Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Possibly Dermatitis Herpetiformis?


djs89

Recommended Posts

djs89 Rookie

I have no official diagnosis of celiac disease, but I experience symptoms similar to it. However, I'm not brave enough to have an intestinal biopsy. I haven't been adhering to a strict gluten free diet due to a lack of confirmation. I have a family history of Crohn's disease, which seems to be linked to Celiac disease. I had a celiac blood test, which came back negative. Even if I do not have celiac disease, it seems like I do have an intestinal problem of some kind. I also have typical symptoms of an autoimmune disorder, and I know that consuming wheat/gluten products makes me ill.

 

Recently I've had rashes on the back of my legs. For about two months it comes and goes, in the same area. I took pictures when it was the worst I've seen. I've never experienced this degree of a rash before, but I've always had red bumps form randomly on my chest, back and arms.

 

I recently read about Dermatitis Herpetiformis and it's connection to celiac disease. I would like to know opinions of anybody experienced with this, if this rash could possibly be that. I don't experience much itchiness however, which I read is a symptom of DH. Sorry, the images are ugly. :unsure:

 

http://imageshack.us/a/img593/3175/skin1od.webp

 

http://imageshack.us/a/img195/6315/skin2w.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

There are many rashes & skin conditions associated with celiac disease & probably with non celiac gluten intolerance. But the dh rash itches like the very devil!!!! Non-stop, 24/7 & 365. If your rash does not itch then it's not dh.

djs89 Rookie

Could it be that the rash itches because people try to touch it or pick at it? I haven't touched the rash since I noticed it, and it is only mildly bothersome. I avoid scratching it because that would make it worse. I also put clay on it, perhaps that helped prevent itchiness?

tinpins Rookie

I've just been diagnosed with dermatitis herpetiformis and the condition from my personal experience  is indescribably itchy

 

This link would be good to read for clarification:

 

Open Original Shared Link

 

Here's an excerpt from the article:

 

 “All regions are liable to invasion … the face and scalp, elbows and knees, and palms and soles. The most striking symptom is the itching … in all cases violent or even intense …disproportionate in excess of the amount of eruption … a persistent itching, causing the sufferer to scratch constantly … generally present for several days before any sign of efflorescence … when the eruption is profuse, (itching, burning or pricking sensations) are intense, and cause the greatest suffering.

djs89 Rookie

Ahh, ok. Does the itchiness correlate to gluten consumption? For example is it more itchy if you eaten gluten, less itchy if you avoid it?

squirmingitch Veteran

No, it is not more or less itchy. It just itches like NUTS always. It doesn't matter if you scratch or not. It doesn't matter if you put clay on it. It's just plain HELL. It is called the suicidal itch & that moniker is in medical texts as well as the brains of we who suffer with it. Does that answer your question?

bartfull Rising Star

Look up gutate psoriasis. As a matter of fact, if you google "gutate lesions" you will see images that look very much like the pics you posted. That's not to say that's what it is, but it might be. Gutate psoriasis itches too, but not as badly as DH.

 

It sounds like you do have a problem with gluten. You may or may not have celiac, but there is a thing called non-celiac gluten intolerance that gives the same symptoms. And psoriasis is definitely associated with gluten. Stress is another factor.

 

I have psoriasis. Mine is palmoplantar pustular. It doesn't itch, it just hurts. I only get it on my hands and feet. The feet take forever to heal. At one point my hands were completely healed and my feet were finally ALMOST completely healed. Then I got glutened. My hands flared for a while, but my feet flared badly and are still a mess. As a matter of fact, my feet have started itching - not all the time, but in waves. They'll be OK for a while, then I get to itching so much I HAVE to scratch. Half an hour later it'll calm down. This happens several times a day.

 

At first I thought I might be developing DH too, especially because the rash looks different than it used to. But I now believe I have develpoed gutate psoriasis on my feet.

 

And the other day I had a REALLY bad day. Lots of things went wrong and I was totally stressed out for a while. I woke up the following morning with new pustules on my hands - lots of them. I know for certain it wasn't food that did it because my house and shop are completely free of all of my "poisons". Everything I ate was not only what I always eat, but there were no new packages involved. (It's good to read the label EVERY TIME you buy something because they change ingredients often depending on price and availability.)

 

So try to think back. What did you eat when your rash flared, and did anything happen to stress you out during those times?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



djs89 Rookie

I also thought it could be psoriasis. It can be difficult to tell, based on pictures online. It doesn't look like most of the pictures of psoriasis I've seen, but it could be that. I haven't done a gluten free diet, yet, but I have never had this kind of rash before.

cahill Collaborator

No, it is not more or less itchy. It just itches like NUTS always. It doesn't matter if you scratch or not. It doesn't matter if you put clay on it. It's just plain HELL. It is called the suicidal itch & that moniker is in medical texts as well as the brains of we who suffer with it.

 Yep , that pretty much sums it up

bartfull Rising Star

types_guttate.webp

This is a picture of gutate psoriasis.

djs89 Rookie

Yes, it could be that. Someone else in my family has psoriasis. I have small bumps under the skin of my palms also, which looks like it could be mild psoriasis.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,766
    • Most Online (within 30 mins)
      7,748

    Angie howard
    Newest Member
    Angie howard
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @Bebee, Yes, Celiac Disease has genetic commonalities with MS, hypothyroidism, arthritis, Reynaud, and rosacea.   Usually a gluten challenge is done before endoscopy with biopsies taken,  however I would not recommend a gluten challenge before endoscopy with biopsies for you since you have been gluten free for so long and have so many concurrent autoimmune diseases.   You can still have the endoscopy with biopsy samples taken now.  After several months with dietary changes, you can have another to compare results and check that intestinal health has improved.   You can get a genetic test for Celiac disease which shares genetics with other autoimmune diseases that you have.  Eating gluten is unnecessary for genetic tests. For the rosacea, get checked for SIBO (Small Intestinal Bacterial Overgrowth) that could be causing gastrointestinal symptoms as well as causing skin issues.  Our skin is a reflection of our gastrointestinal health.     Following the Autoimmune Protocol Diet has been helpful in keeping my own rosecea, eczema, and dermatitis herpetiformis and other autoimmune diseases in check.   Be sure to be checked for nutritional deficiencies that occur easily in gluten free and dairy free diets. Keep us posted on your progress! References: Clustering of autoimmune diseases in patients with rosacea https://pubmed.ncbi.nlm.nih.gov/26830864/ And... Celiac disease and risk of microscopic colitis: A nationwide population-based matched cohort study https://pubmed.ncbi.nlm.nih.gov/36939488/
    • Bebee
      I am new here, I have been diagnosed with Microscopic Colitis (Lymphatic) years ago and have been gluten-free, DF since, but I still can have occasional bouts of diarrhea (still trying to figure that out).  I also have MS, Hypothyroid, Arthritis, Reynaud's and my rosacea has been acting up lately.  What treatment is suggested to help with rosacea?  I would like to know too if there is a test for celiac if you have been gluten-free?   Thank you, Barb    
    • bluebird2032
      Gluten free/ non dairy , low calorie pudding ideas please?
    • K6315
      Well, that's interesting. I am lactose intolerant and have been managing that for years. I'd be interested in seeing if that changes once I feel better from not eating gluten (one thing at a time for now, though). Helpful to hear about the avenin. I will do some digging and pose that to the dietitian. Grateful for your feedback.
    • kate g
      Recently my daughter ate in nandos harlow I rang in advance to speak about the celiac protocals and learned that childs portion chicken nandinos is cooked on the same grill as garlic bread even if they are celiac! Even if you clean it this is not good practise and will be making many children ill. I learnt adults butterfly chicken cooked on a grill purely for chicken.  This is fine and what we ordered however nandos need to take note of your practises for the safety of celiac children. my daughter has been ill from their nandinos chicken before and i emailed head office and they wouldnt accept responsibility 
×
×
  • Create New...