Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mushroom (Neroli) Memorial Thread


Scott Adams

Recommended Posts

Darn210 Enthusiast

You couldn't ask for a more compassionate, helpful soul . . . served with a side of funny.

 

We'll miss you Shroomie.

 

 

 

Condolences to Clayton. Peace to All.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 65
  • Created
  • Last Reply
elye Community Regular

I imagine she is eating a nice pizza with a side of baked potato and a big bowl of ice cream or some decadent gluteny dessert.

I know that there is something else she is doing. As I mentioned in an email to the Tickle Me Elbow gang, I know that Neroli was a big cat lady. She spoke so fondly of her Miss Emily (which resonated with me as I am an Emily), and I knew that she was one of those people whom cats love.

Well, in the past month we have had to have our two elderly cats put to sleep, our old beautiful Tess just two days ago. Funny how things transpire.....for last night in my haze of grief, a great warmth suddenly washed over me, for I am sure that my two lovely little feline souls have met up with Neroli and have found her waiting lap.

jerseyangel Proficient

I'm sure of it, Em:)

julissa Explorer

Prayers out to her family and everyone on this board, such a huge loss. She always was so encouraging, and will be missed tremendously. love the visual of her waiting lap in heaven.

Celiac Mindwarp Community Regular

Oh Em, I promised myself I wouldn't cry but you got me with the cats. It is nice to think they will keep each other company.

I know it sounds stupid, but I hadn't really considered that she might not make it. She had just got through so much, I thought she would do it.

I remember soon after I arrived that someone asked if she was some super trendy 19 year old hottie, as she seemed so clued in to popular culture, and so full of life. I think that maybe in her head she was. Such spirit and relentless optimism.

I loved reading her posts, such warmth, wisdom and humor.

There will be a Mushroom shaped space left here

Mindwarp x

dilettantesteph Collaborator

She made a difference here and will be missed.

celiac-mommy Collaborator

Words cannot express my sadness.  A great woman who will be dearly missed.  She has been such a great support to me over the past 7 years.  I cannot imagine a world without her in it -_-   God bless Clayton and the rest of her family and friends.  Peace and love to you all.  Rest well Neroli, and know we love you :wub:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

...for last night in my haze of grief, a great warmth suddenly washed over me, for I am sure that my two lovely little feline souls have met up with Neroli and have found her waiting lap.

 That is  such a beautiful thought, Emily. Now I know my Thor and Maeve will have someone to pet them.

 

Yes, she loved cats, but one time when I mentioned how much I love the little bunnies frolicking in my yard, Shroomie gave me a stern lecture about the destructive  havoc rabbits wreak on the New Zealand landscape and that they were no- good varmints that should be shot. She would hear none of my plea for leniency because they are so cute and cuddly. She just kept saying "NO, NO,  NO IH ! Absolutely not!"

 

:lol:

VeggieGal Contributor

This is such sad news. Although Ive not been a member that long, its really touched a nerve with me. Shroomie gave me some great advice and always came over as a very warm and fun loving person and I looked forward to her popping up on here always raising a smile or ten. Thanks for all your help.

Rest in peace Shroomie ...

Loey Rising Star

I am at a total loss for words. Schroomie meant so very much to every one of us. She touched us all in ways that will leave a terrible void. There is so much I want to say (and perhaps will post it when I find the right words). I just wanted to let Clayton and their family know my thoughts and prayers are with them and that I hope the wonderful memories they have will help them in the difficult times ahead. I know our collective memories will always keep her alive on our forum and someday fill the void.

 

God bless you, dear friend.

 

Love,

Loey

Loey Rising Star

I know that there is something else she is doing. As I mentioned in an email to the Tickle Me Elbow gang, I know that Neroli was a big cat lady. She spoke so fondly of her Miss Emily (which resonated with me as I am an Emily), and I knew that she was one of those people whom cats love.

Well, in the past month we have had to have our two elderly cats put to sleep, our old beautiful Tess just two days ago. Funny how things transpire.....for last night in my haze of grief, a great warmth suddenly washed over me, for I am sure that my two lovely little feline souls have met up with Neroli and have found her waiting lap.

 

I'm sure they're with her  :)

Mtndog Collaborator

So sad. She was so witty, intelligent, compasionate and such a fighter. Shroomie, say hi to my Simon Kitty. Rest in peace, sweet lady.

Jestgar Rising Star

Y'know....I just don't think Shroomie is the 'rest in peace' type.  My guess is that she showed up in her new digs, gave all the kitties a quick snuggle, then sent them off after those dratted bunnies.  Then she picked herslef out a new set of boobs and hunted down whoever is in charge of designing food to give them a piece of her mind.  I'm sure getting them properly sorted will take a while, and I can only imagine who's next on her list to "see to".

bartfull Rising Star

Karen, I apologize for leaving you out of my last post where I mentioned the people who first gave me help, compassion, and great advice. You were one of those people, along with Irish, Skylark, and of course Mushroom.

 

Now, I have to say this - I once had a cat who was so different from every other cat I ever had. Her name was Don't Jump, and she was smarter, funnier, and more loving that any cat in history.

 

She, I'm sure, was the first kitty to meet Mushroom in Heaven. She had to be because she wanted to thank Mushroom for helping me, and she needed to welcome her and give her all of that love.

 

I'm just babbling here folks. Still in shock I guess. When I got up this morning I started crying again.

 

I'm sure that if WE are hurting for Mushroom's family, that the people who knew her in "real life" must be surrounding them with love and comfort. If any of her friends in NZ are reading this, please please please, give them all hugs from us.

IrishHeart Veteran
As I stand on the mountaintop, the great bird approaches.
She is small in my sight, but grows larger on approach until I am blessed with the full sight of her graceful wings, proud countenance and good company.
 
All too quickly, she grows small again on the horizon and disappears from view.
And I call out, "Look, there. She's gone."
 
But there are other mountaintops beyond me.
And at the precise moment when I note the great bird's departure from my view, I know there are new eyes taking up the sight of her.....
And fresh voices calling out, "Look! Here she comes!"
elye Community Regular

Wow, that is beautiful, Irish.....and, so, more tears..  .  ...   :(   :(

I've been hesitating to post the li'l sad-face emoticon, as it just seems so....understated...inadequate......there ain't no faces available to reflect how I feel...

IrishHeart Veteran

Wow, that is beautiful, Irish.....and, so, more tears..  .  ...   :(   :(

I've been hesitating to post the li'l sad-face emoticon, as it just seems so....understated...inadequate......there ain't no faces available to reflect how I feel...

 

Em, I feel as you do. I really do. I have been stumbling around for 2 days. I talked with Gotta SkiLisa and Gemini on the phone and emailed like mad with other members, Karen, Sylvia, celiac mindwarp, G F lover,  etc....trying to console each other. As I am sure all you Psiliies have done. :)  I never met Neroli in person, nor do I have a photo of her, but in my mind's eye, I see her as tall, elegant, lovely. big grin...... with (and these are her own words she said to me, I swear....! :)  )  big feet.

I dunno...Julia Child maybe?

 

I want to be upbeat to honor Neroli, yet I am devastated by the loss of someone so wonderful., so generous and so.... well, for lack of a better word "HIP". She just seemed to  "get it."..about life and living for the moment in so many ways..

 

it's the biggest conundrum since I lost my Dad. He told me, do not mourn me, baby...remember what I taught you and laugh!! (BTW, I read that poem when we interned his ashes and at my friend's funeral) 

 

 

I think it is okay to be both sad and yet, bouyed and joyous... and all the better for having known her. 

I loved that woman. 

 

and here is what she also taught me..........(IMHO of course)

Gemini Experienced

I know that there is something else she is doing. As I mentioned in an email to the Tickle Me Elbow gang, I know that Neroli was a big cat lady. She spoke so fondly of her Miss Emily (which resonated with me as I am an Emily), and I knew that she was one of those people whom cats love.

Well, in the past month we have had to have our two elderly cats put to sleep, our old beautiful Tess just two days ago. Funny how things transpire.....for last night in my haze of grief, a great warmth suddenly washed over me, for I am sure that my two lovely little feline souls have met up with Neroli and have found her waiting lap.

I'm so sorry about your kitties.  I have had to put down too many animals over the years and it's as hard as losing a human friend.  All I can picture now is Mushroom in heaven, being followed by all these kitties that everyone has owned....probably going "Feed me, feed me"!

ravenwoodglass Mentor

I have just seen this. She was so kind, knowledgeable and it was an honor to have known her on this board. She will be missed greatly.

Loey Rising Star

I've been struggling to find a quote that does justice to our dear friend. I think I've finally found one. It's from the show Touch:

 

"We can not help but wonder how much difference one person makes in the world. We look inside ourselves questioning if we have the capacity for wisdom and greatness but the truth is every time we take an action we make an impact, every single thing we do has an effect on the people around us. Every choice we make sends ripples into the world and our smallest acts of kindness can cause a chain reaction of unforeseen greatness. We may not witness the results but they happen all the same.

 

The point where all things are possible, the moment when a choice is made or an action taken, the breath inhaled before a first step forward and at most the last chain reaction started by those moments and actions and choices are always the ones that are started by love..."

 

 Dearest Schroomie, you showed each and every one of us the difference one person can make. We have all been blessed by how often you touched our lives and will continue to. I know that you are watching over us all.

Loey Rising Star

 

As I stand on the mountaintop, the great bird approaches.
She is small in my sight, but grows larger on approach until I am blessed with the full sight of her graceful wings, proud countenance and good company.
 
All too quickly, she grows small again on the horizon and disappears from view.
And I call out, "Look, there. She's gone."
 
But there are other mountaintops beyond me.
And at the precise moment when I note the great bird's departure from my view, I know there are new eyes taking up the sight of her.....
And fresh voices calling out, "Look! Here she comes!"

 

 

Just beautiful ...

pricklypear1971 Community Regular

I just saw this. I am not here as frequently as I was.

This is very, very sad. Like many others, Mushroom was a great friend and teacher when I arrived in this forum.

I will truly miss her.

frieze Community Regular

no disrespect meant "oh, shoot", think George Carlin.......a bright, educated mind....sent to the next task....

nvsmom Community Regular

I didn't realize until today.  :(  I was wondering where she was...

 

She was lovely and helped me a bunch too. One I regretted would only remain a penpal. What a loss for everyone who has known her.

 

Best wishes to her family.

jhol Enthusiast

i had read the title of this thread but not actually read it,

 

i thought it couldnt be an actual memorial thread and i in no way associated the word "mushroom" with our mushroom. im shocked! i havent been here long but she was one of the first people to comment and help me. i had missed her posts and wondered where she was, so sorry for her family and friends, so sad.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,879
    • Most Online (within 30 mins)
      7,748

    Scarah
    Newest Member
    Scarah
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for sharing, Karen. Certainly a needed reminder what we already knew (and I've posted many times on this forum) but sometimes forget, namely, autoimmune disorders tend to cluster. Where one is found, you can look for others to show up eventually. The thing that is unusual in your son's case is the onset of several of them at such a young age. My sister in law, who is in her early 60's has Crohn's and struggles with constipation so I don't think that is unusual with Crohn's. If nothing else, it's the outcome of not eating much because of the pain. Now that you know what is going on with your son and the Crohn's, we hope he is beginning to improve.
    • Nathan.
      Hi there. My son is turning 16 this month. He had an endoscopy and biopsy to confirm celiac. He went gluten-free and his pain never got any better. I think it got worse. Months went by. The pain started around 7th grade. He missed a lot of school in 8th grade, and a whole lot in 9th grade. He couldn't go to school in 10th grade. All along the gastroenterologist prescribed Hyoscyamine, didn't help at all. Cyproheptadine, no less pain. Peppermint oil, ginger, Miralax, Senna. Doc said he was constipated, but I couldn't get him to have Miralax daily. Eventually he went on Linzess and no senna or Miralax. Sorry this is long, there will be a point.  We gave his school not just a doctors not, but everything, and U of M makes a lot of notes. They still turned us in for Truancy.  I didn't get him enrolled in online school fast enough.  The school would not recommend an online school and i didn't know which one to choose.  Doc thought it was nerve pain and mental. He recommended the u of m my pain program.  Nathan did so good, 3 days a week supposed to be for 4 weeks.  Never missed, always on time.   After two weeks, they discharged him. Said it was not  benefitting him.  Pain went on. I had been asking if there were any other test they could do. Ultrasound, colonoscopy. Doc said we can do it, but I don't think we'll find anything.  Finally he had a colonoscopy and another endoscopy.  Guess what, they did find something. They found a ton of tiny ulcers everywhere, from the esophagus to his rectum. They think Crohn's. I understand they didn't check for that because he was more constipated, not much diarrhea. He is getting an MRI with contrast on Sunday. Also they want him to do a cal-protectin (give a poop sample). Then an appointment on the 16th to talk about treatment. Then the probation officer on the 17th. In the meantime he is taking Budesonide extended release.  $276.00 for 30 pills, and that's with insurance. Also he was diagnosed with hyperthyroidism, Graves disease a few months ago. If it is for sure Crohn's,  it will be three autoimmune diseases. If someone is gluten-free for a month or more, and the pain is no better, don't stop looking. I was beside myself. Did they think he was exaggerating, lying? I was considering taking him to a holistic doctor, who would probably recommend Peppermint oil and ginger.  He's such a good kid. Kind of an introvert. He was on the 9th grade soccer team. He would try to go to practice and kept having to stop, the pain was that bad. Every time he ate, it didn't matter what, gluten-free chicken tenders, mac and cheese, pizza, ice cream, all gluten-free, he would eat a normal amount but stop and say, I can't eat anymore, my stomach hurts.  If anyone reads all this, thank you. I had a gut feeling, no pun intended, that he had an additional problem. They found celiac and stopped looking. If you don't feel better, keep on your doctor to check further, keep looking.   Take care, Karen  
    • Scott Adams
    • cristiana
      I think it takes different people different amounts of time, but in my own case I had pain,  bloating and loose stools for some time, exacerbated by a lactose intolerance, which eventually went.  I would say the really bad diarrhea got better quite quickly, but the bloating pain carried on for a few months, until I was told to give up lactose for a few weeks.  That helped enormously and once I realised milk and yoghurt was the cause, after a short break I went back to lactose very gradually and felt a lot better.  Now I can tolerate it well. From Coeliac UK "The enzyme lactase is found in the brush border of the small intestine. This is why people with coeliac disease can be deficient in lactase at diagnosis. Once established on a gluten free diet, the gut is able to heal and lactose digestion returns to normal. Lactose intolerance is therefore usually temporary." So if this helps your daughter, this doesn't mean you have to give up lactose forever, especially as dairy is such a good source of calcium for growing kids.   Bear in mind you should be able to reintroduce it. As for fatigue, this can be due to vitamin and mineral deficiencies,such as iron, vitamin D and B12.  Were these levels tested?  If not, I would suggest you get them done.  If your daughter is deficient in these, it is vital you address the deficiencies, and get the tests redone in a few months, particularly the iron, because too much can be dangerous.
    • knitty kitty
      Hello,   The medication in these inhalers can cause a thiamine deficiency if used by someone already low in thiamine.  We don't absorb sufficient amounts of vitamins and minerals due to the inflammation and damage done to our villi in Celiac Disease.  Even a long term strict gluten free diet may not provide sufficient amounts of vitamins and minerals.  There are eight B vitamins that all work together.  Thiamine deficiency often shows up first because our bodies use so much of it and it can't be stored very long. Thiamine deficiency symptoms can appear in as little as three days.  Without thiamine, the other B vitamins may not be able to function properly.   Thiamine is needed to clear lactic acid accumulation caused by the inhalers: Shoshin beriberi provoked by the inhalation of salbutamol https://pubmed.ncbi.nlm.nih.gov/12951730/    Significant Lactic Acidosis from Albuterol https://pmc.ncbi.nlm.nih.gov/articles/PMC5965110/ Albuterol-Induced Type B Lactic Acidosis: Not an Uncommon Finding https://pmc.ncbi.nlm.nih.gov/articles/PMC7263006/ Lessons of the month 1: Salbutamol induced lactic acidosis: clinically recognised but often forgotten https://pmc.ncbi.nlm.nih.gov/articles/PMC6964186/ An Overview of Type B Lactic Acidosis Due to Thiamine (B1) Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC10731935/   Thiamine has antifungal and antibacterial properties.  Thiamine helps keep Candida in check.  Thiamine helps keep SIBO in check.  Thiamine helps with black mold, Aspergillis infection.  Riboflavin helps fight Candida infection in the mouth. Riboflavin Targets the Cellular Metabolic and Ribosomal Pathways of Candida albicans In Vitro and Exhibits Efficacy against Oropharyngeal Candidiasis https://pubmed.ncbi.nlm.nih.gov/36625571/   Thiamine deficiency can make ones voice hoarse and can cause localized edema.  Niacin deficiency can make ones voice hoarse.  (Niacin deficiency and Thiamine deficiency can each cause irritability, agitation, and lability.) Hoarseness in pellagra https://pubmed.ncbi.nlm.nih.gov/21507655/ Hidden Hunger: A Pellagra Case Report https://pmc.ncbi.nlm.nih.gov/articles/PMC8152714/   Anesthesia can cause B12 deficiency.  B12 deficiency can show up as mouth sores and geographic tongue, diarrhea, and dementia. Vitamin deficiency, a neglected risk factor for post-anesthesia complications: a systematic review https://pmc.ncbi.nlm.nih.gov/articles/PMC11823251/ Neurologic degeneration associated with nitrous oxide anesthesia in patients with vitamin B12 deficiency https://pubmed.ncbi.nlm.nih.gov/8250714/ Subacute combined degeneration of the spinal cord following nitrous oxide anesthesia: A systematic review of cases https://pubmed.ncbi.nlm.nih.gov/30144777/ The Effect of Vitamin B12 Infusion on Prevention of Nitrous Oxide-induced Homocysteine Increase: A Double-blind Randomized Controlled Trial https://pmc.ncbi.nlm.nih.gov/articles/PMC4052402/     Eating a diet that is heavy in carbohydrates can precipitate a thiamine deficiency.  As the amount of carbohydrates consumed increases, additional thiamine is needed, otherwise the carbs will be stored as fat.   Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/   The deficiency symptoms of some of the B vitamins cause gastrointestinal symptoms that resemble the same symptoms as when being glutened.   Thiamine deficiency can present as vomiting, diarrhea and abdominal pain (Gastrointestinal Beriberi).  Niacin deficiency can present as diarrhea (Pellagra = diarrhea, dermatitis, dementia, then death ).  B12 deficiency can present as diarrhea or dementia.  Not everything is caused by hidden gluten.  Gluten free processed foods are not required to be enriched with vitamins lost in processing like gluten containing foods are. Blood tests are not accurate measurements of vitamin levels, but do talk to your doctor and nutritionist about supplementing with the eight B vitamins, Vitamin C, the four fat soluble vitamins and minerals like magnesium.  Your physician can give you a shot of B12 before anesthesia administration.   By the way, Celiac Disease genes have been traced back to having originated in Neanderthals.  I'm not a singing teacher on the net.  I earned a degree in Microbiology after studying nutrition because I wanted to know what vitamins are doing inside the body.  I've experienced nutritional deficiencies myself. Hope this helps!  Keep us posted on your progress!
×
×
  • Create New...