek medical advice when necessary. This descipifion is from Open Original Shared Link

There is a difference between " yes. Our drug contains gluten" and "we don't knowingly use gluten "but, because we don't test for gluten, we will no longer say officially " gluten free". I choose to read the ingredients. You may decide to use it or not. That would be your choice.
MissUrka Newbie

Thanks for your reply! I just wanted to remind that, yes you can read the ingredients but you can never rule out cross contamination. If a company does not specifically TEST for gluten, it is highly unlikely that they will state without qualification that a product is gluten-free. Companies may not be able to guarantee that the raw materials they purchased to make the drug have not suffered cross-contamination. Even though their ingredient list does not include gluten for Synthroid, they have had some doses that supposedly included a gluten ingredient in the past and doses that did not. So, without knowing their manufacturing process it's hard to say about cross contamination. Myself, at least where food is concerned, I only consume food that is tested guaranteed gluten-free. I myself would not take a chance with a company who will not guarantee it through testing. Thanks!

kareng Grand Master

Thanks for your reply! I just wanted to remind that, yes you can read the ingredients but you can never rule out cross contamination. If a company does not specifically TEST for gluten, it is highly unlikely that they will state without qualification that a product is gluten-free. Companies may not be able to guarantee that the raw materials they purchased to make the drug have not suffered cross-contamination. Even though their ingredient list does not include gluten for Synthroid, they have had some doses that supposedly included a gluten ingredient in the past and doses that did not. So, without knowing their manufacturing process it's hard to say about cross contamination. Myself, at least where food is concerned, I only consume food that is tested guaranteed gluten-free. I myself would not take a chance with a company who will not guarantee it through testing. Thanks!

So you never eat frozen veggies? Fresh fruits? Canned pineapple? Dried beans? Meats?

It's your choice but hard to eat healthy that way. As far as meds, very few have gluten in them, so I'm not sure about cc. I wonder how many drug companies say gluten-free but haven't tested them. I guess you could call every food or drug company and quiz them about why they say gluten-free.

Where do you get the info that Synthroid's company "they have had some doses that supposedly included a gluten ingredient in the past and doses that did not"? Did the company post that? Or are you just guessing?

  • 2 weeks later...
LauraTX Rising Star

I take Mylan brand levothyroxine.  Some times people don't do well with a certain brand, but what matters is that you find one that works for you and stick with it.  If you change manufacturers, follow up with a blood test, since when things are measured in micrograms, the teeny differences in active ingredients between manufacturers can be enough to make you need a different strength.  A lot of physicians will write brand name Synthroid as medically necessary to avoid these problems.

 

I work in a hospital pharmacy, and we carry 4 different brands of levothyroxine, all strengths, plus the alternatives, and they try to keep the patient on the brand/manufacturer they were already on, or use the meds they bring from home, as to not adversely affect their blood levels. 

 

If you are nerdy like me and would like to read into this further, here is a good article from University of Illinois Pharmacy School:

Open Original Shared Link

 

I hope you have good luck settling into another brand.  Usually at a singular retail pharmacy, they will only carry one brand of generic levothyroxine as to not cause mix ups, but they can order your preferred brand as well.  That way you can keep all your medications safely filled at one place.  :)

kitgordon Explorer

Lannett brand generic levothyroxine is gluten free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



melisc312 Newbie

I Had To Get Off Of Synthroid Since It Was No Longer Gluten-Free. I Am Also Not On Amour Because It Is Not Gluten-Free. I Have Been On Levothyroxine And It Has Made Me Bloat Up.

So what do you take then?

cyclinglady Grand Master

So what do you take then?

Read the rest of the earlier posts.    I can speak only for Armour Thyroid (been on it since 1997) and it's gluten free.  There are plenty of gluten free choices.  I also recommend doing more research on thyroid meds outside of this site (we're really into Celiac Disease!) :)

  • 2 months later...
cyclinglady Grand Master

So glad I found this thread. I'm jumping through hoops getting my HMO to get/order gluten-free thyroid meds for me. I brought a copy of glutenfreedrugs.com list to show my Endo and the Pharmacist. I've been gluten-free because of celiac disease for a year and apparently my meds aren't "clean".

 

I get my prescription from Costco (Armour Thyroid) and I DO NOT use my insurance.  If my doc writes the script for 100 tablets, it's actually cheaper than paying the monthly co-pay.  I don't have to order each month or go through a mail-house pharmacy either!  Shop around your local pharmacys and ask for the cash price.  Then get whatever thyroid med you want as long as it's gluten free!   :)

cahill Collaborator

Read the rest of the earlier posts.    I can speak only for Armour Thyroid (been on it since 1997) and it's gluten free.  There are plenty of gluten free choices.  I also recommend doing more research on thyroid meds outside of this site (we're really into Celiac Disease!) :)

I for one can multi  task . I am "into" celiacs that is true but since other autoimmune diseases ( such as hashimotos ) go hand and hand with celiacs many of us have  learn to multi task .

I can not recommend any of the "thyroid " sites for information . They are just plain scary .

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Di Wallace's topic in Related Issues & Disorders
      1

      Mucus discharge

    2. - trents replied to ARSTONE's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Feel Good gluten free chicken soup dumplings

    3. - knitty kitty replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Hidden Gluten in distilled vinegar

    4. - Di Wallace posted a topic in Related Issues & Disorders
      1

      Mucus discharge

    5. - ARSTONE replied to ARSTONE's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Feel Good gluten free chicken soup dumplings


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,822
    • Most Online (within 30 mins)
      7,748

    Elizabeth Smith
    Newest Member
    Elizabeth Smith
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      We usually see mucus in the stool in those with undiagnosed celiac disease and those not adhering to a gluten free diet. However, the mucus could also be coming from lower down in the intestinal track. I would seek a physician consult. You might also check into getting a follow-p endoscopy/biopsy on the small bowel to check for healing progress since going gluten free.
    • trents
      @ARSTONE, not to be picky because there has been evolution in the terminology with regard to gluten disorders. And the terms "gluten intolerance" and "gluten sensitivity" are still used by some interchangeably. But with time, "gluten intolerance" has become synonymous with celiac disease with "gluten sensitivity" referring to NCGS (Non Celiac Gluten Sensitivity). Having said that, whatever it may be, apparently there is an ingredient in that product that doesn't agree with you.
    • knitty kitty
      @Manaan2, You may want to consider switching from Miralax (polyethylene glycol) to magnesium citrate and Thiamine supplements.   When I was prescribed Miralax for constipation, I developed worsened gastrointestinal problems, including worsening leaky gut syndrome.  Since polyethylene glycol is a synthetic chemical made from petroleum or coal byproducts, I was uncomfortable with that.   Miralax can cause poor vitamin absorption, flushing vitamins and minerals away before they can be absorbed.  Miralax can cause electrolyte imbalances, meaning low magnesium.  Low magnesium levels can cause constipation.  Low Thiamine Vitamin B1 can cause constipation as well.  Magnesium and Thiamine work together to make life sustaining enzymes.  Without sufficient thiamine and magnesium, the gastrointestinal tract slows down resulting in constipation, a sort of catch twenty-two.   I quit taking Miralax.  I took a form of Thiamine, Benfotiamine 250-300 mg, at the beginning of every meal and 200mg magnesium citrate or magnesium glycinate or magnesium l-threonate (Neuromag) at the end of every meal.  My constipation resolved quickly.  When my stool got too loose, I simply reduced the amount of magnesium.  I did not reduce Benfotiamine which has been shown to promote intestinal health and reduce leaky gut syndrome.  If thiamine at night gives too much energy to fall asleep at night, skip the Benfotiamine at the last evening meal. Blood tests ate not accurate measures of vitamin sufficiency.  The best way to check for Thiamine insufficiency is to take it and look for health improvement within a few days.  Thiamine is water soluble, easily excreted in urine if not needed.  Thiamine is safe and nontoxic when used in high doses.  No harm in trying, just to rule this out.   Best wishes.  Do keep us posted on your daughter's progress!
    • Di Wallace
      I don't know if anyone can help. I was diagnosed with celiac last June. Since going gluten free the diarrhea has stopped, in fact things have gone the other way. What is bothering me is the occasional rectal mucus discharge. I have no other symptoms and it doesn't happen very often. As I haven't seen anyone since my diagnosis, I don't know if this is normal or not
    • ARSTONE
      The issue is I'm not actually celiac but gluten intolerant. So do t know why I am so sick from this. It's been two days. 
×
×
  • Create New...